Updates: Please give initial feedback/ Sleep study failure

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
oak
Posts: 729
Joined: Sat Jun 15, 2013 11:49 am
Location: Western WI

Re: Sleep study failure

Post by oak » Fri Aug 23, 2013 12:30 pm

glad you are getting in for the second one so soon. i feel confident that you will get answers this time. be patient though, it takes a couple of weeks to get the test results, usually.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Fri Aug 23, 2013 12:36 pm

oak wrote:glad you are getting in for the second one so soon. i feel confident that you will get answers this time. be patient though, it takes a couple of weeks to get the test results, usually.
im paying out of pocket so I insisted having a 2nd one soon...but happy that it is not tonight so I will recover from my 2hr night !

for the delay in the results, for some reason, I am naive and I think that I will be able to have some info from the lab tech....hehehe (didnt work on my 2hr night)

User avatar
Julie
Posts: 20023
Joined: Tue Feb 28, 2006 12:58 pm

Re: Sleep study failure

Post by Julie » Fri Aug 23, 2013 12:43 pm

Hi - I spoke too soon about sleeping with Trazadone (except for the symptoms I did have that disappeared the night I stopped taking it). I think I was looking at side effects and some would be counterproductive to being awake if you have untreated apnea (drowsiness, etc.), but if it helps some people sleep better, that's great.

User avatar
oak
Posts: 729
Joined: Sat Jun 15, 2013 11:49 am
Location: Western WI

Re: Sleep study failure

Post by oak » Fri Aug 23, 2013 12:47 pm

for mine, the tech said he couldn't give me any info that night ( had a split study with titration the same night), yet they faxed the prescription to a DME not of my choice. (i was mad about that but I did get the CPAP about a week after the sleep study {i made the appt-I with the DME -didn't wait for them to call ME}

the next step after that night was to have someone read tons of pages of data and score it. then, they sent it to a sleep doc i never spoke to who read the info and wrote the condensed report.

then, they sent it to my referring doc (took two weeks).

finally, i got to review the report from my referring family doc and got a copy.

i didn't know it but I could have gotten a copy after the two weeks directly from the hospital where the sleep center was, and before I saw my family doc, but it wasn't much more time so no biggie.

good luck!

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover

User avatar
renatae
Posts: 60
Joined: Tue Oct 30, 2012 2:50 pm

Re: Sleep study failure

Post by renatae » Fri Aug 23, 2013 12:51 pm

Thanks for clarifying, Julie. Trazodone is often prescribed for fibromyalgia, as it helps with the delta sleep stage issues those with fibro have.

_________________
MaskHumidifier
Hubby is also on CPAP - has CA and uses Respironics M series Pro with c-flex.

User avatar
renatae
Posts: 60
Joined: Tue Oct 30, 2012 2:50 pm

Re: Sleep study failure

Post by renatae » Fri Aug 23, 2013 12:59 pm

marcnhl wrote:
im paying out of pocket so I insisted having a 2nd one soon...but happy that it is not tonight so I will recover from my 2hr night !

for the delay in the results, for some reason, I am naive and I think that I will be able to have some info from the lab tech....hehehe (didnt work on my 2hr night)
Unfortunately, your sleep tech is sworn to secrecy. Seriously, no tech in any sort of lab environment, x-ray, sleep, whatever, is technically allowed to give their opinion, correct as it may be. You will probably have to wait for your follow up appointment with your doc, as the good ones will take quite a bit of time with you, explaining your dx and issues as well s treatment. My doc let me set up that appointment before I even had the test, but it was for two weeks after the test.

It took me three tests over 15 years to get dx. First I was told I had a suboptimal sleep pattern as well as confirming my fibromyalgia, which shows distinctive patterns in sleep studies. Next the guy kicked me out after about six hours because I couldn't sleep, either. (Should have raised holy heck and gotten my money back on that one.) Finally got a dx. I really don't know if I had it all along or not, because I have always had all sorts of sleep issues, insomnia, fibro, you name it. Hopefully you will have a much easier time getting to the bottom of your issues. Sleep well during your test!

_________________
MaskHumidifier
Hubby is also on CPAP - has CA and uses Respironics M series Pro with c-flex.

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Fri Aug 23, 2013 1:38 pm

oak wrote:for mine, the tech said he couldn't give me any info that night ( had a split study with titration the same night), yet they faxed the prescription to a DME not of my choice. (i was mad about that but I did get the CPAP about a week after the sleep study {i made the appt-I with the DME -didn't wait for them to call ME}

the next step after that night was to have someone read tons of pages of data and score it. then, they sent it to a sleep doc i never spoke to who read the info and wrote the condensed report.

then, they sent it to my referring doc (took two weeks).

finally, i got to review the report from my referring family doc and got a copy.

i didn't know it but I could have gotten a copy after the two weeks directly from the hospital where the sleep center was, and before I saw my family doc, but it wasn't much more time so no biggie.

good luck!
thanks for all the info. sorry whats DME hehe

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Fri Aug 23, 2013 1:40 pm

renatae wrote:
marcnhl wrote:
im paying out of pocket so I insisted having a 2nd one soon...but happy that it is not tonight so I will recover from my 2hr night !

for the delay in the results, for some reason, I am naive and I think that I will be able to have some info from the lab tech....hehehe (didnt work on my 2hr night)
Unfortunately, your sleep tech is sworn to secrecy. Seriously, no tech in any sort of lab environment, x-ray, sleep, whatever, is technically allowed to give their opinion, correct as it may be. You will probably have to wait for your follow up appointment with your doc, as the good ones will take quite a bit of time with you, explaining your dx and issues as well s treatment. My doc let me set up that appointment before I even had the test, but it was for two weeks after the test.

It took me three tests over 15 years to get dx. First I was told I had a suboptimal sleep pattern as well as confirming my fibromyalgia, which shows distinctive patterns in sleep studies. Next the guy kicked me out after about six hours because I couldn't sleep, either. (Should have raised holy heck and gotten my money back on that one.) Finally got a dx. I really don't know if I had it all along or not, because I have always had all sorts of sleep issues, insomnia, fibro, you name it. Hopefully you will have a much easier time getting to the bottom of your issues. Sleep well during your test!
very interesting and quite frankly strange that it might take several tests to get a dx...well of course, the human body evolves, so does the conditions..

did CPAP help you in a great way

User avatar
oak
Posts: 729
Joined: Sat Jun 15, 2013 11:49 am
Location: Western WI

Re: Sleep study failure

Post by oak » Fri Aug 23, 2013 1:46 pm

marcnhl wrote:
thanks for all the info. sorry whats DME hehe

Oh, sorry. DME is short for Durable Medical Equipment Provider or Vendor.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Fri Aug 23, 2013 2:23 pm

okie oak

ironhands
Posts: 249
Joined: Thu Jun 20, 2013 12:48 pm

Re: Sleep study failure

Post by ironhands » Fri Aug 23, 2013 9:45 pm

Mine was rough. I did sleep - about 4-5 hours, it was enough, but they're making me redo it, along with an MSLT the next morning. I'll be there almost 24 hours. I was kept awake by someone snoring in the next room and the tech coming in/out repeatedly.

They're not fun, but, gotta live with it to get the treatment.

Also OP, BEWARE YOUR DME. Be very very careful about what you pay for out of pocket. Some of it may end up in theirs.

_________________
MaskHumidifier

barrysuperhawk
Posts: 2
Joined: Fri Aug 23, 2013 9:19 pm

Re: Sleep study failure

Post by barrysuperhawk » Fri Aug 23, 2013 10:04 pm

I had almost the same experience, I went to the place, was already all wired up and nervous, then they started gluing these probes all over me and then insisted I sleep on my back. Well, folks, I have never been able to sleep on my back, I am a stomach sleeper, so during my first 10h sleep study, I slept for a grand total of 38 minutes. For my second sleep study, I made sure I was tired. I stayed up for ~41 hours straight prior to the test, took in 0 caffene that entire time, and made sure I worked my butt off carrying boxes and moving equipment all day the day of the appointment. I was tired enough that I almost fell asleep in the lot waiting. got in there, they glues the sensors to me and poof, I was out like a light.. They got enough events in the first 2 hours to qualify me, so they woke me up, [not easy] rigged me up with the tightest cpap on the planet and poof, I was back asleep. I guess I understand why they rigged it tight, but I half expected a foot on my shoulder when she was tugging...

tl;dr Make sure you are tired when you go...

James-UK
Posts: 22
Joined: Thu Aug 08, 2013 8:40 am

Re: Sleep study failure

Post by James-UK » Sat Aug 24, 2013 3:29 am

I also didn't sleep enough and I was having a home study .

I was so concerned about getting to sleep the second time (I had to pay out of pocket for both studies) that I stayed up all night, about 9am the next morning I felt extremely tired but I was determined to stay up until nighttime thinking that I would then feel more tired. I couldn't have been more wrong, after 7pm I started waking up and became wide awake, I then stayed up until 6am the next morning, wore the device for an hour and couldn't sleep, so I removed it and fell to sleep. It wasn't until after staying up all night again that I managed to get enough hours sleep wearing the device.

I was then diagnosed with severe sleep apnoea. The funny thing is I didn't really feel any worse without the sleep compared to when I do sleep. There were times when I actually felt better.

Good luck with your next study .

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Wed Aug 28, 2013 6:11 am

Hi guys,

Good one James

Update: 2nd study yesterday.

SAME thing as the 1st: hehehe! Even if I was not as nervous, just slept from 3am to 5, approx. So theyve got 2, 2-3hrs studies. Talked to the tech and she said she didnt see too much...told her no wonder, I wanted to sleep so bad that I slept on my side (usually im on back, cannot stay for long on the side, shoulder injuries...).

I have a feeling they didnt see anything...which, considering my symptoms, would be bad news...

marcnhl
Posts: 19
Joined: Fri Aug 23, 2013 9:40 am
Location: Canada

Re: Sleep study failure

Post by marcnhl » Wed Aug 28, 2013 8:35 am

Question; i seem to have symptoms of low oxygen, but maybe not from apnea (more from nasal congestion and deviated septum).

Could they still recommend cpap? Would that be "uars"?

Thanks

Ps i have to wait 10 days to maybe have results, so ill have questions like that..