POS thing!

Wulfman... · Post by **Wulfman...** » Sat Nov 23, 2013 12:30 pm

Guest wrote:I have no idea what machine I have and the only thing I comprehended that the doctor said was my O2 level went to 89 percent. I thought that was still pretty good. I never thought anything was wrong before. The doctor sent me for tests (free) I got this free machine that was suppose to make me sleep more sound and feel more refreshed. I'm still waiting on that part. I would love to wake up bright eyed and bushy tailed but so far this is no different. Again my wife likes it because she says I don't snore. My thing covers my mouth and nose. The way I understand it they preset the pressure and I have humidity turned to max.

It's time for you to get "educated".
Many, many times I've said that people know more about their cell phones, computers and other electronic gadgets (toys) they buy, but don't have a friggin' clue (or seem to want to) about the equipment that will help with their sleep, health and help them live a longer life.
And, far too many people don't do any research BEFORE they go into this therapy.

Den

.

Bill44133 · Post by **Bill44133** » Sat Nov 23, 2013 3:37 pm

madwax wrote:I'm so fed up. I've had this thing for a few months now. I don't know if it's me or what but I can't tell it's doing anything to help. I feel more tired after waking up 5 times a night fighting with this thing. The noise keeps me awake. Sounds like water is sometimes trapped in hose (not overfilled). It is trying to kill me by wrapping around my neck. I don't care how high I keep the water on I wake up like I've been in a desert with no water for a week. My tongue is sticking to the roof of my mouth, my sinuses are sore from being so dry, and my lips feel like they haven't touched a sip of water in days. I have to put it on so tight so it doesn't fall off that I have red marks and my forehead and mouth area are sore. Half the time I apparently take it off anyway as it is usually unsnapped next to the bed. I would have already quit wearing it if it wasn't for my wife insisting I wear it because it keeps my snoring down. I never asked for this but one day the doc looked down my throat, commented how tight my airway was, asked if I snore (yes) and sent me for a sleep study. I failed. F ME. What do I do? I question if I even have apnea. It has never bothered me before. I think if I quit breathing I would know. FYI I'm on my phone now after two hours of wearing this and not being able to sleep.

Welcome to the forum! I have been on this therapy for a little more then 6 months now. Please take a few minutes to view this video: http://www.resmed.com/us/multimedia/und ... 40x380.swf

The video will paint a really good picture of what is going on with you. It really helped me to understand.
The medical community gives us these machines and tells us good luck, and walks away. Then they wonder why people walk away from this life saving therapy.

Once I understood what is happening to me I was able to know how to fight the fight of sleeping with the machine.
I wish you good luck.. There is lots of helpful people here that will help you if you decide to continue.

SleepyToo2 · Post by **SleepyToo2** » Sat Nov 23, 2013 3:43 pm

Todzo wrote: I mentioned respiratory control system gain. I could have called this upset breathing reflexes.

Todzo, I for one had no idea what you meant by respiratory control system gain. I fully understand the general idea of upset breathing reflexes. Why not use the simpler term, especially for new folks on the forum? They are probably already struggling with what has been happening to them, so don't add another scientific jargon term into the mix - you risk putting them off this forum completely!

chunkyfrog · Post by **chunkyfrog** » Sat Nov 23, 2013 3:47 pm

THERE IS HOPE
As annoying as this is, it beats the alternative. A stroke is no fun.
--just not on my wish list!
I slept with a mask that HURT for 4 months, because I felt less beat up in the morning;
and it slowly got even better, which took months for me.
Now, I wouldn't even consider sleeping without my lovely machine.

Todzo · Post by **Todzo** » Sat Nov 23, 2013 4:40 pm

SleepyToo2 wrote:
Todzo wrote: I mentioned respiratory control system gain. I could have called this upset breathing reflexes.
Todzo, I for one had no idea what you meant by respiratory control system gain. I fully understand the general idea of upset breathing reflexes. Why not use the simpler term, especially for new folks on the forum? They are probably already struggling with what has been happening to them, so don't add another scientific jargon term into the mix - you risk putting them off this forum completely!

I got the impression that madwax is a young man (well at least from my perspective). Likely internet savvy.

I think he can keep up. Indeed people reference things I am not familiar with all the time here. Drag, paste in search engine, know. Easy.

SleepyToo2 · Post by **SleepyToo2** » Sat Nov 23, 2013 7:45 pm

Todzo wrote:Indeed people reference things I am not familiar with all the time here. Drag, paste in search engine, know. Easy.

It may be easy to you, but from what I read the concept you are referring to is an engineering model devised to explain linear systems - the ventilatory system is not linear, and it is complicated by interactions between the O2 and CO2 loops. In other words, a simple search is not going to find the answer that may be desired. The idea of ventilatory instability is fascinating to me, and it probably could explain at least some arousals that occur during the night. However, in practical terms, how would you identify the instability, and what could you do about it when you found it? A simple explanation might help those who do not have engineering degrees, or the time to try and figure out what internet search results mean, an idea for how to improve our therapy.

jaybeem · Post by **jaybeem** » Sat Nov 23, 2013 8:56 pm

If we can't whine here, where can we whine? None of my friends or family have a clue! Sometimes I just need to know that someone hears me, understands, and will help, not judge.

If Madwax wants help, he does need to provide more information so that his problems can be addressed, but I think venting has its place.

Todzo · Post by **Todzo** » Sun Nov 24, 2013 1:29 am

SleepyToo2 wrote:
Todzo wrote:Indeed people reference things I am not familiar with all the time here. Drag, paste in search engine, know. Easy.
It may be easy to you, but from what I read the concept you are referring to is an engineering model devised to explain linear systems - the ventilatory system is not linear

I do not believe you will ever find a completely linear servo controlled system

SleepyToo2 wrote:, and it is complicated by interactions between the O2 and CO2 loops. In other words, a simple search is not going to find the answer that may be desired.

But the medical community refers to it as I have.

SleepyToo2 wrote:The idea of ventilatory instability is fascinating to me, and it probably could explain at least some arousals that occur during the night. However, in practical terms, how would you identify the instability, and what could you do about it when you found it? A simple explanation might help those who do not have engineering degrees, or the time to try and figure out what internet search results mean, an idea for how to improve our therapy.

read my posts

49er · Post by **49er** » Sun Nov 24, 2013 3:53 am

Guest wrote:I have no idea what machine I have and the only thing I comprehended that the doctor said was my O2 level went to 89 percent. I thought that was still pretty good. I never thought anything was wrong before. The doctor sent me for tests (free) I got this free machine that was suppose to make me sleep more sound and feel more refreshed. I'm still waiting on that part. I would love to wake up bright eyed and bushy tailed but so far this is no different. Again my wife likes it because she says I don't snore. My thing covers my mouth and nose. The way I understand it they preset the pressure and I have humidity turned to max.

I strongly urge you to find out what machine you have because until you do, people on this forum will not be in a good position to help you because essentially, they will be shooting in the dark. It is in your best interests to become as informed as possible.

If you have any questions about how to obtain specific information, ask away as there are no stupid questions.

49er

ReadyforRest · Post by **ReadyforRest** » Sun Nov 24, 2013 12:39 pm

Todzo ... usually, I just skip your posts. I find your herbal remedies and pseudo-medical jargon off topic and off-putting to say the least. Yesterday, I was so irritated by this post of yours:

Todzo on Sat Nov 23, 2013 11:43 am
mgaggie wrote:[oppressive statements eliminated due to lack of compassion and helpfulness]
feel free to not particpate in this thread

... in which you told mgaggie not to post, that I wrote you an angry reply ... and then I didn't post it. Because I had hoped to keep this a positive place. A battle-free zone. A place where I go to find answers and help for this therapy.

But today, I see that others are unhappy with your posts to a newbie too. He's having enough difficulty adjusting. He doesn't need to go look up some confusing term you posted that has nothing whatsoever to do with the issues he's trying to resolve. He needs real help.

zoocrewphoto · Post by **zoocrewphoto** » Sun Nov 24, 2013 1:02 pm

ReadyforRest wrote:Todzo ... usually, I just skip your posts. I find your herbal remedies and pseudo-medical jargon off topic and off-putting to say the least. Yesterday, I was so irritated by this post of yours:

I gave up trying to understand his posts a long time ago. I could never understand them, and they often seem to contradict the useful advice. It doesn't seem worth it to try anymore.

Cire Engineering · Post by **Cire Engineering** » Sun Nov 24, 2013 1:42 pm

I was diagnosed with severe obstructed sleep apnea. I didn't get a good nights rest in nearly 2 years. After having been diagnosed I struggled with various CPAP machines and masks. Upon extensive research along with trial-and-error I discovered the Resmed S9 Autoset with H5i, Climateline, and the Quatro Air Full Face Mask. It is by far the best CPAP/APAP machine I ever used. I sleep all night without any of the issues I had from previous machines.

I sleep with a washcloth next to me so if I get an itch, or I feel moisture on my face, I can quickly wipe under the mask. I also use pillows for my body and my head. It is important to fell comfortable, this means using the correct materials to improve your nights rest.

I use to micro-sleep, that no longer occurs. Whenever I would sit down I would fall asleep, that no longer occurs. I have regained the quality of life I had prior to acquiring sleep apnea simply by sleeping with the correct product.

Starlette · Post by **Starlette** » Mon Nov 25, 2013 3:11 am

I do agree with jaybeem, venting does have its place, especially when it comes to this forum. Some folks have come on this forum REALLY pissed. Pissed because:

How horrible they feel knowing that it is necessary to get a decent nights' sleep for the next day.
Not understanding why they have to deal with their disorder with a machine and mask.
Have not been well informed on how this whole deal of "therapy" is supposed to work.
What to do when therapy is not working as best as they thought.

Yuppers, I think those are items to be VERY pissed about!!

Right now, you need a support system of folks that will rally around you to help. There are those who are tenacious enough to help you get past the venting and help to sort out your issues and constructively provide solutions. Trust me, we have ALL been there!!! Just need to trust the folks here that they know what they are talking about, and be open to their suggestions.

Starlette

robysue · Post by **robysue** » Mon Nov 25, 2013 7:16 am

Starlette wrote:I do agree with jaybeem, venting does have its place, especially when it comes to this forum. Some folks have come on this forum REALLY pissed. Pissed because:

How horrible they feel knowing that it is necessary to get a decent nights' sleep for the next day.
Not understanding why they have to deal with their disorder with a machine and mask.
Have not been well informed on how this whole deal of "therapy" is supposed to work.
What to do when therapy is not working as best as they thought.

Yuppers, I think those are items to be VERY pissed about!!

Add to this list: Being led to believe that CPAP was going to work wonders in how they feel almost immediately.

There are a lot of p.o.'ed newbies who also are posting with highly unrealistic expectations of what CPAP can do and how quickly CPAP will start to work.

mgaggie · Post by **mgaggie** » Mon Nov 25, 2013 5:32 pm

Never thought my reply would generate so much discussion. I will stand by what I said in my first post, the OP sounded like a two year old having a tantrum, no apologies. IMO there are ways of asking for help, chucking a tanty isn't going to get you the help you really need, but if you ask calmly and politely I find people are more prepared to go that extra mile to help.

Anyway, I would welcome back the OP.

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Machine	Mask

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