New Trilogy User Needs Help!!! Anyone??

Madalot · Post by **Madalot** » Tue Apr 29, 2014 8:21 am

We have a new member with some serious medical issues using a Trilogy. I am WAY out of my element when it comes to trying to help other than specifics on where to find things on the Trilogy.

Can any of you offer up some assistance to this member?

viewtopic/t97397/saturation-C02-levels- ... o-use.html

She just told me via PM that she is using the same mode as I am -- S/T with AVAPS enabled. Beyond that, I am not sure exactly what her settings are. But I am scared to do too much because her medical issues are serious.

Below is a new thread from Indi's Gmomma with test result information:

viewtopic/t97713/Diagnosis-settings-results-oh-my.html

Pugsy · Post by **Pugsy** » Tue Apr 29, 2014 8:29 am

I have seen the posts. The problem is way beyond my comfort level to offer any ideas.
I am not even sure what the problem is ...much less fix it. It's not typical OSA or even CSA, from what I gather, and more of a respiratory issue with the imbalance between carbon dioxide and oxygen that may be caused by something other than sleep apnea...or at least sleep apnea hasn't been confirmed and the Trilogy trial was a stab at trying something.

Madalot · Post by **Madalot** » Tue Apr 29, 2014 8:33 am

Pugsy wrote:I have seen the posts. The problem is way beyond my comfort level to offer any ideas.
I am not even sure what the problem is ...much less fix it. It's not typical OSA or even CSA, from what I gather, and more of a respiratory issue with the imbalance between carbon dioxide and oxygen that may be caused by something other than sleep apnea...or at least sleep apnea hasn't been confirmed and the Trilogy trial was a stab at trying something.

Thanks, Pugsy. That's kind of how I feel as well. I am happy to offer up help on the Trilogy, but when it comes to changing the settings because of the issues she's describing, it's way beyond my experience and comfort level as well.

Indi's Gmomma · Post by **Indi's Gmomma** » Tue Apr 29, 2014 9:15 am

This helps a great deal, just knowing its not normal is very helpfull and confirms our thoughts something is wrong here, just wanted to rule out the easy stuff, but being so new to all this we just weren't sure thanks

Madalot · Post by **Madalot** » Tue Apr 29, 2014 4:37 pm

Bump - so it doesn't go off the page.

Robysue has been wonderful and offered some great insight and suggestions. Maybe if we all pull together and can get ideas, Indi's Gmomma can get her medical team to make this better for her!!

chunkyfrog · Post by **chunkyfrog** » Tue Apr 29, 2014 5:04 pm

I wonder if the Trilogy people might have some tech info they could share with the doctor.

Madalot · Post by **Madalot** » Wed Apr 30, 2014 5:06 am

chunkyfrog wrote:I wonder if the Trilogy people might have some tech info they could share with the doctor.

Good idea (plus another bump from me) --

Madalot · Post by **Madalot** » Thu May 01, 2014 5:08 am

Another bump -- sorry to keep doing this, but I am hoping Sludge sees this and takes an interest. I'm hoping he might have some good insights.

StuUnderPressure · Post by **StuUnderPressure** » Thu May 01, 2014 3:56 pm

No need to be sorry.

It is important enough for that action.

And, hey, I just saved you another bump.

Sir NoddinOff · Post by **Sir NoddinOff** » Thu May 01, 2014 4:24 pm

Kind of like asking how many people on the forum have done a valve job on a Lamborghini. Not an impossible question, but tough one. I hope that person gets the info they need.

Madalot · Post by **Madalot** » Fri May 02, 2014 5:01 am

Sir NoddinOff wrote:Kind of like asking how many people on the forum have done a valve job on a Lamborghini. Not an impossible question, but tough one. I hope that person gets the info they need.

This is true. But there are a handful of people that have some pretty good insights on situations like this (Sludge, -SWS, Pugsy) being the ones that came to mind when I was writing the original post.

Robysue, JohnBFisher, jnk -- thank so much for offering input on it even though I didn't mention you all specifically. I know that Indi's Gmomma appreciates all the input she can get.

Madalot · Post by **Madalot** » Sat May 03, 2014 7:18 am

I am bumping again. We've got her a bit better with a lower Backup Rate, but she still is nowhere near dialed in....

chunkyfrog · Post by **chunkyfrog** » Sat May 03, 2014 1:58 pm

Madalot, you are so sweet. Imdi's Gmomma has an angel indeed.

Indi's Gmomma · Post by **Indi's Gmomma** » Sat May 03, 2014 3:19 pm

chunkyfrog wrote:Madalot, you are so sweet. Indi's Gmomma has an angel indeed.

I couldn't agree more, and I believe I even mentioned it in a pm

Madalot · Post by **Madalot** » Sun May 04, 2014 9:55 am

chunkyfrog wrote:Madalot, you are so sweet. Imdi's Gmomma has an angel indeed.

No, I'm no angel. I just know what it's like to be in Indi's Gmomma's situation and I was lucky enough to get a lot of help when I got here. I'm just trying to help her get the same help I received.

Indi's Gmomma wrote:I couldn't agree more, and I believe I even mentioned it in a pm

You have but it's not necessary. Just trying to help the way I was helped.

New Trilogy User Needs Help!!! Anyone??

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