New Here - just introducing myself

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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AKinVa
Posts: 2
Joined: Wed Dec 11, 2013 2:41 pm
Location: Ashland, Va

New Here - just introducing myself

Post by AKinVa » Wed Dec 11, 2013 7:35 pm

Hi everybody. I'm new here, but not really a newbie. I was diagnosed back in 2003 & used a machine for years. I had another sleep study recently and because I don't have insurance the doctor sent my paperwork to the Reggie White Foundation who just sent me the new machine (listed below). I am hating the mask & pulled it off about halfway through the night. I had never known what my old mask was called, but found something very close to it on the internet today - it's the (discontinued) Breeze SleepGear (from Puritan I think). A few sites still have it & I'm hoping to buy one soon & just crossing my fingers that they don't run out of them before I have the money.

I'm wondering how important is it to use distilled water in the humidifier?

Anyway, pleased to meet everybody.

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Julie
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Re: New Here - just introducing myself

Post by Julie » Wed Dec 11, 2013 8:17 pm

Hi, and welcome... The distilled water is mainly to keep your humidifier from a build-up of junk inside... insidious little stuff, often pink for some chemical reason, builds up and is hard to get rid of, plus you don't really want it in your nose or lungs, but it's otherwise not 'therapy' in itself and lots of people don't use it, but plain tap water, keeping an eye out for build-up and cleaning the tank regularly. Depends also I guess on what your water's like where you live and if D. water is unusually expensive for you.

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AKinVa
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Joined: Wed Dec 11, 2013 2:41 pm
Location: Ashland, Va

Re: New Here - just introducing myself

Post by AKinVa » Wed Dec 11, 2013 8:28 pm

Hi Julie,

Thanks for the information. I'm going to the store tomorrow so I'll pick up some distilled.

mgaggie
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Location: Victoria, Australia

Re: New Here - just introducing myself

Post by mgaggie » Wed Dec 11, 2013 9:12 pm

Welcome to the board

I have found distilled water saves my humidifier chamber from getting slimy, and I find my nose likes distilled water. When I've used filtered tap water, my nose felt like I had shoved sandpaper in the nostrils and gave them a good sanding

Apneanderthal
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Joined: Thu Sep 19, 2013 1:04 pm
Location: Orlando, Florida

Re: New Here - just introducing myself

Post by Apneanderthal » Thu Dec 12, 2013 2:51 pm

I get my distilled water in the 2.5 gallon cubes from the grocery store. The bottles with the spout. Makes it quick and easy to top up the humidifier tank.

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DoriC
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Location: NJ

Re: New Here - just introducing myself

Post by DoriC » Thu Dec 12, 2013 6:46 pm

Apneanderthal wrote:I get my distilled water in the 2.5 gallon cubes from the grocery store. The bottles with the spout. Makes it quick and easy to top up the humidifier tank.
What brand? I like the idea of the spout but I don't think I've seen that here in NJ.

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Bill44133
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Joined: Tue Jul 09, 2013 8:34 pm
Location: North Royalton, OH

Re: New Here - just introducing myself

Post by Bill44133 » Thu Dec 12, 2013 7:04 pm

DoriC wrote:
Apneanderthal wrote:I get my distilled water in the 2.5 gallon cubes from the grocery store. The bottles with the spout. Makes it quick and easy to top up the humidifier tank.
What brand? I like the idea of the spout but I don't think I've seen that here in NJ.
Here is Ohio the brand is Distillata http://www.distillata.com . The cubes are great and no waste/spill with the spout.

Speaking of which I have been using alot of water lately with the furnace running the air is so dry in my house.

Welcome AKinVA!

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JohnO
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Joined: Sun Jun 03, 2012 8:52 am
Location: Twin Cities, Minnesota, USA

Re: New Here - just introducing myself

Post by JohnO » Thu Dec 12, 2013 9:51 pm

AKinVa wrote: I had never known what my old mask was called, but found something very close to it on the internet today - it's the (discontinued) Breeze SleepGear (from Puritan I think). A few sites still have it & I'm hoping to buy one soon & just crossing my fingers that they don't run out of them before I have the money.
Welcome!

If you look through the notes here, you will often find people willing to give away some gently used masks for the cost of shipping. Take a look around. You might see one similar to the mask you are trying to match at a low cost (or free).

John

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