OT: what a long, strange trip it's been
- SnoozyWoozyCat
- Posts: 84
- Joined: Tue Oct 20, 2009 7:05 pm
OT: what a long, strange trip it's been
i just wanted to let all of my cpap buddies know that I have been in the hospital since jan. 13th. I was diagnosed with acute promyelocytic leukemia. I went to an er here in denver and never got to go home and process it all. My blood counts were some of the lowest they had ever seen. I had my 1st chemo treatment on the 15th and apparently something went very wrong. My lungs shut down and they had to put me on a ventilator and in a temp. coma for about a week. 3.5 weeks later, and my counts have come up enough that the doctor said I could go home until the next chemo treatment-- only problem is, they put me on massive doses of steroids, i've been in a coma for a wk and in bed for 2.5 weeks. So my muscles are virtually useless and now I have to go to rehab to strenghten them for possibly 2 weeks. I just want off this scary rollercoaster ride!
Apparently my type of leukemia is rare in that it is one of few that can be treated only by chemo; a bone marrow transplant would not be necessary. i will however be on some sort of chemo for the next 2 years. The hair has started to come out -- hard to deal with but cool for summer?
So that in a nutshell is what's going on with me. My numbers improved fairly quickly, and next week I will have a 2nd bone marrow biopsy to see if the leukemia is in remisson. So send healing thoughts my way!
Apparently my type of leukemia is rare in that it is one of few that can be treated only by chemo; a bone marrow transplant would not be necessary. i will however be on some sort of chemo for the next 2 years. The hair has started to come out -- hard to deal with but cool for summer?
So that in a nutshell is what's going on with me. My numbers improved fairly quickly, and next week I will have a 2nd bone marrow biopsy to see if the leukemia is in remisson. So send healing thoughts my way!
- cpapernewbie
- Posts: 685
- Joined: Fri Oct 13, 2006 5:53 pm
Re: OT: what a long, strange trip it's been
May I wish you a speedy recovery SnoozyWoozyCat! Glad to hear your progress
Resmed airsense 10
Re: OT: what a long, strange trip it's been
May all go well for you! Medical emergencies are not fun, and neither are illnesses like the Big C. You'll be in our thoughts.
Sending you Pink Lights!
Sending you Pink Lights!
-- Kiralynx
Beastie, 2008 Beastie2, PRS1 960, 2014-05 Beastie3, Dream Station ASV, 2017-10-17. Resmed Aircurve 11, 2026-06 PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 8
Beastie, 2008 Beastie2, PRS1 960, 2014-05 Beastie3, Dream Station ASV, 2017-10-17. Resmed Aircurve 11, 2026-06 PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 8
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: OT: what a long, strange trip it's been
Bless your heart. Of course you want off! And of course you will be in our thoughts and prayers.SnoozyWoozyCat wrote:... I just want off this scary rollercoaster ride! ... i will however be on some sort of chemo for the next 2 years. The hair has started to come out -- hard to deal with but cool for summer? ... So send healing thoughts my way! ...
As to the hair loss. Just think of it as a fashion forward thing. You will be going with the "Bald is Beautiful" look:


And I'm not being flip about this. As you can see from the photos, "Bald is Beautiful" is a fashion subtrend. Though you didn't choose that path, you can always decide to laugh at fate and embrace it anyway!
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
Re: OT: what a long, strange trip it's been
SnoozyWoozyCat,
Here's sending you as many best wishes as you need -- amount unlimited.
I hope you will feel better soon - subjectively, and heal as fast as possible - objectively.
O.
Here's sending you as many best wishes as you need -- amount unlimited.
I hope you will feel better soon - subjectively, and heal as fast as possible - objectively.
O.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Re: OT: what a long, strange trip it's been
My thoughts and prayers are headed your way!
Brenda
Brenda
Re: OT: what a long, strange trip it's been
Oh, honey!!
{{{{{{{{{{SnoozyWoozyCat}}}}}}}}}}
{{{{{{{{{{SnoozyWoozyCat}}}}}}}}}}
Howkim
I am not a mushroom.
I am not a mushroom.
- SnoozyWoozyCat
- Posts: 84
- Joined: Tue Oct 20, 2009 7:05 pm
Re: OT: what a long, strange trip it's been
Oh to have Natalie Portman's bone structure! If I looked that good bald, I wouldn't mind a bit!JohnBFisher wrote:
As to the hair loss. Just think of it as a fashion forward thing. You will be going with the "Bald is Beautiful" look:
[img]
And I'm not being flip about this. As you can see from the photos, "Bald is Beautiful" is a fashion subtrend. Though you didn't choose that path, you can always decide to laugh at fate and embrace it anyway!
Thanks to all for the kind thoughts!
Re: OT: what a long, strange trip it's been
...thoughts and lots of hugs ! ! !SnoozyWoozyCat wrote:So send healing thoughts my way!

Best among people are those who benefit mankind
Re: OT: what a long, strange trip it's been
Wow! You've been busy... Healing thoughts are headed your way.
The OSA patient died quietly in his sleep.
Unlike his passengers who died screaming as the car went over the cliff...
Unlike his passengers who died screaming as the car went over the cliff...
- BleepingBeauty
- Posts: 2454
- Joined: Thu Apr 02, 2009 5:30 pm
- Location: Aridzona ;-)
Re: OT: what a long, strange trip it's been
Best wishes, Snoozy!
Sorry to hear of your diagnosis, and hope things improve quickly. We're always here for you.
Sorry to hear of your diagnosis, and hope things improve quickly. We're always here for you.
Veni, vidi, Velcro. I came, I saw, I stuck around.
Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy.
)
PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.
Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy.
PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.
Re: OT: what a long, strange trip it's been
Snoozy, so glad you're back with us. Sending healing thoughts to you.
KatieW
Re: OT: what a long, strange trip it's been
I am sending you good wishes and hope this is all behind you very soon.
Thinking of you!
Thinking of you!
Re: OT: what a long, strange trip it's been
Oh my. I'm glad you are on the road to recovery. Sending positive, healing thoughts your way!
Last edited by bailachel on Fri Feb 05, 2010 10:59 am, edited 1 time in total.
- riveredge1
- Posts: 61
- Joined: Fri Dec 25, 2009 7:19 pm
- Location: Libby Montana
Re: OT: what a long, strange trip it's been
Sending helper angles your way--spend time and talkto Mother earth and embrace the beauty of her and Mother nature--they will put a smile on your face if you let them--God has you in his hands---












