extremely tired all the time. need advice.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Wulfman...
Posts: 6688
Joined: Mon Sep 01, 2014 6:41 pm
Location: Nearest fishing spot

Re: extremely tired all the time. need advice.

Post by Wulfman... » Fri Jul 08, 2016 4:12 pm

dorlow wrote:well, when using the cpap, we did get romantic on occasion. but extremely more rare than when I didn't use it. Low T can partially be caused by not having that constant romantic affection. so my cpap and the barrier it caused possibly contributed to my low T. When wearing it, I look like a crazy space elephant. how does that put anyone in the mood?
You've got everything ass-backwards, Dude. You need some education.......

https://www.google.com/search?q=low+tes ... one+levels


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

User avatar
Grace~~~
Posts: 662
Joined: Tue May 10, 2016 3:27 pm
Location: Florida

Re: extremely tired all the time. need advice.

Post by Grace~~~ » Fri Jul 08, 2016 4:17 pm

mummmz wrote:
OH, so no wonder you are "extremely tired all the time". So AFTER you could put the mask on.

+1
Began XPAP May 2016. Autoset Pressure min. 8 / max 15. Ramp off. ERP set at 2. No humidity. Sleepyhead software installed and being looked at daily, though only beginning to understand the data.

User avatar
mummmz
Posts: 247
Joined: Sat Jun 18, 2016 5:06 pm
Location: USA

Re: extremely tired all the time. need advice.

Post by mummmz » Fri Jul 08, 2016 4:18 pm

No Grace, you can't be their +1.

HAHAHA

_________________
Machine: AirSense 11 Autoset
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment

dorlow
Posts: 32
Joined: Mon Jun 10, 2013 7:27 am

Re: extremely tired all the time. need advice.

Post by dorlow » Fri Jul 08, 2016 4:21 pm

I thank all of you for your advice. when I see my doc in a month in a half though, I'll talk to hime about any alternative to cpap. as everyone can tell (and I'm not the only one in the world to hate the cpap idea), I'm hard headed and it's not the right option for me. I'm glad it's working for all of you.

User avatar
chunkyfrog
Posts: 34545
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: extremely tired all the time. need advice.

Post by chunkyfrog » Fri Jul 08, 2016 4:24 pm

Cpap can so be romantic, in a kinky, medical bondage way.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
mummmz
Posts: 247
Joined: Sat Jun 18, 2016 5:06 pm
Location: USA

Re: extremely tired all the time. need advice.

Post by mummmz » Fri Jul 08, 2016 4:33 pm

by chunkyfrog on Fri Jul 08, 2016 5:24 pm
Cpap can so be romantic, in a kinky, medical bondage way
HAHA!

Good luck Dorlow. Dig out the cpap machine and bring the SD Card or the whole machine with you to your appointment so he can see how you did when you used it. We might still see you back after your appointment when he says you NEED to use it.

_________________
Machine: AirSense 11 Autoset
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: extremely tired all the time. need advice.

Post by palerider » Fri Jul 08, 2016 5:01 pm

mummmz wrote:Hey, she knows how to undo velcro, doesn't she? If she's in the mood a mask shouldn't stop her. Leave it on and it may make for some unusual sleepyhead reports.
it's been done, search the archives

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

User avatar
Grace~~~
Posts: 662
Joined: Tue May 10, 2016 3:27 pm
Location: Florida

Re: extremely tired all the time. need advice.

Post by Grace~~~ » Fri Jul 08, 2016 5:28 pm

mummmz wrote:No Grace, you can't be their +1.

HAHAHA

Began XPAP May 2016. Autoset Pressure min. 8 / max 15. Ramp off. ERP set at 2. No humidity. Sleepyhead software installed and being looked at daily, though only beginning to understand the data.

User avatar
Omne
Posts: 217
Joined: Wed Jun 01, 2016 11:11 am

Re: extremely tired all the time. need advice.

Post by Omne » Fri Jul 08, 2016 5:56 pm

dorlow wrote:problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.
So pick up a CPAP nightstand, nothing shows at all unless you're using it. I find it very convenient.

User avatar
Omne
Posts: 217
Joined: Wed Jun 01, 2016 11:11 am

Re: extremely tired all the time. need advice.

Post by Omne » Fri Jul 08, 2016 5:58 pm

Wulfman... wrote:
dorlow wrote:problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.
You're probably one of those men who think that women's feet are shorter so they can stand closer to the kitchen counters.
You mean they're not?

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: extremely tired all the time. need advice.

Post by palerider » Fri Jul 08, 2016 6:05 pm

Omne wrote:
dorlow wrote:problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.
So pick up a CPAP nightstand, nothing shows at all unless you're using it. I find it very convenient.
dorlow is just desperate for any feeble excuse not to use the machine, he'd rather have his jaw sawed in two and his facial structure changed so that he can get away with not having to use the cpap for a while...

pain and suffering is better than a mask!

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

User avatar
Wulfman...
Posts: 6688
Joined: Mon Sep 01, 2014 6:41 pm
Location: Nearest fishing spot

Re: extremely tired all the time. need advice.

Post by Wulfman... » Fri Jul 08, 2016 6:13 pm

palerider wrote:
Omne wrote:
dorlow wrote:problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.
So pick up a CPAP nightstand, nothing shows at all unless you're using it. I find it very convenient.
dorlow is just desperate for any feeble excuse not to use the machine, he'd rather have his jaw sawed in two and his facial structure changed so that he can get away with not having to use the cpap for a while...

pain and suffering is better than a mask!
Unfortunately, with most surgeries related to trying to fix various structures and "cure" sleep apnea, in the end, the "fix" is temporary and the person is again prescribed XPAP therapy. It's either now or later.

Personally, I was so glad to hear how simple this therapy was and couldn't wait to get started.
Some people just can't get out of the "River of DeNile".......and drown in their own self pity and ignorance.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: extremely tired all the time. need advice.

Post by palerider » Fri Jul 08, 2016 6:38 pm

[quote="Wulfman..."]Personally, I was so glad to hear how simple this therapy was and couldn't wait to get started.
Some people just can't get out of the "River of DeNile".......and drown in their own self pity and ignorance.\/quote]
ain't that the truth.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

User avatar
mummmz
Posts: 247
Joined: Sat Jun 18, 2016 5:06 pm
Location: USA

Re: extremely tired all the time. need advice.

Post by mummmz » Fri Jul 08, 2016 7:04 pm

Post by Omne on Fri Jul 08, 2016 6:56 pm

dorlow wrote:
problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.



So pick up a CPAP nightstand, nothing shows at all unless you're using it. I find it very convenient.
WHAT??? I thought I was going to invent one and mass market it. Darn!

_________________
Machine: AirSense 11 Autoset
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment

SleepyStar
Posts: 88
Joined: Mon Jan 06, 2014 9:24 pm
Location: Pure Michigan

Re: extremely tired all the time. need advice.

Post by SleepyStar » Mon Jul 11, 2016 12:48 am

mummmz wrote:
Post by Omne on Fri Jul 08, 2016 6:56 pm

dorlow wrote:
problem I have still is all of this clinical stuff in the bedroom really doesn't make a bedroom too romantic.



So pick up a CPAP nightstand, nothing shows at all unless you're using it. I find it very convenient.
WHAT??? I thought I was going to invent one and mass market it. Darn!
Invent a more feminine one?

Dorlow, you know what is hotter than snorting and choking sounds all night, and the anxiety filled counting of seconds between a partner's breath to next breath? Wondering if they are going to take that next breath?

A partner not running scared and getting the machine and taking charge of their care. Seriously. And there are so so so many mask and setting options nowadays...and if you run a fan like a summer fan...that is louder than the cpap/apap for the s9 series. (cant speak to other modern machines...but the websites say they are quieter yet with each generation!)

S9 is something like 25dB. A whisper in a library is 40dB if I am remembering correctly. In any case, significantly quieter. My parents don't even realize I am using it until they look at me.

And once you get your mask setup and cpap setup how you like it, take advantage of the quick release straps if your mask has them. And make it part of your getting home routine to set the sucker up so you can be ready for couple time later, then as soon as it is done it is slap on the mask and you can fall right to sleep. Without giving your wife the fear of you stroking out in the middle of the night.

And there is more than one couple on the site here where both are hoseheads. and they make it work with dueling machines :p

So, I have anxiety and sleep issues besides the apnea (which ones are still tbd but I have a new study in 10 days) and something that really helped me is something I learned from the CBT from the anxiety. Because my god, a Thing attached to my FACE where my BREATHING happens had me freaked out at first. Generalized anxiety disorder totally turns all sorts of things into freakouts though. So part of the process of dealing with it is much like how in Harry Potter you deal with the Boggarts. Turn something you fear into something you can laugh at. Put Snape in Granny's outfit. Or figure out your calm happy place, and figure out how to get your sleep zone as much as you can to line up with it. This is something I could do. My happy place is the beach. Sleeping Bear Dunes up north, to be real specific. So...you know what these masks make me think of? Snorkel/Scuba masks! So I put beach sounds on my phone to fall asleep to, and focus on the waves crashing to help be a timing for my breathing. Close my eyes and think of the beach. Way better than space elephants, right? though if space elephants are your happy place, you do you.

Also just try wearing it while you are awake and watching Netflix or whatever your tv shows of choice are to try to build positive, or at least neutral associations with it. I did that a lot at first until my therapist and I figured out the visualization that worked for me. Eventually fell asleep with the tv on...but with my mask on too. Finding the mask that was right for my face helped a ton too. So much.

The nice thing about CPAP therapy is that if it gets super overwhelming you can take a break and try again in a few when your body is calmed back down. Surgery...once it is done you can't undo it.

I hope these thoughts help you. I want to see you succeed.

_________________
Mask: Swift™ FX Bella Nasal Pillow CPAP Mask with Headgears
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: I have a custom TMJ biteguard. Autoset 8-11 cmH20, EPR = 3, No ramp. Sleepyhead is awesome.