Does your doc mind if you............
-
Country4ever
- Posts: 1373
- Joined: Wed Oct 31, 2007 6:22 pm
Does your doc mind if you............
change your own pressure?
Mine, fortunately, is pretty cool about it. I only went up 1 cm of pressure, when my numbers got bad and I started feeling old symptoms return.
He said he was okay with it..........but not to tell anyone (like the DME, insurance co., etc.) lol!
Maybe they just have alot of really unintelligent patients who don't understand anything about their own treatment.
I had a visit with the doc yesterday and the tech who downloaded my info had a really hard time understanding/accepting that I had changed my own pressure. I think she's probably still irritated by it.
Mine, fortunately, is pretty cool about it. I only went up 1 cm of pressure, when my numbers got bad and I started feeling old symptoms return.
He said he was okay with it..........but not to tell anyone (like the DME, insurance co., etc.) lol!
Maybe they just have alot of really unintelligent patients who don't understand anything about their own treatment.
I had a visit with the doc yesterday and the tech who downloaded my info had a really hard time understanding/accepting that I had changed my own pressure. I think she's probably still irritated by it.
Re: Does your doc mind if you............
I never discussed it with my doctor....6 years.
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
| Additional Comments: Back up is a new AS10. |
- Sir NoddinOff
- Posts: 4189
- Joined: Mon May 14, 2012 5:30 pm
- Location: California
Re: Does your doc mind if you............
In the early days, while sitting in my sleep doctor's waiting room for endless periods of time, I started to notice people fiddling with their SD cards as they waited. Obviously they had to take time off work or out of their busy day just to get their SD info to the doctor's staff and ultimately the doctor (at least, I hope so ). Right then and there I decided I didn't want to be one of those people. I simply bought my own machine and change the pressure using info from this forum. I've never looked back in almost two years. At first my sleep doctor didn't think it was a good idea but now he's on board with the my taking my treatment into my own hands. Yes, he will look at my machine data, if I insist in a nice way, mostly in the form of Sleepyhead.
_________________
| Mask: AirFit™ F10 Full Face Mask with Headgear |
| Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2. |
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.
- sleeplessinaz
- Posts: 1067
- Joined: Mon Oct 29, 2007 10:49 am
- Location: Mesa, Arizona
Re: Does your doc mind if you............
Never discussed it with anyone! Lol! It my therapy same as a diabetic controls their blood sugar.
Start Date 08/30/07
APAP setting is 6 to 12
HH 2.5
Side Sleeper
HypoThyroidism & Diabetes
New Airsense autoset 12/08/14
APAP setting is 6 to 12
HH 2.5
Side Sleeper
HypoThyroidism & Diabetes
New Airsense autoset 12/08/14
Re: Does your doc mind if you............
Changed start pressure from 4 to 6. Nobody noticed. Don't ask; don't tell.
Re: Does your doc mind if you............
After I showed my sleep doc SleepyHead and explained that I was a computer geek and of course had full access to the machine within minutes, he told me that I might as well do the changes he was proposing, and I was free to jiggle the pressure a bit to find the best setting.
I was about to mention that most doctors under 30 would assume that the average CPAP user can't set the time on the VCR let alone adjust the pressure, but realized that most people under 30 don't know what a VCR is!
I was about to mention that most doctors under 30 would assume that the average CPAP user can't set the time on the VCR let alone adjust the pressure, but realized that most people under 30 don't know what a VCR is!
_________________
| Machine: DreamStation Auto CPAP Machine |
| Mask: Quattro™ Air Full Face Mask with Headgear |
| Humidifier: DreamStation Heated Humidifier |
| Additional Comments: Pressure 9-20, average ~9.5; often use battery power while off-grid |
Hark, how hard he fetches breath . . . Act II, Scene IV, King Henry IV Part I, William Shakespeare
Choosing a Battery thread: http://www.cpaptalk.com/viewtopic/t1140 ... ttery.html
Choosing a Battery thread: http://www.cpaptalk.com/viewtopic/t1140 ... ttery.html
Re: Does your doc mind if you............
My doctor told me to just keep her updated on what changes I make so that she can update records and DME etc.
She said it is nice to have a easy patient but make sure I send her my monthly reports.
She said it is nice to have a easy patient but make sure I send her my monthly reports.
_________________
| Machine: DreamStation BiPAP® Auto Machine |
| Humidifier: DreamStation Heated Humidifier |
| Additional Comments: Settings are IPap 23 EPap 19 |
Re: Does your doc mind if you............
I also have my doctor's express blessing to adjust my pressure(s) as needed. It's nice to hear that more docs are getting on board with this. Maybe one of these days the ASAA forum powers-that-be will get up to speed on this and open the forum up to the kind of help we are able to give and receive here.
I think JediMark has a large hand in this positive trend -- I'm not sure my doctor would have felt comfortable with turning my therapy over to me the way he has if I had not brought in my SleepyHead reports and demonstrated my understanding of them and what they mean for my therapy. Thanks Mark!
I think JediMark has a large hand in this positive trend -- I'm not sure my doctor would have felt comfortable with turning my therapy over to me the way he has if I had not brought in my SleepyHead reports and demonstrated my understanding of them and what they mean for my therapy. Thanks Mark!
_________________
| Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle |
| Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura |
- Captain_Midnight
- Posts: 761
- Joined: Sat Jan 28, 2006 8:10 pm
- Location: The Great State of Idaho
Re: Does your doc mind if you............
My doc (and his LPN) are fine with me adjusting my pressures to optimize therapeutic value.
Each year, I prepare for them a brief report using downloaded data, and they always seem impressed that a patient could be so engaged and assiduous about his therapy. (And, I am negatively impressed that other patients are disinclined to do something similar.)
.
Each year, I prepare for them a brief report using downloaded data, and they always seem impressed that a patient could be so engaged and assiduous about his therapy. (And, I am negatively impressed that other patients are disinclined to do something similar.)
.
_________________
| Machine: DreamStation Auto CPAP Machine |
| Mask: ComfortGel Blue Nasal CPAP Mask with Headgear |
| Additional Comments: APAP range = 10 - 12.5 In H20 |
Re: Does your doc mind if you............
I've never discussed with Doc or sleep clinic. Been going on 4 years and neither of them has asked for my chip...I raised my psi and told doc, he just looked at me. I asked if that was wrong, no was his reply. We're good...
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
| Additional Comments: BP down & in control, Resmed S9 Autoset for backup & travel. |
- BlackSpinner
- Posts: 9742
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: Does your doc mind if you............
Doctor told me to do what I wanted as long as my AHI stayed under 5. As pulmonologist at a busy hospital clinic he had more interesting patients to see and I had demonstrated my knowledge by babbling enthusiastically about my AHI, how great I felt and the internet - in French (When I saw him first I could barely manage a few words)
_________________
| Machine: PR System One REMStar 60 Series Auto CPAP Machine |
| Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: Does your doc mind if you............
My specialist has no problem with me adjusting pressure. The clinic where I got my machine (heavily subsided rental) freaked out when I told them I could change my own pressure. Next time they tell me off, I'll tell them when you pay my fuel costs to get here and I don't have to wait four months to see you, then I'll leave it alone
Re: Does your doc mind if you............
I didn't know we had to learn to speak French to use CPAP!
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: DreamWear Nasal CPAP Mask with Headgear |
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
Re: Does your doc mind if you............
.....
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: DreamWear Full Face CPAP Mask with Headgear (Small and Medium Frame Included) |
| Additional Comments: Pressure 11.0 Min-->14.0 Max EPR 2 |
Last edited by old dude on Wed Jun 20, 2018 9:17 am, edited 1 time in total.
Re: Does your doc mind if you............
Started at 4-10cm with a 30 minute ramp from my sleep doctor, but I didn't have a titration study, so he had just guessed from experience. That got me down to an average AHI of about 1.5, not bad. Now I've turned off the ramp and am at 11-13cm, and my AHI is usually less than 1. He hasn't said anything about my changing the pressure, just likes my sleep data. Which is all fine with me. I think that if I brought it up, he'd be fine with it, but unless he brings it up I have no reason to.
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Additional Comments: ResMed AirFit N30 mask |










