Wow Madalot, I am stunned that your family would question you having muscular dystrophy as I always thought this was mostly an issue with invisible disabilities. So while I appreciate you letting me know that it also applies to visible disabilities, I am very saddened to hear you were doubted in light of everything you have to deal with.Madalot wrote:My own family was pretty bad for a while. My brother told me flat out that I didn't have Muscular Dystrophy, which I found really strange. My sisters were quietly questioning everything until I was visiting one of them and we were going out to dinner. As I was getting into their car, as I lifted my one leg into the car, the muscles in my other leg gave out and I ended up on my back in their driveway. Hit my head pretty good as well.
My sister was visibly shaken by it, but it was that incident that proved to her this was no laughing or non serious issue. It was also the LAST time I got into or out of a vehicle like that without my husbanding standing right there to support me if my muscles gave out.
Disease progression has forced me to use my chair to go places now, so something like that isn't likely to occur again. It's a shame it had to happen to PROVE to my family that I wasn't faking the issue or the severity of it. And if that was necessary for family, no way could I expect strangers to "get it."
It is a shame it took those incidents and a worsening of your disease for your family to understand but I am glad they came around.
49er