A Miracle has Occurred in my Life

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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tillymarigold
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Post by tillymarigold » Thu Jun 14, 2007 4:49 pm

C-Flex or A-Flex? Something to consider ...


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Catnapper
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miracle

Post by Catnapper » Thu Jun 14, 2007 4:55 pm

I love success stories!

Way to go, Babette! All you needed was a little help from your friends, your cpaptalk friends, that is.

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Babette
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Post by Babette » Thu Jun 14, 2007 5:09 pm

tillymarigold wrote:C-Flex or A-Flex? Something to consider ...
Oh Tilly, I don't know! What do you suggest? GASP is loving her Aflex. I suppose I should opt for the top of the line, huh?

Cheers,
B.

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Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

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geoDoug
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Post by geoDoug » Thu Jun 14, 2007 5:17 pm

Babette wrote:THE 2007 CONGRESSIONAL CPAP HEARINGS - SPONSORED BY RESPIRONICS AND RESMED!

Senator: You're saying that you believe that all patients have the right to their own data?

Patient: Yes Sir!

Senator: TERRORISTS! Clap them in irons! Black list them! Send them to Guantanamo Bay!
I can see it now:
"Have you ever spent the night at a sleep clinic? And if so do you keep a copy of the Technical Summary next to your keyboard?"
"Do the results actually mean anything to you?"
"Do you now use or have you ever used any brand of cardreader for an xPAP machine?"
"Do you have a user ID at cpaptalk.com or any other online support forum?"

Senator, have you no shame?

Doug.


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Babette
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Post by Babette » Thu Jun 14, 2007 5:22 pm

And thus, we have just JUSTIFIED "guest" status all over again... See? The gubmint is out to git us, Maw!

Good one, My Gooey Greener Friend!
B.

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

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Bookbear
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Post by Bookbear » Thu Jun 14, 2007 6:30 pm

Oooh, double plus good, Babette!

And I am reminded again how very lucky I was to be able to purchase my apap out of pocket and avoid the stress so very many here have to put up with and the seemingly endless hoops they have to jump through to get the treatment their lives depend on. I was very lucky.

Congrats!


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telly
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Post by telly » Thu Jun 14, 2007 8:05 pm

Good job girl! Go for the machine you want. I went for a M Series Auto-Bi Level, I call it my "Cadillac", not 'cause it's big–'cause it has the most amount of features. I like the two separate pressures for IPAP and EPAP (inhale and exhale).

Yeah. I had a pretty stressful situation too. And I didn't even have a DME. It was my doctor that wasn't being as cooperative as she should've been. Ah well...going on 6 months and still fully compliant.

Next week I'm going to drum corps camp (don't call it "band camp" or I'll mow ya down with a FFFF pedal tone) and I'm gonna have my "Cadillac" by my side. Funny, they call the Contrabass players "Cadillacs" too.

Congrats and may you have many peaceful nights.

Image
The Contrabass Bugle

OH, and the guy that PM'd me about drum corps...I accidentally lost your message. Hit me again if ya like.

Last edited by telly on Thu Jun 14, 2007 8:17 pm, edited 3 times in total.
------------------------------------------
Who Loves Ya Baby?
telly

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geoDoug
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Post by geoDoug » Thu Jun 14, 2007 8:11 pm

Babette wrote:Good one, My Gooey Greener Friend!
B.
Hey, you started it.

Doug.

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socknitster
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Post by socknitster » Thu Jun 14, 2007 8:18 pm

Hey Babette,

So glad you had success in your endeavor! I hope you get those mean old DME guys in a whole heap o' trouble!

Congrats on getting the auto!

Tonight will be the 3rd night on mine and it has made a WORLD of difference in my ability to comply in just that short time!

Jen


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THier
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Post by THier » Fri Jun 15, 2007 3:09 am

Hey Babs (hope you don't mind but I always loved the name "Babs)

Many congrats on getting your machine,, this sounds so much like my story. I have had incredible success since getting my Bi-PAP. I just don't understand why the DME are such butt heads about equipment. My doc scripted a Bi-PAP, wants reports,, but the DME gives me a "Plus" machine. I ended up buying my Bi-PAP Auto "tank" out of pocket,, but not regretting it at all. Two days and humidifier still has H2O in it.

Tom

PS as far as I am concerned,, the detailed reports are for my eyes only,, doc and DME will have to handle it on their side.

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BrianRT
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Post by BrianRT » Fri Jun 15, 2007 8:25 am

telly wrote:

Next week I'm going to drum corps camp (don't call it "band camp")

But....."This one time...at drum corp camp, just doesn't have the same ring to it" LOL

It's possible I may be the only other one on this forum who knows what a fffff pedal tone is.

So you play the contrabass? Awesome. I suppose that's the correct name for it, eh? I played one in HS marching band for 3 years. I just always called it a tuba-over the shoulder model
To know even one life has breathed easier because you lived. This is to have succeeded. -- Ralph Waldo Emerson

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Babette
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Post by Babette » Fri Jun 15, 2007 11:59 am

Sorry, I just can't get it up for a Tuba Player.

Now an ACCORDION, that's another story...

LOL,
B.

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

Guest

Post by Guest » Fri Jun 15, 2007 12:25 pm

Boy! what a great story. It is really a shame that we have to go through this sort of thing. It makes you want to pour a little black stuff down the pipe, add a patch and ball, prime the pan and pullllll.

I want to disagree with tangents about the Docs being part of the problem I think the ones that limit knowledge are simply uneducated as to what an asset an informed patient will be.

Dudley

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Babette
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Post by Babette » Fri Jun 15, 2007 12:49 pm

Sirrah! Be ye a musket slinger yerownself? Huzzah!

Perhaps we should take likenesses of ourselves armed to the teeth and post those off to the medical community members who are less than HONORABLE or INTELLIGENT in their congress with us?

Bloody Pirates, the lot of them...

No no, I don't mean all of them. I'm just having a joke. I am currently quite enamored of my sleep doctor, her staff, and the sleep clinic. I only have a bone to pick with one DME right now.

(Flashes a saucy cursty and runs back to her sewing)
Mdme Babette La Mauvaise, late of New France


_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

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dinkytink
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Post by dinkytink » Sat Jun 16, 2007 12:56 am

Well, for a bad day, that one turned out quite nicely. Glad you were armed to the teeth but didn't need it. Like they say, knowledge is power. Good for you!!!


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