Have you been transformed?
Re: Have you been transformed?
Not transformed yet.... but better. I am still tired and ready to collapse into bed at night, but the fog has lifted! I have no trouble staying awake during the day, and a few weeks ago I went with hubby and my little girl to the movies and actually stayed awake thru the entire movie! I am still working on my leak rate, but my AHI is down considerably and I DO feel better I can only imagine how much better I will feel months from now
I dont suffer from insanity.... I enjoy every minute of it!
Resmed S8 Elite II CPAP, Hybrid Full Face Mask W/Nasal Pillows, H4i Humidifier,
Rescan 3.7 Software & Smart Card Reader, Pressure 12, started CPAP 1/8/2009
Resmed S8 Elite II CPAP, Hybrid Full Face Mask W/Nasal Pillows, H4i Humidifier,
Rescan 3.7 Software & Smart Card Reader, Pressure 12, started CPAP 1/8/2009
Re: Have you been transformed?
My diagnosis is "hypersomnia". Not entirely sure what that means.
But I do notice that I have a more "normal" sleep pattern now, after 2 years on the hose. I get very tired between 9 and 10 pm, and go to bed. I wake up pretty naturally sometime around 6 am. There are variations, but the over all average is this. Before, I would have a tough time falling asleep before midnight. And then an even tougher time waking up in the AM.
I do attribute this to therapy. I find myself really looking forward to sleep as a pleasurable activity now.
Cheers,
B.
But I do notice that I have a more "normal" sleep pattern now, after 2 years on the hose. I get very tired between 9 and 10 pm, and go to bed. I wake up pretty naturally sometime around 6 am. There are variations, but the over all average is this. Before, I would have a tough time falling asleep before midnight. And then an even tougher time waking up in the AM.
I do attribute this to therapy. I find myself really looking forward to sleep as a pleasurable activity now.
Cheers,
B.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap. |
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. 

- 2flamingos
- Posts: 439
- Joined: Mon Apr 27, 2009 7:26 pm
- Location: L.A. (Lower Alabama)
Re: Have you been transformed?
I would not say transformed..... but there have definitely been improvements. I am not as tired during the day, generally wake up in a good mood (shhhh, don't tell anybody), dark circles are virtually gone (don't look like i have been in a street fight), and I have been much more even tempered at work (starting to scare co-workers - they think the world is coming to an end), panic attacks/anxiety are almost nonexistant (am going to talk to GP about weaning myself off of Lexapro).
Seriously, i think I have become human again (or maybe for the first time).
Now that I think about it, I guess you could call that a transformation.
Seriously, i think I have become human again (or maybe for the first time).
Now that I think about it, I guess you could call that a transformation.
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure - 12-16 ClimateLine Hose. Zeo Mobile, Chin Strap |
Old enough to know better
Karma is a Wonderful Thing.
Karma is a Wonderful Thing.
Re: Have you been transformed?
eric,
shhhhhhh! don't tell no one
shhhhhhh! don't tell no one
Re: Have you been transformed?
I don't mean to make light of the continuing struggle some of you have. I have awful days. My AHI still hovers at 5. I wake up with the mask going fffffffffffffffffffppppppppppppttttttttttttttt too. Its a journey. I know that most of you will eventually find the right mask, stop the leak, etc.
But stick to it. Never give up.. never surrender.
But stick to it. Never give up.. never surrender.
Re: Have you been transformed?
tyvm for the post kteague i completely understand and I hope in time I'll have a good story to tell, sadly just got back from ER due to chest pains and trouble breathing yet again and found out that I have pneumonia probably caused from aspirating on the "rain out" i had for a couple of days. I am not going to let that stop my therapy though just gonna try harder on not inhaling all that condinsation lol. I forgot to mention the good news about this I've experienced was the not getting out of bed every night to pee or whatnot, although i still toss and turn as i mentioned getting up was way worse and since night one i've not had to get out of bed. so instead of 20-30 min of interruptions before I'm down to maybe a minute or two.
Re: Have you been transformed?
Transformed? YES!
- I'm feeling so rested now, & clear minded
able to address other issues, e.g. medical, etc.
I'm dreaming again
lowered my glucose to 91
lowered Chol -Total cholest 175
able to workout again, not my usual 4 weekday workouts, but 2-3.
better able to keep up with friends and family when walking or gatherings
not napping every weekend
energy to garden, not my usual 6 hrs only 3-4, but yeah!
Wynken and Blynken are two little eyes, and Nod is a little head. And the wooden shoe that sailed the skies is a wee one's trundle-bed; So shut your eyes.................
Re: Have you been transformed?
Tammie, lower your humidifier to the point of no condesation, and get a heated hose if you do need more humidity. With a heated hose you can get more humidity without condensation (aka rainout).TammieC wrote:tyvm for the post kteague i completely understand and I hope in time I'll have a good story to tell, sadly just got back from ER due to chest pains and trouble breathing yet again and found out that I have pneumonia probably caused from aspirating on the "rain out" i had for a couple of days. I am not going to let that stop my therapy though just gonna try harder on not inhaling all that condinsation lol. I forgot to mention the good news about this I've experienced was the not getting out of bed every night to pee or whatnot, although i still toss and turn as i mentioned getting up was way worse and since night one i've not had to get out of bed. so instead of 20-30 min of interruptions before I'm down to maybe a minute or two.
http://www.sleepzone.com.au for the hose (thought I read someone got it from the states as well).
O.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks. |
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
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Forum member Dog Slobber Nov. 2023