OT - My new hobby ...

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
kteague
Posts: 7782
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: OT - My new hobby ...

Post by kteague » Wed Sep 18, 2013 11:48 pm

The trees and the dragonfly are running a pretty close race for my favs. I'd proudly hang either in my home. Water colors intimidate me so I really appreciate those who can work with them.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

User avatar
JohnBFisher
Posts: 3821
Joined: Wed Oct 14, 2009 6:33 am

Re: OT - My new hobby ...

Post by JohnBFisher » Thu Sep 19, 2013 12:49 pm

Here's an example of what I mean that the saints among us help shape the world into a better place for all of us:

http://youtu.be/7s22HX18wDY

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT - My new hobby ...

Post by Stormynights » Thu Sep 19, 2013 2:40 pm

Truly beautiful story. Thank you.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT - My new hobby ...

Post by Stormynights » Thu Sep 19, 2013 3:11 pm

I knew a beautiful young girl who worked in the school cafeteria for free lunches. Her Mother told her to stop because she had plenty of money to pay for school lunches. The girl explained that the ladies in the lunchroom worked very hard and needed her help and she wasn't doing it for the lunches but just to help the nice ladies. One day after school while she was waiting after school to get on the bus to ride home an old mans car stalled in the street in front of the school. She ran out to help the old man push his car out of the street. One boy helped her while the other kids teased them for helping the old man. That night the girl was hit by a hit and run driver and she died the next day. The kids at the school apologized to the Mother for the way they had acted that day. The girl wasn't bothered by the incident she had just taken it is stride. I know because I am her Mother. Every day she rounded up all the kids in the neighborhood and brought them home with her to play school. The kids had fun and all got their homework done before they ever made it home from school.

Several years after she died I ran into a friend of hers that had moved away and hadn't heard about her death. Both girls had tried out for cheerleader and she was accepted but my Brenda was the next runner up if someone moved or didn't keep her grades up she would be on the team. Well the friend was going to lose her position because of her grades. Brenda tutored her so she could stay on the team. I learned so many acts of kindness she had done for others even for the janitor at the school.

I hope my story made sense I don't talk about her much because it is still very painful after all these years. She didn't get to stay with us too many years. She was only 14. She died the Sunday before Labor day in 1981.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
oak
Posts: 729
Joined: Sat Jun 15, 2013 11:49 am
Location: Western WI

Re: OT - My new hobby ...

Post by oak » Thu Sep 19, 2013 3:20 pm

Oh, Stormy, your post brought me to tears. (((HUGS))) I understand loss, but to lose a child...well I have no words. Hope you had lots of support when it happened.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover

User avatar
kaiasgram
Posts: 3569
Joined: Sat Jun 02, 2012 2:08 pm
Location: Northern California

Re: OT - My new hobby ...

Post by kaiasgram » Thu Sep 19, 2013 4:04 pm

Stormy, you know as the years pass it doesn't get easier -- in fact it can sometimes be harder because people stop asking about the child you've lost, as if that child is forgotten. I hope it comforts you just a little to know that now a whole community of caring people knows about your little saint-angel-child. Thank you for telling us about her.

_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT - My new hobby ...

Post by Stormynights » Thu Sep 19, 2013 4:37 pm


_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV
Last edited by Stormynights on Thu Sep 19, 2013 5:46 pm, edited 1 time in total.

User avatar
avi123
Posts: 4509
Joined: Tue Dec 21, 2010 5:39 pm
Location: NC

Re: OT - My new hobby ...

Post by avi123 » Thu Sep 19, 2013 5:11 pm

no responses

_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments:  S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6
Last edited by avi123 on Sat Sep 21, 2013 4:35 pm, edited 1 time in total.
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png

User avatar
chunkyfrog
Posts: 34545
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: OT - My new hobby ...

Post by chunkyfrog » Thu Sep 19, 2013 5:36 pm

Sometimes love is all the strength we have.
Thank goodness your friends loved you enough to fight for you, even when you fought them.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
kteague
Posts: 7782
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: OT - My new hobby ...

Post by kteague » Thu Sep 19, 2013 5:55 pm

Stormynights wrote:... I know because I am her Mother...
Thank you for sharing this with us. I knew you'd lost a daughter but all you've shared makes almost feel like I knew her. I cannot imagine what you've been and continue to go through. ((((HUGS)))) Would you mind if I shared this?

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT - My new hobby ...

Post by Stormynights » Thu Sep 19, 2013 5:58 pm

kteague wrote:
Stormynights wrote:... I know because I am her Mother...
Thank you for sharing this with us. I knew you'd lost a daughter but all you've shared makes almost feel like I knew her. I cannot imagine what you've been and continue to go through. ((((HUGS)))) Would you mind if I shared this?
I would be honored to have you share her. Thank you.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
kteague
Posts: 7782
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: OT - My new hobby ...

Post by kteague » Thu Sep 19, 2013 6:48 pm

Stormynights wrote:
kteague wrote:
Stormynights wrote:... I know because I am her Mother...
Thank you for sharing this with us. I knew you'd lost a daughter but all you've shared makes almost feel like I knew her. I cannot imagine what you've been and continue to go through. ((((HUGS)))) Would you mind if I shared this?
I would be honored to have you share her. Thank you.
Stormy, here's my introduction to your story as I shared it on my Facebook...
One Mother's Story
September 19, 2013 at 5:38pm
Read a story today that gripped my heart. It was on a forum I frequent for people with sleep disorders. Over the years of "talking" on the message board we get glimpses into the lives of those we usually know only by monikers and cartoon avatars. Today one of the regulars on that site shared her story of her daughter who lived a short but commendable life. It touched me deeply. It reminded me that everyone has a story, a burden they bear, and kindness should not be reserved just for those whose stories we know, but to everyone our lives intersect with. I want to share that story with you, as a tribute to a mother's daughter, that her legacy of goodness be spread just a bit farther on this day. I'm calling this A Beautiful Girl Named Brenda. In her mother's words...

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

User avatar
JohnBFisher
Posts: 3821
Joined: Wed Oct 14, 2009 6:33 am

Re: OT - My new hobby ...

Post by JohnBFisher » Thu Sep 19, 2013 6:48 pm

Stormynights, thank you for sharing such a wonderful and at the same time hurtful story. Your daughter exemplifies the best of us. She brought others together. She helped others excel and did not expect anything out of it herself. On a day when all we seem to hear is awful news about our leaders and others around us, it's great to hear how a child "gets it" and wants to help make the world a better place ... and LIVES it every day of her life. That's what we should do. Take the time to step out and imagine being in that other person's shoes and actually try to make their life better.

Thank you!!

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

User avatar
JohnBFisher
Posts: 3821
Joined: Wed Oct 14, 2009 6:33 am

Re: OT - My new hobby ...

Post by JohnBFisher » Thu Sep 19, 2013 9:44 pm

Time to get ready for my watercolor class tomorrow morning. Make certain ... Plus, as you can see, I tinkered around with my sketchbook. ... I can see the progress I am making. That's reassuring.

Image

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

ems
Posts: 2757
Joined: Fri Jul 29, 2011 12:46 am

Re: OT - My new hobby ...

Post by ems » Fri Sep 20, 2013 12:24 am

Stormy... what a beautiful, kind, caring child she was. Hugs to you.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~