Any C02 retainers around here?

I'm looking for any information I can get on dealing with C02 retention, I fear my #'s are climbing again and not sure I'm doing everything I can to eliminate the carbon monoxide from my body, and I sure don't want to end up in er again.

Indi's Gmomma wrote:I'm looking for any information I can get on dealing with C02 retention, I fear my #'s are climbing again and not sure I'm doing everything I can to eliminate the carbon monoxide from my body, and I sure don't want to end up in er again.

to what numbers do you refer?

Indi's Gmomma wrote:...I fear my #'s are climbing again and not sure I'm doing everything I can to eliminate the carbon monoxide from my body...

First, make sure your furnace is working correctly.

Then, take a few hyperbaric oxygen treatments.

do you have COPD?

Indi's Gmomma wrote:I'm looking for any information I can get on dealing with C02 retention, I fear my #'s are climbing again and not sure I'm doing everything I can to eliminate the carbon monoxide from my body, and I sure don't want to end up in er again.

I wanted to point out that Indi's Gmomma is using a Trilogy 100 -- in case some of the experts get involved here...

Not sure what I did wrong but the majority of my post is missing so I'll try this again.
I'm using a Trilogy100 because around the holidays I ended up in ICU with a PC02 over 100 and my AGB was 42, Drs wouldn't release me until my numbers improved and I had a non invasive ventilator to take home, after 6 days I was home, but returned shortly after with similar #'s. When my carbon level was high I felt like I was in a fog and the neuropathy in my fingers was real bad (from Gillian Berré Syndrome) anyway I'm starting to have that foggy feeling and fear my carbon maybe rising again and I sure don't want to end up in the Hosp again, I honestly am not convinced my Trilogy is really helping eliminate the bad carbon monoxide from me but without having labs I won't really know that's why I want to make sure I'm doing everything I can.
I think there was more I wanted to mention but I want to post this before I loose it.

I'm not sure what my furnace is set at our how to check it? And also what your saying about "hyperbaric oxygen treatment" ?
I use oxygen @2.5l 24/7 and have now since 2006 when I was diagnosed with Gillian Berré Syndrome, I've not yet been tested for sleep apnea and only have mild copd, my main need for Trilogy is Neuromuscular pulmonary failure, with hypercapnia.
I appreciate any info I can learn here or if anyone is dealing with these issues also? thank folks

The only thing I can say to this is do you have a carbon monoxide alarm in your house. My sister had a carbon monoxide leak in her house and it almost did her in, it was from the furnace.

Indi's Gmomma wrote:I'm not sure what my furnace is set at our how to check it? And also what your saying about "hyperbaric oxygen treatment" ?
I use oxygen @2.5l 24/7 and have now since 2006 when I was diagnosed with Gillian Berré Syndrome, I've not yet been tested for sleep apnea and only have mild copd, my main need for Trilogy is Neuromuscular pulmonary failure, with hypercapnia.
I appreciate any info I can learn here or if anyone is dealing with these issues also? thank folks

I am very sorry to hear that you have such a severe disorder.

One think I have noticed doing eucapnic breathing is that if I go too far into the hypercapnic realm the viens on the back of my hand will "plump" (hand and arm pretty much relaxed near heart level). If I am breathing eucapnicly I cannot see those viens (well most of them - more of them since training for upper body strength).

Also my heart rate will go up.

In my case I found the breathing rates keeping exercion constant which yeilded the lowest heart rates. Doing so I found that consistently an SpO2 reading of 96% while at my desk or 97% if doing moderate exercise would also be with the lowest heart rates. When I moved to 2500' the numbers went down a percent.

Perhaps you can find some physical or otherwise measurable symptoms or levels which can help you breath more consistently at the correct rates. I have been pursueing eucapnic levels in my breathing for years now. It is second nature to check my breathing when a symptom is seen.

At night you might set an alarm from a pulse oximeter.

I hope you find better health soon!!!

squid13 wrote:The only thing I can say to this is do you have a carbon monoxide alarm in your house. My sister had a carbon monoxide leak in her house and it almost did her in, it was from the furnace.

Thanks Squid13, This is a good idea for every home to have, it's very hard to detect without one, I only wish they could could come up with something on a personal level for those that are c02 retainers, without labs it can be difficult to detect.

Rats I just lost my reply again I have severe neropathy in my hands and use a powerchair for muscle weekness left over from Guillian Berré Syndrome back in 2006, it was suposta all go away after a few years however mine has not, I have a hard time doing any exercise due to pain in my hand and fingers, that's why I use my iPhone from bed a lot to post and read this board, I've found the small touch screen doesn't hurt my fingers as much as my old desktop keyboard did!

Back to hypercapnia, I normally can't tell with my breathing if I'm doing anything wrong as I stated above but I do know when I've gone to far as my swallowing is difficult, you have given me some ideas and things to ponder now that I think about it. I'm going to post this before I loose it again.