POLL: How Long on xPAP Therapy? Compliant?

[Muse-Inc]

Curious again.

[drj130]

I've just started mine last month, I'm a still pushing threw though.

David

[SaltLakeJan]

Hi again Muse-inc,

I started in January of this year, I was so fortunate, I found cpaptalk.com that very day. I give credit for my continuance to the Cpaptalk.com vets who encouraged me the first couple of months. It felt like I was encircled with friends who wanted me to succeed. How do you let people like that down. You can't.

I had to stop for about 10 days, twice. I was on a pillows mask, and developed raw places in my nares that would not heal. The Doc sd, I had to give it a rest. The nares have the sore places again, and I had to miss last night, and I missed it.
I really did. It seemed like I was a little girl goin' to bed without my teddy, or something like that.

Sometime I'd like to chat with you about all your medical problems. I read about them, and can't recall where I read about it. You had a terrible time.

Jan

[bdp522]

Jan, That's why everyone needs at least 1 fullface mask that they can get to work for them. Xpap has made such a difference for me that a night off will never be an option! When I have congestion I switch to UMFF, not as comfortable for me, but I still sleep well and get low AHI.

Ayr gel will help the nares. Some here use lanolin to help.

Brenda

[katcw]

by "compliant" do you mean 100% successful or 100% effort? I'm not 100% successful, but I'm working on it very hard, so I put <100% successful....

[carbonman]

1yr/1mth/8days
100% compliant
100% successful

[Gerald]

Compliant a little over 1000 nights.....missed only (1) night....because I screwed up and left my humidifier tank at home when I went on an overnight trip. I also screwed up because I didn't have the little adapter with me that would have allowed me to hook the hose directly to the blower (bypassing the humidifier). I was "dumb-squared".

Gerald

[JayC]

I wondered too about the intention of the "compliant" question.

And why just 100%? Perfection is a pretty tough standard to live by.....

I'm 96.12% compliant.... 15 total missed days due to power outage and conflicting medical issues, not resolve nor commitment.......

I struggle with other sleep issues, and at times still find I have dropped off into an unplanned nap with no mask....and boy do I feel that later. I am usually upright in a chair asleep, not reclining nor in a recliner. Often, I am online and my hands are on the keyboard!! Again, I did not plan nor chose to not comply with therapy.....

I now own a 12v DC Converter, and will soon have a battery....

I continue to work on the other sleep issues with my doc, hopefully addressing my other "unmasked events".

J

[nobody]

I agree with this! I usually use the Simplicity which is the most comfortable mask for me, but I have a Quattro full face mask for back up on those nights I just can't get my nose congestion to clear enough to use the Simplicity. Although not very comfortable (IMO) the Quattro is much better than sleeping without my CPAP.

Jan, That's why everyone needs at least 1 fullface mask that they can get to work for them. Xpap has made such a difference for me that a night off will never be an option! When I have congestion I switch to UMFF, not as comfortable for me, but I still sleep well and get low AHI.

Ayr gel will help the nares. Some here use lanolin to help.

Brenda

[wlbecker]

A better way to ask is how many people tried and quit all together. That answer is roughly 50%. I have variable success: sometimes the machine is with me and sometimes against me.

[cajun]

Not a very useful poll since those who gave up probably don't hang out at this site anymore.

Anyway, almost 3 months and still compliant.

[Ruby Vee]

I started April 13 and haven't missed a night. I even nap with my PAP -- something I would never have known to do had I not found this forum BEFORE starting therapy. You guys have helped me so much! I adapted very quickly to CPAP, and it was because of all the wonderful advice I read on this forum!

[elg5cats]

My second treatment encounter for OSA began December 22, 2008. In January I suspect I might have encountered the salmonella bug...horrific GI distress that intensified at night.......I missed one night of the 4 hour compliance rule by 6 minutes!!!!! My data documents my terrible GI experience...I know every time I was up to hug Tidy Bowl, the time I left for the emergency room, clinic visits for fluids, and all the attempted naps of that week.......So, in my mind, I am really 100% compliant, but according to data I'm 99%.

Five years ago, my compliance was pooh-poohed upon resulting in a sleep clinic self fulling prophecy of patient failure. I wrote about that on another compliance thread.

viewtopic.php?f=1&t=43227&p=383097#p383097

Hope you will participate in my Poll on Doctor's helpfullness with weight and smoking issues, thanks!!!!!

elg5cats
http://w999.photobucket.com/pbwidget.sw ... f8ecca.pbw

[nobody]

Yeah, I wouldn't consider being sick a non-compliance time. I had the norovirus last year and did miss half a night with the CPAP because I was throwing up too much.

My second treatment encounter for OSA began December 22, 2008. In January I suspect I might have encountered the salmonella bug...horrific GI distress that intensified at night.......I missed one night of the 4 hour compliance rule by 6 minutes!!!!! My data documents my terrible GI experience...I know every time I was up to hug Tidy Bowl, the time I left for the emergency room, clinic visits for fluids, and all the attempted naps of that week.......So, in my mind, I am really 100% compliant, but according to data I'm 99%.

Five years ago, my compliance was pooh-poohed upon resulting in a sleep clinic self fulling prophecy of patient failure. I wrote about that on another compliance thread.

viewtopic.php?f=1&t=43227&p=383097#p383097

Hope you will participate in my Poll on Doctor's helpfullness with weight and smoking issues, thanks!!!!!

elg5cats
http://w999.photobucket.com/pbwidget.sw ... f8ecca.pbw

[Really]

Not a very useful poll since those who gave up probably don't hang out at this site anymore

How true. I know I've had better luck when asking others about themselves to offer things about me first, then ask my questions. Really!