They still don't have an answer

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Kam23
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Re: They still don't have an answer

Post by Kam23 » Tue Aug 11, 2015 6:28 am

Tough love here.
They do have the answer and had it 2 MONTHS ago......but they lost it. Wake up and realize you will never get your report. Get a new sleep study and quit your whining. You are wasting your time chasing after something that will never be caught. So put your big boy pants on and do something about getting a new sleep study at a different lab.

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BleepingBeauty
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Re: They still don't have an answer

Post by BleepingBeauty » Tue Aug 11, 2015 6:38 am

Enchanter wrote: At this point, just hoping to inspire people and show them that perseverance is still necessary...
You want to inspire people to persevere?

Please get off the stage and stop hogging the spotlight already; you're a really bad repetitive joke. You've had a donated machine and masks for months now; but instead of persevering with therapy, you only excuse yourself from using them. That's not the kind of perseverance we advocate around here.

The pity-poor-me routine was played out long ago.



Image
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

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palerider
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Re: They still don't have an answer

Post by palerider » Tue Aug 11, 2015 10:23 am

BleepingBeauty wrote:
Enchanter wrote: At this point, just hoping to inspire people and show them that perseverance is still necessary...
You want to inspire people to persevere?

Please get off the stage and stop hogging the spotlight already; you're a really bad repetitive joke.
but he LOVES the attention!!!!

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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BleepingBeauty
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Re: They still don't have an answer

Post by BleepingBeauty » Tue Aug 11, 2015 10:39 am

palerider wrote: but he LOVES the attention!!!!
No shit?

In that case, this would be my advice to him:
Image

(But it will be ignored, like all the other advice he's been given here already... *shrug*)
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

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chunkyfrog
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Re: They still don't have an answer

Post by chunkyfrog » Tue Aug 11, 2015 10:44 am

.

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49er
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Re: They still don't have an answer

Post by 49er » Tue Aug 11, 2015 11:17 am

Not to sound like a broken record, but I wanted to remind folks of Kaiasgram's previous advice to not respond to E.

Thanks.

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Re: They still don't have an answer

Post by yaconsult » Tue Aug 11, 2015 1:42 pm

Enchanter wrote:This just shows why you cannot rely on CPAP therapy for sleep apnea and need Plan B and C. You just may never get your therapy, no matter your intentions.
This is bull. There is no plan b or c - cpap therapy is the answer for sleep apnea.

An adult takes charge of their life and does what's necessary to get things done.

When getting a new machine though the system wasn't working fast enough, I went on craigslist and bought my own damn machine to hold me over.

When one mask didn't work, I bought or borrowed others until I found one that did work. There are lots of masks on craigslist.

I didn't ask endless questions or play "what if" games or cry "woe is me!". I just got what the hell I needed and used it - every... single... night...

If you are a person who allows themselves to be jerked around, then guess what? You will be jerked around!

Do you wonder why it always happens to you? Because you let it.

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Re: They still don't have an answer

Post by palerider » Tue Aug 11, 2015 3:33 pm

yaconsult wrote:
Enchanter wrote:This just shows why you cannot rely on CPAP therapy for sleep apnea and need Plan B and C. You just may never get your therapy, no matter your intentions.
This is bull. ... let it.
why are you wasting everybody's time by replying to someone, against professional advice, that won't listen to you?

viewtopic.php?f=1&t=105383&p=997211#p997211
"In fact I'm convinced that people's staying engaged with him on this forum -- no matter how well intended -- is keeping him distracted and disinclined to seek the help he really needs and which no one here is in a position to provide. I have compassion for his suffering and I feel strongly that the most helpful thing all of us can do at this point is to draw the line, stop responding to all his posts, put an end to these dysfunctional circular dialogues, and hope that he will then turn his attention to getting the appropriate professional (medical and mental health) care. "

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Julie
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Re: They still don't have an answer

Post by Julie » Tue Aug 11, 2015 3:59 pm

With all (and it's a lot) due respect... I think we get that advice was given some time ago by a member who works in mental health (tho' in what capacity is not completely clear), and it's always good to consider following it. However, this is a public forum, not run or funded by any given member, and if some choose to respond to a poster's notes against one other member's advice, I think they should not continue to be chided for doing it. We all have opinions, some based on what we might have learned through work ourselves (I'm sure at least a few here have had some sort of training in similar issues), and shouldn't be made to feel uncomfortable about expressing them, however ill advised they might be. This is not meant to condone the kind of nastiness that has come and gone on the issue, just a personal thought about open forums.

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palerider
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Re: They still don't have an answer

Post by palerider » Tue Aug 11, 2015 5:38 pm

Julie wrote:With all (and it's a lot) due respect... I think we get that advice was given some time ago by a member who works in mental health (tho' in what capacity is not completely clear), and it's always good to consider following it. However, this is a public forum, not run or funded by any given member, and if some choose to respond to a poster's notes against one other member's advice, I think they should not continue to be chided for doing it. We all have opinions, some based on what we might have learned through work ourselves (I'm sure at least a few here have had some sort of training in similar issues), and shouldn't be made to feel uncomfortable about expressing them, however ill advised they might be. This is not meant to condone the kind of nastiness that has come and gone on the issue, just a personal thought about open forums.
I respectfully disagree.

feeding into e's bullshit has been tremendously disruptive for the forum, and has benefited exactly ZERO people, e included.

I do have to hand it to apneaboard, when he tried pulling the same shit over there, and kaiasgram posted her opinion, the people there *LISTENED*. and quit feeding him.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Worldwar2
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Re: They still don't have an answer

Post by Worldwar2 » Tue Aug 11, 2015 8:45 pm

Julie wrote:With all (and it's a lot) due respect... I think we get that advice was given some time ago by a member who works in mental health (tho' in what capacity is not completely clear), and it's always good to consider following it. However, this is a public forum, not run or funded by any given member, and if some choose to respond to a poster's notes against one other member's advice, I think they should not continue to be chided for doing it. We all have opinions, some based on what we might have learned through work ourselves (I'm sure at least a few here have had some sort of training in similar issues), and shouldn't be made to feel uncomfortable about expressing them, however ill advised they might be. This is not meant to condone the kind of nastiness that has come and gone on the issue, just a personal thought about open forums.

I hope it is ok to agree. I only have made a few post. Open forum to me means you can say what you think is true.

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palerider
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Re: They still don't have an answer

Post by palerider » Tue Aug 11, 2015 9:32 pm

Worldwar2 wrote:I hope it is ok to agree. I only have made a few post. Open forum to me means you can say what you think is true.
of course it's fine to agree, however you might want to go back and read the last few months worth of turmoil that this subject has caused, and the thousands of posts, many acrimonious, which have lead to exactly zero improvement for the OP, before you pick how you feel about the whole thing

(wondering who's going to abuse their spam button for this one.... )

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Worldwar2
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Re: They still don't have an answer

Post by Worldwar2 » Tue Aug 11, 2015 10:44 pm

palerider wrote:
Worldwar2 wrote:I hope it is ok to agree. I only have made a few post. Open forum to me means you can say what you think is true.
of course it's fine to agree, however you might want to go back and read the last few months worth of turmoil that this subject has caused, and the thousands of posts, many acrimonious, which have lead to exactly zero improvement for the OP, before you pick how you feel about the whole thing

(wondering who's going to abuse their spam button for this one.... )
well, Idid read some. couldn't believe what I read. cuss words like children. Young man started lots of posts. People should leave him alone. making him feel bad wont help.

Seems many folks have sleep apnea. though I was alone,

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palerider
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Re: They still don't have an answer

Post by palerider » Tue Aug 11, 2015 11:08 pm

Worldwar2 wrote:
palerider wrote:
Worldwar2 wrote:I hope it is ok to agree. I only have made a few post. Open forum to me means you can say what you think is true.
of course it's fine to agree, however you might want to go back and read the last few months worth of turmoil that this subject has caused, and the thousands of posts, many acrimonious, which have lead to exactly zero improvement for the OP, before you pick how you feel about the whole thing

(wondering who's going to abuse their spam button for this one.... )
well, Idid read some. couldn't believe what I read. cuss words like children. Young man started lots of posts. People should leave him alone. making him feel bad wont help.

Seems many folks have sleep apnea. though I was alone,
did you read this one: http://www.apneaboard.com/forums/Thread ... #pid121900

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Worldwar2
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Re: They still don't have an answer

Post by Worldwar2 » Wed Aug 12, 2015 11:06 am

Yes I read your post. I might even agree. but why do folks say same thing over, over, over? Say once go away. If man comes back he will then be talking to himself. every body then wins. no reason to say hurt and nasty words to any person. In outside world to.

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