Little Larissa - please read

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
dsm
Posts: 6996
Joined: Mon Jun 20, 2005 6:53 am
Location: Near the coast.

Post by dsm » Thu May 29, 2008 11:22 pm

ozij wrote:Deleted my google assisted translation - I trust DSM's but didn't see it before I posted.

O.
Ozij,

I thought yours was pretty good

Two perspectives, same story

Mine was what I called 'an approximation'

DSM
Last edited by dsm on Fri May 30, 2008 12:14 am, edited 1 time in total.
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)

User avatar
ozij
Posts: 10444
Joined: Fri Mar 18, 2005 11:52 pm

Post by ozij » Fri May 30, 2008 12:05 am

Thanks Doug,
Mine was guess work - and I certainly didn't want it to look like I was second guessing yours which is based on idiomatic knowledge of the laguage.

Two perspectives, same story, having to do with what is most important to us human beings and whats brings us together from vastly separated continents.

One of my favorite poems was written by Robert Frost.
The Tuft of Flowers


I went to turn the grass once after one
Who mowed it in the dew before the sun.

The dew was gone that made his blade so keen
Before I came to view the leveled scene.

I looked for him behind an isle of trees;
I listened for his whetstone on the breeze.

But he had gone his way, the grass all mown,
And I must be, as he had been,—alone,

‘As all must be,’ I said within my heart,
‘Whether they work together or apart.’

But as I said it, swift there passed me by
On noiseless wing a ’wildered butterfly,

Seeking with memories grown dim o’er night
Some resting flower of yesterday’s delight.

And once I marked his flight go round and round,
As where some flower lay withering on the ground.

And then he flew as far as eye could see,
And then on tremulous wing came back to me.

I thought of questions that have no reply,
And would have turned to toss the grass to dry;

But he turned first, and led my eye to look
At a tall tuft of flowers beside a brook,

A leaping tongue of bloom the scythe had spared
Beside a reedy brook the scythe had bared.

I left my place to know them by their name,
Finding them butterfly weed when I came.

The mower in the dew had loved them thus,
By leaving them to flourish, not for us,

Nor yet to draw one thought of ours to him.
But from sheer morning gladness at the brim.

The butterfly and I had lit upon,
Nevertheless, a message from the dawn,

That made me hear the wakening birds around,
And hear his long scythe whispering to the ground,

And feel a spirit kindred to my own;
So that henceforth I worked no more alone;

But glad with him, I worked as with his aid,
And weary, sought at noon with him the shade;

And dreaming, as it were, held brotherly speech
With one whose thought I had not hoped to reach.

‘Men work together,’ I told him from the heart,
‘Whether they work together or apart.’

O.

_________________

CPAPopedia Keywords Contained In This Post (Click For Definition): breeze, swift


_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery

Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023

Guest

Post by Guest » Fri May 30, 2008 4:07 am

This is so beautiful Ozij, thank you for posting it. I am glad there is one who joins me in my love for poetry. And this particular one, so perfectly describes the caring and support found here.

User avatar
dsm
Posts: 6996
Joined: Mon Jun 20, 2005 6:53 am
Location: Near the coast.

Post by dsm » Fri May 30, 2008 5:40 am

Ozij

Lovely !

DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)

User avatar
jsmythe
Posts: 664
Joined: Wed Oct 17, 2007 3:13 am
Location: New Market Tennessee

Post by jsmythe » Fri May 30, 2008 5:54 am

Anonymous wrote:This is so beautiful Ozij, thank you for posting it. I am glad there is one who joins me in my love for poetry. And this particular one, so perfectly describes the caring and support found here.
Guest was me...

_________________
Mask: Mirage Activa™ LT Nasal CPAP Mask with Headgear
Additional Comments: HC100 HH, , Activa Orig. (w/Activa LT cushion), Activa LT, Pur Sleep, Pad A Cheeks,
Joyce

Started using cpap Sept. 12, 2007
Respironics PR System One Bi-Pap Auto w/Flex,pressure of 9/15, do not use ramp

User avatar
StillAnotherGuest
Posts: 1005
Joined: Sun Sep 24, 2006 6:43 pm

MiniWingin'

Post by StillAnotherGuest » Sat May 31, 2008 4:21 am

brazilian wrote:...and she keeps an eye on the device all the time...
Atenção, Laryssa!

Pare de mudar os ajustes!

Image

SAG
Image

Aromatherapy may help CPAP compliance. Lavender, Mandarin, Chamomile, and Sweet Marjoram aid in relaxation and sleep. Nature's Gift has these and a blend of all four called SleepEase.

User avatar
socknitster
Posts: 1740
Joined: Fri Jun 01, 2007 11:55 am
Location: Pennsylvania
Contact:

Post by socknitster » Sat May 31, 2008 6:06 am

I am so pleased to read these posts about Larissa's improvements. The fact that she is sleeping longer hours is such a good sign and will be so good for her entire body--she will heal so much faster--as is evident by her nose healing and kicking that cold so fast. I think she must be so much more comfortable! And even at three, she is well aware of the difference and doesn't want that bipap going anywhere! Terrific!

jen


User avatar
dsm
Posts: 6996
Joined: Mon Jun 20, 2005 6:53 am
Location: Near the coast.

Re: MiniWingin'

Post by dsm » Sat May 31, 2008 5:48 pm

StillAnotherGuest wrote:
brazilian wrote:...and she keeps an eye on the device all the time...
Atenção, Laryssa!

Pare de mudar os ajustes!

Image

SAG
SAG,

Good one - cute ,

But how do you tell a kid that young to "stop wingin' the dial's"

DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)

User avatar
Jere
Posts: 390
Joined: Wed Sep 28, 2005 9:16 pm
Location: Maryland

Post by Jere » Sat May 31, 2008 9:24 pm

I have nothing to add to this incredible example of how a group of strangers linked only by a common condition can cross international and cultural boundaries to help a single fellow human.

As I read these posts I realize how lucky I am to be blessed with 2 beautiful and healthy children. I have made a gesture of thanks by sending a donation to Banned for Larissa through PayPal. Unless I missed a post, I don't believe that he has stopped accepting donations.

'night
"First rule of holes: when you are in one, stop digging"

User avatar
Banned
Posts: 602
Joined: Sun Feb 17, 2008 10:04 pm

Post by Banned » Sun Jun 01, 2008 7:50 pm

Jere wrote: I don't believe that he has stopped accepting donations.
Hi Brazilian,

Thanks to Jere and others we have some funds that can be put toward the Respironics EncoreViewer v1.0 SW, and the v1.0 SW specific Encore USB SmartCard Reader. That way you and Dr. Pedro can download Laryssa's Encore Pro Smart Card data from her machine for Dr. Pedro's analysis. You can also post her charts on the forum in order to exercise SAG, dsm, SWS, RG, and other chart readers. The Encore Pro Smart Card is probably still in Laryssa's machine and should already be collecting data. You only need the tools to download the the data. Let me know if your trip to Vegas is still on for June 16th, 2008, and the shipping details to your hotel. Anybody got a source for some spare white ultra-filters?

Banned

AVAPS: PC AVAPS, EPAP 15, IPAP Min 19, IPAP Max 25, Vt 520ml, BPM 10, Ti 1.8sec, RT 2 (Garage)
BiPAP Auto SV: EPAP 9, IPAP Min 14, IPAP Max 25, BPM 10, Ti 2sec, RT 2 (Travel Machine)
VPAP Adapt SV: EEP 10.4, Min PS 4.4 (Every Day)
Mask: Quattro

User avatar
brazilian
Posts: 53
Joined: Mon Sep 03, 2007 10:19 pm
Location: Brazil
Contact:

Post by brazilian » Sun Jun 01, 2008 8:06 pm

Hi, Banned!

That's great news! In fact, the card is inside the machine, since I had the intention to take it some time to someplace where I could download the data! Now I will be able to go with my laptop and do it myself... Once again, Sir Banned and the multitude of friends have come in rescue of our little angel!

My trip is confirmed, I shall arrive on the 17th and leave on the 21st of June.

Hotel info is:
Flamingo Las Vegas
3555 Las Vegas Boulevard South
Las Vegas, NV 89109
Phone: (702) 733-3111
Fax: (702) 307-0762
Travel Planners Confirmation #: 1552-1366-0104-001
Occupant Name: Nelson Baumgratz


_________________
Mask
N. Baumgratz
Belo Horizonte - MG
Brasil

-SWS
Posts: 5301
Joined: Tue Jan 11, 2005 7:06 pm

A Shinier World

Post by -SWS » Sun Jun 01, 2008 9:08 pm

I know it has been said many times in this thread. I have to say it again. Sir Brazilian and Sir Banned are amazing!

Some day Laryssa will know that Sir Banned and Sir Brazilian were her shining knights from two distant parts of the world. She will understand in her heart that these two gallant men joined arms to rescue her when she needed them most.

Thank you, Sir Banned and Sir Brazilian! You are not only rescuing one young princess in distress... But you are also rescuing hearts---in numbers that you will never know--- with your noble deeds!

Thank you for helping to make the world shine a little brighter!!! The world reflects on how well or poorly we all shine. And we need more kind knights who shine brightly like Laryssa's two!

User avatar
bdp522
Posts: 3378
Joined: Tue Jun 27, 2006 5:13 pm

Post by bdp522 » Sun Jun 01, 2008 9:42 pm

I have 2 pkgs of 6 disposable filters for Laryssas machine. I will gladly mail them to Brazilians Hotel. They will be there waiting for you Nelson.

Brenda

_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Love my papillow, Aussie heated hose and PAD-A-CHEEKS! Also use Optilife, UMFF(with PADACHEEK gasket), and Headrest masks Pressure; 10.5

Guest

Post by Guest » Mon Jun 09, 2008 8:40 pm

Olá amigos já estava com saudades.
Hoje estive com Larissa,esta muito bem suas noites tem sido bem tranquilas.
Ela tem aprontado algumas artes,bateu na fisioterapeuta,brigou com a enfermeira.
Conversei com ela expliquei que faltava pouco tempo para ela ir para a enfermaria.
Dia 29 de junho é aniversário dela vai fazer 3 anos,estamos pretendendo fazer uma festinha,ela está muito ansiosa com a festa,acho que ela nem sabe o que e uma festa de aniversário.Hoje durante a visita tirei umas fotos vou pedir ao meu amigo Brazilian para postar.
Um beijo azul,fiquem com Deus.
Me desculpem pela demora.

User avatar
dsm
Posts: 6996
Joined: Mon Jun 20, 2005 6:53 am
Location: Near the coast.

Post by dsm » Mon Jun 09, 2008 9:27 pm

Folks,

I'll need some help with translating this but in general I am reading it as saying


Laryssa is having good nights but is getting very homesick. Has got cross with her physiotherapist therapist and argued with nurses.

Dra Cacau needed to explain to Laryssa that it was too soon to leave the hospital. June 29th is her anniversary there (?) for three years.

Dra Cacau will have an anniversary party for her but she doesn't really understand what it means and is a bit anxious about it.

Dra Cacau took some photos today & will pass them on to Brazilian to post here.

A blue kiss from Dra Cacau and she apologizes for not having them available sooner.


DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)