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sickwithapnea17 · Post by **sickwithapnea17** » Mon Jun 17, 2013 4:46 pm

my life and health has been ruined by sleep apnea.
after people have trach don't they have instant immediate relief from sleep apnea?
like they have deep, refreshing sleep and energy and clarity when they wake up?

on trach I have an infection and asthma and still don't get refreshing deep sleep. sometimes I got better sleep on asv

I was just so exhausted and pale after the trach operation and I still haven't regained my energy or have better brain function. it could be that I have centrals or hypopneas or some other sleep disorder. or my asthma makes it impossible to breathe through this narrow size 6 tube as a large person

JohnBFisher · Post by **JohnBFisher** » Mon Jun 17, 2013 5:19 pm

sickwithapnea17, in my opinion .. based solely on your posts in this forum .. you appear to be someone that wants instant answers. Unfortunately for many of us it takes a long time struggling against apnea and our bodies to reach a point where we attain restful sleep. And even then it doesn't always happen. I'ld say about one day out of each week I have a horrible night of poor sleep. I'm wasted the next day. But that's both part of getting older and part of having a chronic disorder (that if anything is going to get worse with time).

Do I give up? No. Nor do the vast majority of people who 'stick with it' to make it work. And it really is a commitment to turn things around.

So, whether you go back to ASV or try to make the trach work for you, remember that either path requires a commitment to 'stick with it'. Learn from others about how they handle problems. Try to help others. Reach OUT of yourself and see that many other people suffer far more than you do - believe it or not. And you will find that by trying to help others your problems will not seem as insurmountable and you will be better able to make your therapy work.

Just my two cents .. for what they are worth.

SleepingUgly · Post by **SleepingUgly** » Mon Jun 17, 2013 5:53 pm

sickwithapnea17 wrote:after people have trach don't they have instant immediate relief from sleep apnea?

There's only one other person with a trach I've seen post here, phoebe368, and she did not feel immediate relief.

sickwithapnea17 · Post by **sickwithapnea17** » Wed Jun 19, 2013 12:33 am

the trach keeps getting infected and I feel much worse now after the operation than before- more exhausted and foggy and can't write or read well.... I was dizzy for a month on the shiley 6 and asthma and hope I wasn't brain damaged! I think I'm going to reverse it...
I have mostly hypopneas/unspecified apneas on that sleepyhead program and my potassium was really high at 15.

god what an awful disease, I've been crippled and had my body and life destroyed by sleep apnea and my career

RogerSC · Post by **RogerSC** » Wed Jun 19, 2013 1:29 am

sickwithapnea17 wrote:the trach keeps getting infected and I feel much worse now after the operation than before- more exhausted and foggy and can't write or read well.... I was dizzy for a month on the shiley 6 and asthma and hope I wasn't brain damaged! I think I'm going to reverse it...
I have mostly hypopneas/unspecified apneas on that sleepyhead program and my potassium was really high at 15.

god what an awful disease, I've been crippled and had my body and life destroyed by sleep apnea and my career

Just wondering if you've looked up a post by phoebe368, in particular, the long post from that person on page 4 of this thread:

viewtopic.php?f=1&t=84488

It says that it will take a while for things to settle down, but they got much better for them after a while of healing and getting healthy. They describe having centrals at first, but then that going away after a time.

sickwithapnea17 · Post by **sickwithapnea17** » Wed Jun 19, 2013 11:29 am

yeah I saw that phoebe 368 has had good results on trach. I've noticed has anyone had a bad result on trach? it's partly why I chose it

but I was dizzy and exhausted even more than before the surgery and I don't know why? I feel better today and am back to the shiley 6

JohnBFisher · Post by **JohnBFisher** » Wed Jun 19, 2013 12:04 pm

You know there's the old story about a Greek Philosopher who was asked why some people complain about their situation and why others seem to just "grin and bear it". Sorry I don't remember which philosopher it was, but the story is enlightening.

To his listeners he noted that they should all bring their problems to the market square, where after examining the problems that others face, you can choose any problem to take away from the market square. But it would be your problem - with no possible "escape" from it. He noted that most - if not all of us - when we consider what others face would decide that we should just pick up our own burden and continue with it.

Why?

Well, he noted that we are all pretty much comfortable with the problem that we know. We often realize those insurmountable issues don't seem so insurmountable when we TRULY look at the issues that others face. In fact, we marvel at the loads they confront.

"But why do some people complain about their situation and others don't?" his students wondered. To which he replied, "Some people have the imagination to look at the world around them and imagine the problems others face - and not wait for a philosopher to take them through the exercise!"

Now, don't get me wrong. I know you are hurting. We've seen it for quite some time. But trust me when I tell you that the best way to "get better" is to take some time to see others around you and even offer to help. Your inward focus only focuses on your problem. It becomes insurmountable in your mind .. and we all know that it's not. I'm not saying your road will be smooth sailing. But attitude is *everything* !!

Rabbi Hillel wrote:I get up.
I walk.
I fall down.

Meanwhile, I keep dancing!

Stormynights · Post by **Stormynights** » Wed Jun 19, 2013 5:51 pm

JohnBFisher wrote:You know there's the old story about a Greek Philosopher who was asked why some people complain about their situation and why others seem to just "grin and bear it". Sorry I don't remember which philosopher it was, but the story is enlightening.

To his listeners he noted that they should all bring their problems to the market square, where after examining the problems that others face, you can choose any problem to take away from the market square. But it would be your problem - with no possible "escape" from it. He noted that most - if not all of us - when we consider what others face would decide that we should just pick up our own burden and continue with it.

Why?

Well, he noted that we are all pretty much comfortable with the problem that we know. We often realize those insurmountable issues don't seem so insurmountable when we TRULY look at the issues that others face. In fact, we marvel at the loads they confront.

"But why do some people complain about their situation and others don't?" his students wondered. To which he replied, "Some people have the imagination to look at the world around them and imagine the problems others face - and not wait for a philosopher to take them through the exercise!"

Now, don't get me wrong. I know you are hurting. We've seen it for quite some time. But trust me when I tell you that the best way to "get better" is to take some time to see others around you and even offer to help. Your inward focus only focuses on your problem. It becomes insurmountable in your mind .. and we all know that it's not. I'm not saying your road will be smooth sailing. But attitude is *everything* !!

Rabbi Hillel wrote:I get up.
I walk.
I fall down.

Meanwhile, I keep dancing!

Thank you for the wisdom. You remind me of a man I knew years ago. He was always cheerful and happy. I had just lost my oldest daughter. She was killed iin an accident at 14. I thought I couldn't live withhout her. I asked this man how he could always be so happy all the time? I said he must have always had a wonderful life. He said he lost two sons and I realized he had not led a wonderful life at all. He said every morning when he woke up he chose what his day was going to be focused on. He said he could focus on the pain on have hope and he chose hope. He changed my life and I never thanked him. I will never forget him though.

DoriC · Post by **DoriC** » Wed Jun 19, 2013 6:34 pm

Thank you and bless you John and Stormy! I feel your strength and I just took a deep breath and gave a sigh of relief after reading your posts.

imsleepynomore · Post by **imsleepynomore** » Wed Jun 19, 2013 6:39 pm

Listen to JohnBFisher he is a man with a wealth of wisdom , Sorry you are having so much trouble adjusting to your trach didn't the docs tell you in advance it would not be a walk in the park.Tracks require very careful cleaning and maintenance and take a long time to heal. Reread JohnBFishers words and hopefully they will help.

SleepingUgly · Post by **SleepingUgly** » Wed Jun 19, 2013 7:12 pm

I'm sorry to hear about the adversity some of you have suffered. An attitudinal shift can be very helpful to people, as evidenced by some of what people are posting here. However, I think it's unrealistic to expect that everyone is created equal in their ability to change their attitude and focus. There are individual differences in people's "resources", and some people are not capable of changing their attitude or focus without help, and some are not capable of much change at all, even with help.

sickwithapnea17 · Post by **sickwithapnea17** » Wed Jun 19, 2013 9:22 pm

trach was more pain and exhaustion than I expected, I'm finally feeling better after klonopin
I just can't understand why I was perfectly healthy and suddenly developed this disease being only a little overweight.
I have PLMD, leg movements and sleep better on klonopin. the surgeon told me that I have a small airway and large tongue, I think I've been having hypopneas, waking up with rapid breathing for years. I tried resmed asv but it's hard to tolerate and then lower pressures don't seem to work well.
anyway this weirdo surgeon trached me on a tiny shiley 6 and I ended up with several weeks of infection without antibiotics and was dizzy and bedridden

sickwithapnea17 · Post by **sickwithapnea17** » Wed Jun 26, 2013 5:05 am

Tipiford · Post by **Tipiford** » Wed Jun 26, 2013 5:25 am

sickwithapnea17 wrote:why is everyone on this forum...

DELETE

We all get in this life exactly what we deserve, and I can only surmise why you're in such misery.

Tipiford

Madalot · Post by **Madalot** » Wed Jun 26, 2013 5:30 am

The above is a typical post from SWA17. This has happened so many times that my response to it was a chuckle and "and there it is" out loud.

Whether he/she is really suffering in the way described or just a whack job, only this poster knows.

There is nothing anyone on this forum can do to help SWA17 and all attempts to help usually end up with a post like the above.

To SWA17 -- whatever the reality of your situation is, seek help. Real help, from real professionals in REAL LIFE. Internet forums aren't your answer.

Not that you'll listen. I fully expect a "finger lashing" hurled at me within the hour.

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