When can one discontinue CPAP useage
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- Posts: 286
- Joined: Tue Apr 01, 2014 1:19 pm
Re: When can one discontinue CPAP useage
Test results outlined:
Thanks everyone for the input
Please remember
Test is a home sleep study ARES sleep report
Anxiety meds were taken also a sleeping pill as well as 3-4 beers right before sleep ( I actually was unable to sleep for one home test thus the Beer)
Never able to complete tilaration test
Machine Purchase out of pocket via a CPAP vendor who was able to generate a prescription via an on site Dr. after reviewing my home sleep test
My GP literally got the fax when I was in his office and looked at it for 30 seconds claiming Mild to Moderate OSD
Date 2/7/14
Time slept 5.5
latency 12minutes
sleep efficiency 79%
Overall respiratory disturbance
RDI =16 based on a 1% hypopnea desaturation critera with confirmation from surrogate arousal indicators
percentage of time below 90% spo2 = 0%
Mean SP02 96%
average desatursation across all events 2%
Mean pulse rates of 79BPM with very frequent pulse rate variability 61 events with 6BPM inc/decre
slept supine 29% of the time
snored 35% ( My wife claims I only snore when I've had some beers)
I will meet with a NEW DR. next week he is in the weil cornell sleep center in NYC as recommended by a fellow member.
Any other info needed please let me know
Thanks in advance for everyone taking the time to try and help
Thanks everyone for the input
Please remember
Test is a home sleep study ARES sleep report
Anxiety meds were taken also a sleeping pill as well as 3-4 beers right before sleep ( I actually was unable to sleep for one home test thus the Beer)
Never able to complete tilaration test
Machine Purchase out of pocket via a CPAP vendor who was able to generate a prescription via an on site Dr. after reviewing my home sleep test
My GP literally got the fax when I was in his office and looked at it for 30 seconds claiming Mild to Moderate OSD
Date 2/7/14
Time slept 5.5
latency 12minutes
sleep efficiency 79%
Overall respiratory disturbance
RDI =16 based on a 1% hypopnea desaturation critera with confirmation from surrogate arousal indicators
percentage of time below 90% spo2 = 0%
Mean SP02 96%
average desatursation across all events 2%
Mean pulse rates of 79BPM with very frequent pulse rate variability 61 events with 6BPM inc/decre
slept supine 29% of the time
snored 35% ( My wife claims I only snore when I've had some beers)
I will meet with a NEW DR. next week he is in the weil cornell sleep center in NYC as recommended by a fellow member.
Any other info needed please let me know
Thanks in advance for everyone taking the time to try and help
- Bama Rambler
- Posts: 189
- Joined: Wed Feb 19, 2014 10:25 am
Re: When can one discontinue CPAP useage
If you took anxiety meds, sleeping pill & 4 beers, you really should have an in center sleep study done.
-
- Posts: 286
- Joined: Tue Apr 01, 2014 1:19 pm
Re: When can one discontinue CPAP useage
I tried 3 times but could not sleepBama Rambler wrote:If you took anxiety meds, sleeping pill & 4 beers, you really should have an in center sleep study done.
Maybe a different place might yield better results. The place I tried was hot and dry. The sheets were polyester. The straps were way too tight. There was a refrigerator in the room that was making a lot of noise. The "sleep tec" Barley spoke English. the last time I tried, I heard a crime or fight take place from an open window.....
Re: When can one discontinue CPAP useage
I'm in one of those moods that I get in at the start of allergy season, a mood in which I tend to disagree with every word I hear or read. So take that into consideration.
When it comes to the question of a mild-OSA person trying to get better sleep from an increase in airway pressure, docs can be useful for (1) knowing when trying that would be contraindicated and (2) helping one meet the criteria for having insurance pay for a machine. But that's about it for doc-usefulness for CPAP-use questions for those with very mild OSA or UARS.
You got a machine already. If it were me, and my doc didn't mind me playing around with the thing, I'd learn my machine myself and how to titrate myself to see if the machine helped anything. Frankly, YOU care about the quality of your sleep much more than any doc does. Unless you have a severe condition that unquestionably needs addressing for purely medical reasons, your doc has no reason to be all that concerned what you do.
My understanding is that it is mostly the people with an AHI over 15 or 20 who need to be scared into staying on the machine, whether sleep improves subjectively for them on it or not. However, for those with an AHI below that, the purpose of the machine is to improve the SYMPTOMS of bad sleep, not to prevent the serious consequences that can result long-term if someone with moderate-to-severe OSA were to decide to dump the machine.
That's a mild oversimplification, but still a distinction worth remembering when speaking to others who may have similar, but in essence completely different, situations with their sleep and who need to view the role of CPAP as something that may or may not prove useful for their situation.
In my opinon.
If it turns out that there is no CPAP pressure that helps your sleep be more restorative, and your "OSA" is mild, there may be reason to look for other causes of the sleep disturbance, something besides sleep-breathing.
When it comes to the question of a mild-OSA person trying to get better sleep from an increase in airway pressure, docs can be useful for (1) knowing when trying that would be contraindicated and (2) helping one meet the criteria for having insurance pay for a machine. But that's about it for doc-usefulness for CPAP-use questions for those with very mild OSA or UARS.
You got a machine already. If it were me, and my doc didn't mind me playing around with the thing, I'd learn my machine myself and how to titrate myself to see if the machine helped anything. Frankly, YOU care about the quality of your sleep much more than any doc does. Unless you have a severe condition that unquestionably needs addressing for purely medical reasons, your doc has no reason to be all that concerned what you do.
My understanding is that it is mostly the people with an AHI over 15 or 20 who need to be scared into staying on the machine, whether sleep improves subjectively for them on it or not. However, for those with an AHI below that, the purpose of the machine is to improve the SYMPTOMS of bad sleep, not to prevent the serious consequences that can result long-term if someone with moderate-to-severe OSA were to decide to dump the machine.
That's a mild oversimplification, but still a distinction worth remembering when speaking to others who may have similar, but in essence completely different, situations with their sleep and who need to view the role of CPAP as something that may or may not prove useful for their situation.
In my opinon.
If it turns out that there is no CPAP pressure that helps your sleep be more restorative, and your "OSA" is mild, there may be reason to look for other causes of the sleep disturbance, something besides sleep-breathing.
Re: When can one discontinue CPAP useage
I am glad you are getting a new doctor.Day_Dreamer wrote:Test results outlined:
Thanks everyone for the input
Please remember
Test is a home sleep study ARES sleep report
Anxiety meds were taken also a sleeping pill as well as 3-4 beers right before sleep ( I actually was unable to sleep for one home test thus the Beer)
Never able to complete tilaration test
Machine Purchase out of pocket via a CPAP vendor who was able to generate a prescription via an on site Dr. after reviewing my home sleep test
My GP literally got the fax when I was in his office and looked at it for 30 seconds claiming Mild to Moderate OSD
Date 2/7/14
Time slept 5.5
latency 12minutes
sleep efficiency 79%
Overall respiratory disturbance
RDI =16 based on a 1% hypopnea desaturation critera with confirmation from surrogate arousal indicators
percentage of time below 90% spo2 = 0%
Mean SP02 96%
average desatursation across all events 2%
Mean pulse rates of 79BPM with very frequent pulse rate variability 61 events with 6BPM inc/decre
slept supine 29% of the time
snored 35% ( My wife claims I only snore when I've had some beers)
I will meet with a NEW DR. next week he is in the weil cornell sleep center in NYC as recommended by a fellow member.
Any other info needed please let me know
Thanks in advance for everyone taking the time to try and help
I think you should have your old one justify his proscription before the medical boards.
May any shills trolls sockpuppets or astroturfers at cpaptalk.com be like chaff before the wind!
Re: When can one discontinue CPAP useage
Day_Dreamer (and others)
I am NOT trying to start any arguments. For all it's worth, I think you are right to get a second opinion. The circumstances of your sleep test do make a case for further investigation by someone new.
But I do want to point out that the CPAP prescription was NOT necessarily out of line and a case can be made for diagnosing you with mild-to-moderate OSA.
You wrote the test results included:
Seems like the hypopneas on your in-home sleep test were scored by looking for a combination of flow reduction together with a minor O2 desat and surrogate arousal indicators---i.e. data that strongly implies an EEG arousal did take place even though there was no EEG data recorded during the test.
So it is reasonable to think that if you had been in the lab that night, most or all of the hypopneas that the RDI = 16 is based on would indeed have been scored based on the combination of the respiratory data and the EEG data. In other words, your AHI/RDI using the alternative standard for scoring hypopneas might very well have been 16 on this night, And an AHI or RDI that uses hypopneas with arousal (i.e. hypopneas scored under the alternative standard) is considered a legitimate way to diagnose OSA and an RDI = 16 based on including hypopneas with arousal does indeed meet the standard for moderate sleep apnea since the cutoff between mild and moderate sleep apnea is an AHI or RDI = 15. Most doctors will prescribe a CPAP for an RDI > 15 even if the hypopneas are all scored under the "alternative" standard rather than the "recommended" standard and most private insurers are willing to pay for a CPAP in this case. So if your doctor and insurance company accept the "alternative" standard for scoring hypopneas, then based on this sleep test, a diagnosis of moderate OSA is reasonable and you would qualify for a CPAP
Please note that Medicare, however, insists that the hypopneas be scored under the "recommended" standard, which requires a 4% drop in O2 for a hypopnea to be scored. The discrepancy between the definitions of hypopnea in the "alternative" standard and the "recommended" standard do mean that some people (like myself) will get a diagnosis of OSA only under one of the two scoring standards. In your case, it looks like you would NOT qualify for a CPAP under the standard that Medicare accepts.
In other words, the whole business of scoring hypopneas is a mess. And under one accepted way to score hypopneas, you DO meet the criteria for a moderate sleep apnea diagnosis and you do qualify for CPAP. But under the other accepted way to score hypopneas, you do NOT meet the criteria for an OSA diagnosis and you don't qualify for CPAP.
I am NOT trying to start any arguments. For all it's worth, I think you are right to get a second opinion. The circumstances of your sleep test do make a case for further investigation by someone new.
But I do want to point out that the CPAP prescription was NOT necessarily out of line and a case can be made for diagnosing you with mild-to-moderate OSA.
You wrote the test results included:
Sounds like the RDI was based on estimating hypopneas that would have been scored as hypopneas under the alternative standard in an in-lab sleep test: For a hypopnea to be scored under the alternative standard, all you have to have is a 50% reduction in airflow along with an associated EEG arousal---NO O2 desat is required to score a hypopnea under the alternative standard in an in-lab sleep test if there is an EEG arousal.Day_Dreamer wrote:
Overall respiratory disturbance
RDI =16 based on a 1% hypopnea desaturation critera with confirmation from surrogate arousal indicators
percentage of time below 90% spo2 = 0%
Mean SP02 96%
Seems like the hypopneas on your in-home sleep test were scored by looking for a combination of flow reduction together with a minor O2 desat and surrogate arousal indicators---i.e. data that strongly implies an EEG arousal did take place even though there was no EEG data recorded during the test.
So it is reasonable to think that if you had been in the lab that night, most or all of the hypopneas that the RDI = 16 is based on would indeed have been scored based on the combination of the respiratory data and the EEG data. In other words, your AHI/RDI using the alternative standard for scoring hypopneas might very well have been 16 on this night, And an AHI or RDI that uses hypopneas with arousal (i.e. hypopneas scored under the alternative standard) is considered a legitimate way to diagnose OSA and an RDI = 16 based on including hypopneas with arousal does indeed meet the standard for moderate sleep apnea since the cutoff between mild and moderate sleep apnea is an AHI or RDI = 15. Most doctors will prescribe a CPAP for an RDI > 15 even if the hypopneas are all scored under the "alternative" standard rather than the "recommended" standard and most private insurers are willing to pay for a CPAP in this case. So if your doctor and insurance company accept the "alternative" standard for scoring hypopneas, then based on this sleep test, a diagnosis of moderate OSA is reasonable and you would qualify for a CPAP
Please note that Medicare, however, insists that the hypopneas be scored under the "recommended" standard, which requires a 4% drop in O2 for a hypopnea to be scored. The discrepancy between the definitions of hypopnea in the "alternative" standard and the "recommended" standard do mean that some people (like myself) will get a diagnosis of OSA only under one of the two scoring standards. In your case, it looks like you would NOT qualify for a CPAP under the standard that Medicare accepts.
In other words, the whole business of scoring hypopneas is a mess. And under one accepted way to score hypopneas, you DO meet the criteria for a moderate sleep apnea diagnosis and you do qualify for CPAP. But under the other accepted way to score hypopneas, you do NOT meet the criteria for an OSA diagnosis and you don't qualify for CPAP.
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
Re: When can one discontinue CPAP useage
When I read your posts I noted several things. First of all you deal with anxiety:
But about three years later a man recently released from prison for murder and robbery went on a rampage such that when he stood to be sentenced the “assault one burglary one” which was my portion of the seven charges against him (there were two others on the list, which would likely have been longer if everyone reported and was properly attributed) got him locked up for 26.5 years as all were applied concurrently.
With my anxiety levels thus raised CPAP therapy became rough indeed. Eventually I learned about EERS[1] which made the therapy bearable.
I found that anxiety tends to raise my respiratory control loop gain[2]. Since CPAP also tends to raise the respiratory control loop gain due to the pressure this made my breathing often unstable and CPAP usability very very difficult.
So when I hear that one whose “gain” levels are such that he cannot do an in lab test and also see that the very limited in home test did not find OSA but did find indications of unstable breathing which is likely related to his anxiety (perhaps even from the silly home sleep test as well as the history of it all!!) I honestly wonder at trying to use CPAP to try to threat a breathing disorder likely caused by a nonanatomic condition[2] which CPAP cannot treat and is most likely to exacerbate. Hugh cost in money, time, frustration, anxiety, and discouragement to him most likely.
I am glad to see that they are developing tools to do a better job of establishing a person as a good candidate for CPAP (or not!)[3]. Taking your old doctor “before the boards” may help move this process along.
[1]: Gilmartin G, McGeehan B, Vigneault K, Daly RW, Manento M, Weiss JW, Thomas RJ.
Treatment of positive airway pressure treatment-associated respiratory instability with enhanced expiratory rebreathing space (EERS).
Source: J Clin Sleep Med. 2010 Dec 15;6(6):529-38. Division of Pulmonary, Critical Care and Sleep Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Link: http://www.ncbi.nlm.nih.gov/pubmed/21206741
[2] Danny J. Eckert, David P. White, Amy S. Jordan, Atul Malhotra, and Andrew Wellman "Defining Phenotypic Causes of Obstructive Sleep Apnea. Identification of Novel Therapeutic Targets", American Journal of Respiratory and Critical Care Medicine, Vol. 188, No. 8 (2013), pp. 996-1004. doi: 10.1164/rccm.201303-0448OC
[3] Sairam Parthasarathy M.D., Emergence of Obstructive Sleep Apnea Phenotyping. From Weak to Strong! American Journal of Respitory and Critical Care Medicine VOL 188 2013
-- critical closing pressure [Pcrit] - Arousal Threshold - ventilatory control Loop gain - and genioglossal Muscle responsiveness. Pcrit, Loop, Arousal, Muscle (PALM)--
I am one who has severe Obstructive Sleep Apnea with extreme hypoxia. When I did my sleep test the tension in the lab was similar to sleeping with my 150 other bunk mates. For me at first CPAP improved things.Day_Dreamer wrote:The problem is, I was unable to complete an in office sleep test. I tried a few times. Since working in lower manhattan during the attack, I have been treated for severe anxiety. I cannot stand being wrapped up.
But about three years later a man recently released from prison for murder and robbery went on a rampage such that when he stood to be sentenced the “assault one burglary one” which was my portion of the seven charges against him (there were two others on the list, which would likely have been longer if everyone reported and was properly attributed) got him locked up for 26.5 years as all were applied concurrently.
With my anxiety levels thus raised CPAP therapy became rough indeed. Eventually I learned about EERS[1] which made the therapy bearable.
I found that anxiety tends to raise my respiratory control loop gain[2]. Since CPAP also tends to raise the respiratory control loop gain due to the pressure this made my breathing often unstable and CPAP usability very very difficult.
So when I hear that one whose “gain” levels are such that he cannot do an in lab test and also see that the very limited in home test did not find OSA but did find indications of unstable breathing which is likely related to his anxiety (perhaps even from the silly home sleep test as well as the history of it all!!) I honestly wonder at trying to use CPAP to try to threat a breathing disorder likely caused by a nonanatomic condition[2] which CPAP cannot treat and is most likely to exacerbate. Hugh cost in money, time, frustration, anxiety, and discouragement to him most likely.
I am glad to see that they are developing tools to do a better job of establishing a person as a good candidate for CPAP (or not!)[3]. Taking your old doctor “before the boards” may help move this process along.
[1]: Gilmartin G, McGeehan B, Vigneault K, Daly RW, Manento M, Weiss JW, Thomas RJ.
Treatment of positive airway pressure treatment-associated respiratory instability with enhanced expiratory rebreathing space (EERS).
Source: J Clin Sleep Med. 2010 Dec 15;6(6):529-38. Division of Pulmonary, Critical Care and Sleep Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Link: http://www.ncbi.nlm.nih.gov/pubmed/21206741
[2] Danny J. Eckert, David P. White, Amy S. Jordan, Atul Malhotra, and Andrew Wellman "Defining Phenotypic Causes of Obstructive Sleep Apnea. Identification of Novel Therapeutic Targets", American Journal of Respiratory and Critical Care Medicine, Vol. 188, No. 8 (2013), pp. 996-1004. doi: 10.1164/rccm.201303-0448OC
[3] Sairam Parthasarathy M.D., Emergence of Obstructive Sleep Apnea Phenotyping. From Weak to Strong! American Journal of Respitory and Critical Care Medicine VOL 188 2013
-- critical closing pressure [Pcrit] - Arousal Threshold - ventilatory control Loop gain - and genioglossal Muscle responsiveness. Pcrit, Loop, Arousal, Muscle (PALM)--
May any shills trolls sockpuppets or astroturfers at cpaptalk.com be like chaff before the wind!
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- Posts: 286
- Joined: Tue Apr 01, 2014 1:19 pm
Re: When can one discontinue CPAP useage
robysue wrote:Day_Dreamer (and others)
I am NOT trying to start any arguments. For all it's worth, I think you are right to get a second opinion. The circumstances of your sleep test do make a case for further investigation by someone new.
But I do want to point out that the CPAP prescription was NOT necessarily out of line and a case can be made for diagnosing you with mild-to-moderate OSA.
You wrote the test results included:Day_Dreamer wrote:
Overall respiratory disturbance
RDI =16 based on a 1% hypopnea desaturation critera with confirmation from surrogate arousal indicators
percentage of time below 90% spo2 = 0%
Mean SP02 96%
Sounds like the RDI was based on estimating hypopneas that would have been scored as hypopneas under the alternative standard in an in-lab sleep test: For a hypopnea to be scored under the alternative standard, all you have to have is a 50% reduction in airflow along with an associated EEG arousal---NO O2 desat is required to score a hypopnea under the alternative standard in an in-lab sleep test if there is an EEG arousal.
Seems like the hypopneas on your in-home sleep test were scored by looking for a combination of flow reduction together with a minor O2 desat and surrogate arousal indicators---i.e. data that strongly implies an EEG arousal did take place even though there was no EEG data recorded during the test.
So it is reasonable to think that if you had been in the lab that night, most or all of the hypopneas that the RDI = 16 is based on would indeed have been scored based on the combination of the respiratory data and the EEG data. In other words, your AHI/RDI using the alternative standard for scoring hypopneas might very well have been 16 on this night, And an AHI or RDI that uses hypopneas with arousal (i.e. hypopneas scored under the alternative standard) is considered a legitimate way to diagnose OSA and an RDI = 16 based on including hypopneas with arousal does indeed meet the standard for moderate sleep apnea since the cutoff between mild and moderate sleep apnea is an AHI or RDI = 15. Most doctors will prescribe a CPAP for an RDI > 15 even if the hypopneas are all scored under the "alternative" standard rather than the "recommended" standard and most private insurers are willing to pay for a CPAP in this case. So if your doctor and insurance company accept the "alternative" standard for scoring hypopneas, then based on this sleep test, a diagnosis of moderate OSA is reasonable and you would qualify for a CPAP
Please note that Medicare, however, insists that the hypopneas be scored under the "recommended" standard, which requires a 4% drop in O2 for a hypopnea to be scored. The discrepancy between the definitions of hypopnea in the "alternative" standard and the "recommended" standard do mean that some people (like myself) will get a diagnosis of OSA only under one of the two scoring standards. In your case, it looks like you would NOT qualify for a CPAP under the standard that Medicare accepts.
In other words, the whole business of scoring hypopneas is a mess. And under one accepted way to score hypopneas, you DO meet the criteria for a moderate sleep apnea diagnosis and you do qualify for CPAP. But under the other accepted way to score hypopneas, you do NOT meet the criteria for an OSA diagnosis and you don't qualify for CPAP.
all opinions and facts are welcome. I am not shopping for opinions
Thanks
They should just standardize it.
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- Joined: Tue Apr 01, 2014 1:19 pm
Re: When can one discontinue CPAP useage
I am having some weird closings of my throat while awake and sitting upright. as I exhale right before I inhale the area inside my throat just above my adam's apple closes and I can here a suction type sound being broken. Upon inhalation the throat opens. There also seems to be an unusual amount of thick flem building in that area.
I have been extremely stressed
Slept only about 6 hours in the last 2 days
BP is 138/88
I have been extremely stressed
Slept only about 6 hours in the last 2 days
BP is 138/88
Re: When can one discontinue CPAP useage
Robysue,
Sounds like you've hit on the probable basis for the Dr prescribing CPAP for Day_Dreamer. If I were in his shoes, I'd still want a second opinion. This is a case where the diagnosis is marginal, so if it were me, another medical opinion would make me feel better. If I had a second opinion confirm the need for CPAP I could then embrace this lifestyle change with confidence & move forward.
Sounds like you've hit on the probable basis for the Dr prescribing CPAP for Day_Dreamer. If I were in his shoes, I'd still want a second opinion. This is a case where the diagnosis is marginal, so if it were me, another medical opinion would make me feel better. If I had a second opinion confirm the need for CPAP I could then embrace this lifestyle change with confidence & move forward.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Pressure Auto 12-20cm CPAP compliant since 2000 |
Other masks I've tried: *=liked, #= no way
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
Re: When can one discontinue CPAP useage
Probably you need to see a good ENT who has and knows well how to use endoscopes to see what is going on.Day_Dreamer wrote:I am having some weird closings of my throat while awake and sitting upright. as I exhale right before I inhale the area inside my throat just above my adam's apple closes and I can here a suction type sound being broken. Upon inhalation the throat opens. There also seems to be an unusual amount of thick flem building in that area.
I have been extremely stressed
Slept only about 6 hours in the last 2 days
BP is 138/88
In the mean time I have found it useful to take a camera with a good macro mode, auto-focus, and built in flash capability (note: rotate the camera to move shadows) and to take several pictures to show what is going on in my throat. By taking pictures at night and then upon arising I was able to see that nighttime reflux was causing problems one fall.
Evening vs morning vs mid day BP is also often useful information.
May any shills trolls sockpuppets or astroturfers at cpaptalk.com be like chaff before the wind!
Re: When can one discontinue CPAP useage
The way you confirm the need for CPAP with mild OSA is that you use it and see if you feel better.
OSA below the moderate-to-severe level is not like strep, in which a test confirms that you either have it or do not. The only reason the word "diagnosis" is even used for those patients is for the benefit of the insurance company, not to be of any benefit to the patient. For milder forms of OSA, you could round up a thousand sleep docs and still not have any way to know if a particular patient will benefit from CPAP use without having the patient trial CPAP. It is response to therapy that becomes the yardstick for mild OSA, not sleep testing.
It's like saying, "you need to get a second opinion to find out whether aspirin will help your headache." Take an aspirin. See if it helps. Then you'll know.
We need to remember that many people "without OSA," from the point of view of the criteria payers have dictated, still benefit from PAP therapy. It is important to understand that in the case of sleep-breathing, the diagnostic criteria have been hijacked by the payers and turned into a way to deny patients CPAP unless they fall into insurers' little boxed-in definition. Response to therapy is considered by the best clinicians as the more important measure of whether a mild-OSA patient needs PAP to improve symptoms of bad sleep. A good doc knows how to fudge the numbers in a way to allow a borderline patient to try PAP to see if it helps. Why sabotage that process by demanding a second opinion for the privilege of trying a therapy that may prove to be very beneficial?
Let's not buy into the insurance companies' games. If a borderline patient gets to try CPAP, support it. Let response to therapy dictate whether PAP continues. Those who have been here a while should know by now that with OSA it is not as always as simple as "you either have it or you don't."
OSA below the moderate-to-severe level is not like strep, in which a test confirms that you either have it or do not. The only reason the word "diagnosis" is even used for those patients is for the benefit of the insurance company, not to be of any benefit to the patient. For milder forms of OSA, you could round up a thousand sleep docs and still not have any way to know if a particular patient will benefit from CPAP use without having the patient trial CPAP. It is response to therapy that becomes the yardstick for mild OSA, not sleep testing.
It's like saying, "you need to get a second opinion to find out whether aspirin will help your headache." Take an aspirin. See if it helps. Then you'll know.
We need to remember that many people "without OSA," from the point of view of the criteria payers have dictated, still benefit from PAP therapy. It is important to understand that in the case of sleep-breathing, the diagnostic criteria have been hijacked by the payers and turned into a way to deny patients CPAP unless they fall into insurers' little boxed-in definition. Response to therapy is considered by the best clinicians as the more important measure of whether a mild-OSA patient needs PAP to improve symptoms of bad sleep. A good doc knows how to fudge the numbers in a way to allow a borderline patient to try PAP to see if it helps. Why sabotage that process by demanding a second opinion for the privilege of trying a therapy that may prove to be very beneficial?
Let's not buy into the insurance companies' games. If a borderline patient gets to try CPAP, support it. Let response to therapy dictate whether PAP continues. Those who have been here a while should know by now that with OSA it is not as always as simple as "you either have it or you don't."
Re: When can one discontinue CPAP useage
jnk wrote:The way you confirm the need for CPAP with mild OSA is that you use it and see if you feel better.
OSA below the moderate-to-severe level is not like strep, in which a test confirms that you either have it or do not. The only reason the word "diagnosis" is even used for those patients is for the benefit of the insurance company, not to be of any benefit to the patient. For milder forms of OSA, you could round up a thousand sleep docs and still not have any way to know if a particular patient will benefit from CPAP use without having the patient trial CPAP. It is response to therapy that becomes the yardstick for mild OSA, not sleep testing.
It's like saying, "you need to get a second opinion to find out whether aspirin will help your headache." Take an aspirin. See if it helps. Then you'll know.
We need to remember that many people "without OSA," from the point of view of the criteria payers have dictated, still benefit from PAP therapy. It is important to understand that in the case of sleep-breathing, the diagnostic criteria have been hijacked by the payers and turned into a way to deny patients CPAP unless they fall into insurers' little boxed-in definition. Response to therapy is considered by the best clinicians as the more important measure of whether a mild-OSA patient needs PAP to improve symptoms of bad sleep. A good doc knows how to fudge the numbers in a way to allow a borderline patient to try PAP to see if it helps. Why sabotage that process by demanding a second opinion for the privilege of trying a therapy that may prove to be very beneficial?
Let's not buy into the insurance companies' games. If a borderline patient gets to try CPAP, support it. Let response to therapy dictate whether PAP continues. Those who have been here a while should know by now that with OSA it is not as always as simple as "you either have it or you don't."
Can the use of CPAP actually cause reliance. The old eye glass analogy is stuck in my head
Excuse my ignorance
Thanks
Go Brooklyn !
I am on Ocean Pkwy
Re: When can one discontinue CPAP useage
My wife's family live in the Prospect-Lefferts and Wingate area.Guest wrote:jnk wrote:The way you confirm the need for CPAP with mild OSA is that you use it and see if you feel better.
OSA below the moderate-to-severe level is not like strep, in which a test confirms that you either have it or do not. The only reason the word "diagnosis" is even used for those patients is for the benefit of the insurance company, not to be of any benefit to the patient. For milder forms of OSA, you could round up a thousand sleep docs and still not have any way to know if a particular patient will benefit from CPAP use without having the patient trial CPAP. It is response to therapy that becomes the yardstick for mild OSA, not sleep testing.
It's like saying, "you need to get a second opinion to find out whether aspirin will help your headache." Take an aspirin. See if it helps. Then you'll know.
We need to remember that many people "without OSA," from the point of view of the criteria payers have dictated, still benefit from PAP therapy. It is important to understand that in the case of sleep-breathing, the diagnostic criteria have been hijacked by the payers and turned into a way to deny patients CPAP unless they fall into insurers' little boxed-in definition. Response to therapy is considered by the best clinicians as the more important measure of whether a mild-OSA patient needs PAP to improve symptoms of bad sleep. A good doc knows how to fudge the numbers in a way to allow a borderline patient to try PAP to see if it helps. Why sabotage that process by demanding a second opinion for the privilege of trying a therapy that may prove to be very beneficial?
Let's not buy into the insurance companies' games. If a borderline patient gets to try CPAP, support it. Let response to therapy dictate whether PAP continues. Those who have been here a while should know by now that with OSA it is not as always as simple as "you either have it or you don't."
Can the use of CPAP actually cause reliance. The old eye glass analogy is stuck in my head
Excuse my ignorance
Thanks
Go Brooklyn !
I am on Ocean Pkwy
The glasses analogy is a good one in some respects, but like all analogies, it has its limits, in that glasses can, in some instances, alter the nature of the vision problems as the brain and eyes get used to them.
Not so with CPAP. There is no evidence that PAP therapy makes the problem worse or locks it in. In fact, quite the opposite. PAP therapy appears to prevent deterioration in some ways. And there is some residual effect in that some patients even breathe better (compared to before CPAP) for a few nights after stopping PAP therapy. (That residual effect quickly goes away, though). That is why some labs ask a patient to stop CPAP a few nights before retesting diagnostically, in order to see how they breathe without any leftover good effects from the machine. PAP seems to rid the airway of some swelling and fluid retention and that comes back over time after discontinuation. Or that's one theory about that, at least.
We were all ignorant when we first came here, by the way. Me especially. I've learned a lot here.
But don't worry that starting PAP will increase need for it. It is like wearing a brace for a bad ankle. It can help the ankle to heal or it can be something you always need for a permanently weak ankle, but it is highly unlikely that the brace will make anything worse. It will, if anything, prevent further injury. So it is with PAP. It is nothing more than a stent made of air pressure in a very natural way--a truly miraculous form of therapy for many, actually.
NOT treating the problem is what rewires the brain as it continues to ignore the state of the airway in order to get sleep. Treating the problem prevents further rewiring of the brain.
Keep in mind that I am not a medical professional of any sort. I am a fellow patient.
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Re: When can one discontinue CPAP useage
Reading all the supportive posts from people who have adapted to this therapy and embraced it, has eased some of the anxiety of becoming a life time user.
Again thanks to all for making a tough time a little easier!!
Again thanks to all for making a tough time a little easier!!