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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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allen476
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Re: QUITTING CPAP

Post by allen476 » Tue Apr 20, 2010 7:33 am

SleepingUgly wrote:Allen, so sorry to hear of the bad news the cardiologist delivered. I am happy for you that you'll be getting insurance soon!

Thanks. While it is insurance, the coverage is a lot less than what we had. My wife's employer is small but at least it is something. We have to pay for everything right now and yesterdays adventure was $110. At least he was very understanding and gave me 2 months worth of samples for the medicine I am on. That saved us $40 a month.

I will be getting a second opinion. I didn't expect yesterdays news and quite frankly, I still don't believe it completely. I do believe the cause of it as there really isn't any other factor that could cause it.

Allen

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DoriC
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Re: QUITTING CPAP

Post by DoriC » Tue Apr 20, 2010 9:23 am

Allen, Thinking of you and please let us know the results of your second opinion. Medical opinions can differ widely in many cases.

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DreamDiver
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Re: deleted

Post by DreamDiver » Tue Apr 20, 2010 4:14 pm

KMCKOB wrote:deleted
All his posts are deleted.
Either he's in a world of trouble, or he realized his attempted 'viral-marketing' ploy is not going to work on this venue.
As I said before, I apologize if I'm wrong.
But I don't think I am.
allen476 wrote:While it is insurance, the coverage is a lot less than what we had. My wife's employer is small but at least it is something. We have to pay for everything right now and yesterdays adventure was $110. At least he was very understanding and gave me 2 months worth of samples for the medicine I am on. That saved us $40 a month.

I will be getting a second opinion. I didn't expect yesterdays news and quite frankly, I still don't believe it completely. I do believe the cause of it as there really isn't any other factor that could cause it.
I hope the second opinion works out for the best outcome for you. Good luck.

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Re: deleted

Post by DoriC » Tue Apr 20, 2010 5:29 pm

DD, I've just reread all 3 pages and I'm so disappointed that so much effort and good will went into helping the poster and now he's disappeared. I'm curious, what are the tell tale signs you look for in a post to create a question in your mind?

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"Do or Do Not-There Is No Try"-"Yoda"
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is not an act but a habit"-"Aristotle"
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DreamDiver
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Re: deleted

Post by DreamDiver » Tue Apr 20, 2010 7:43 pm

DoriC wrote:DD, I've just reread all 3 pages and I'm so disappointed that so much effort and good will went into helping the poster and now he's disappeared. I'm curious, what are the tell tale signs you look for in a post to create a question in your mind?
It's not any one thing. It's a summation of things:
  • All of his posts are primary posts. When I realized this after having read a few of his posts, I went to his profile's list of posts to confirm my suspicions. Darned if I wasn't right.
  • He never replies to anyone or engages any of us in any of his posts. (There are - or were - no 'RE:' posts from him back to any of us.)
  • He always posts in a report-styled format about one single thing and how it isn't working for him. Very bland. Very general.
  • His software doesn't match his hardware in his profile. How am I supposed to believe this guy is really using the 'S8 VPAP™ Auto 25 BiLevel Machine' with 'Compliance Maximizer Version 1.12 Software for SleepStyle CPAP Machines'? It doesn't add up.
I suspect there are no 'RE:' posts because if he had to engage any of us in a real conversation, we would quickly find out that he knows nothing about the machine he chose for his online 'persona'. He doesn't really own the machine. He combined what he learned from other posts and what people didn't like about whatever and made it up as he went along.

The people on this forum are very savvy. We are take-charge people who want to get the best performance out of our health, or as in your case DoriC, the health of our significant others. Trying to put one over on people like that takes a lot of time and investment. Typically, people who have something to sell aren't paid to do that kind of research or to engage at the level of contact this kind of forum entails. Yes, there are those of us who are lurkers - just hanging around learning, but sooner or later, we jump in and ask questions and get to know each other on some functional level. Some of us leave or take a back seat for a while, but you can go over previous posts by those people and see they're real people with real challenges and successes. You learn to trust the advice of the other forum members as you get to know them, even if only through their past posts. There is none of that with this guy. He just gives us negative reports and walks away.

Sooner or later, it was bound to end with some 'miracle cure' that would tell us what he found that is now making his life 'better without CPAP' - or in his case BiPAP. We all connect the dots differently. I've learned to be skeptical about certain things. Sniffing out fakers in a forum is something I've learned from years of running a listserv with of about a thousand active members from all over the world. New members come and go. The ones who apply for membership in order to 'share' something are typically only there to sell some product. Advertising is prohibited on this particular listserv, or else it would quickly devolve into a spam list reaching key unelected officials all over North America and elsewhere who really don't need the extra spam. As with this forum, unskewed interactive dialog is key. I've had to learn to pick them out. Something about his method comes across as deceptive - like he's paid to post a few emails a month, but not paid enough to 'linger' and engage. Trying to hire someone who actually has a BiPAP and is willing to engage and sell a product that eschews the use of BiPAP is probably not going to happen because BiPAP is not for someone with 'mild' sleep apnea. Any BiPAP owner with a grain of integrity is going to steer clear of falsifying his own reputation for twenty silver drachmas.

That he's removed all his posts suggests to me that he's rethinking his strategy or attempting to find some other method to market to us 'virally'. This forum and its members are more influential than you may realize. You - DoriC - are making a difference in the world, as are the many other incredible members who post on this forum. My professional opinion is that forum member is a made up 'persona' and was only created here as a marketing tool - not to engage. The point at which I will gladly apologize is when he says something real. I don't think that's going to happen.

I would however be curious to know what he's hawking. If he apologized for the deception, gave us a real name and told us what he's hawking, I might listen for about five minutes, but he's more likely to be 'shot down' by our members as new-age charlatan with some hokum-smokum pill, herb or device that helps with snoring but is not a medically-peer-reviewed apnea 'cure'.

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Re: deleted

Post by Wulfman » Tue Apr 20, 2010 8:48 pm

If you go to his profile and look at his threads, you'll find that many of us quoted his posts, so you CAN see what he was looking for........an excuse NOT to use his machine (regardless of what it was).
I suspect the lack of sympathy from the forum members gave him a clue that he wasn't going to find what he was looking for.
So, he got pissed and left.


Den
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DreamDiver
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Re: deleted

Post by DreamDiver » Tue Apr 20, 2010 9:12 pm

Wulfman wrote:If you go to his profile and look at his threads, you'll find that many of us quoted his posts, so you CAN see what he was looking for........an excuse NOT to use his machine (regardless of what it was).
I suspect the lack of sympathy from the forum members gave him a clue that he wasn't going to find what he was looking for.
So, he got pissed and left.


Den
Okay. I hope we can agree to disagree on this one. I continue to think he was a plant.

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jules
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Re: deleted

Post by jules » Tue Apr 20, 2010 9:12 pm

he was a long ways from accepting his diagnosis and way far away from making the commitment he needed

I think goofproof would say something about that big long river in Egypt

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Re: deleted

Post by jules » Tue Apr 20, 2010 9:14 pm

DreamDiver wrote: I hope we can agree to disagree on this one. I continue to think he was a plant.
no - he was too far out of it for that imo - he had no idea what he was facing and unwilling to do what is necessary to get out of the hole he was in

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allen476
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Re: deleted

Post by allen476 » Tue Apr 20, 2010 9:17 pm

Wulfman wrote:If you go to his profile and look at his threads, you'll find that many of us quoted his posts, so you CAN see what he was looking for........an excuse NOT to use his machine (regardless of what it was).
I suspect the lack of sympathy from the forum members gave him a clue that he wasn't going to find what he was looking for.
So, he got pissed and left.


Den

My thought is that he is either:

1.) A troll.

2.) What DreamDiver said.

3.) Someone that is slightly overweight (+20# over) that is looking for an excuse not to do what is right. He came looking for sympathy.What he found is people from all walks of life and from all ranges of the medical spectrum. He wasn't expecting those that are skinny to be here as well as those that won't listen to his crying. He either left in frustration because he was being told that there are those that have the actual damage from OSA or that he really didn't want to face his reality. I suspect that he never believed what he read.

4.) That he never intended to use CPAP and that all he wanted to do is find someone to support his cause. When no one defended him, he left.

On a lighter note, I spent this afternoon getting the cardiologist to refer me to University of Rochester Medical Center. I have an appointment May 7th and am on the "call-in" list if there is an earlier appointment that comes available.

Allen

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Re: deleted

Post by SleepingUgly » Tue Apr 20, 2010 9:21 pm

allen476 wrote: On a lighter note, I spent this afternoon getting the cardiologist to refer me to University of Rochester Medical Center. I have an appointment May 7th and am on the "call-in" list if there is an earlier appointment that comes available.
Allen, maybe you should start a thread (like Dori did about her husband's surgery) and keep us posted that way. I'm afraid the content will get lost on this thread. I would like to know how you're doing.
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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Re: This post was vaporized

Post by DreamDiver » Wed Apr 21, 2010 9:54 am

Hmmm... maybe just a troll as allen476 suggests.

viewtopic/t51364/search.php?author_id=47769&sr=posts

This post was vaporized
by extraterrestrial forces

The CPAP device of the future
will be one the can be placed inside the body

The device must be kept
free of volcanic ash or breathing will be difficult

One can not be in compliance
if he or she is watching TV while eating Doritos

Keeping your machine clean
will not only benefit you, but the rest of society

Please take to be
correct in what you wish others to believe

When he turned on the
device, Lady GaGa sang Poker Face

It has been a wonderful
experience, akin to drinking a large rock cocktail

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Re: This post was vaporized

Post by echo » Wed Apr 21, 2010 10:47 am

i thought you were turning into a sleep deprived weird poet DD until I clicked on that link (stupid me, read first click later).

at least it's funny

last one is sad

oh well, ya win some, ya lose some
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allen476
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Re: deleted

Post by allen476 » Wed Apr 21, 2010 12:00 pm

DoriC wrote:DD, I've just reread all 3 pages and I'm so disappointed that so much effort and good will went into helping the poster and now he's disappeared.

Sad part is that no one can weed out the bad from the good. Just makes you more cynical on posting in the future. I believed that he was genuine until he changed his postings to some ridiculous one liners. Now he is a troll in my book.


Allen

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allen476
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Re: deleted

Post by allen476 » Wed Apr 21, 2010 12:09 pm

SleepingUgly wrote:
allen476 wrote: On a lighter note, I spent this afternoon getting the cardiologist to refer me to University of Rochester Medical Center. I have an appointment May 7th and am on the "call-in" list if there is an earlier appointment that comes available.
Allen, maybe you should start a thread (like Dori did about her husband's surgery) and keep us posted that way. I'm afraid the content will get lost on this thread. I would like to know how you're doing.
I will start a new thread after the 7th (or sooner). I won't know anything until after then as well. I used this thread because I believed that he didn't want to know that OSA can actually do the damage they say it could. Believe me, I wish I had done the follow up 15 years ago, live wouldn't be so complicated now.

Allen