I guess he must have heard about POPE II.SleepyonMagnoliaSt wrote:'She should have her tonsils removed at Riley because they have a PICU!'
Got my daughter's study results
Re: Got my daughter's study results
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: Got my daughter's study results
So, what's the prize??SleepingUgly wrote:Sorry, been doing the Memorial Day thing.mollete wrote:Still workin' on it?mollete wrote:Give him the anagram and see how he makes out.
Go ahead and use the clue.
Jim Morrison.
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
Re: Got my daughter's study results
An autographed copy of Dr. Jekyll and Mrs. Hyde.SleepingUgly wrote:So, what's the prize??SleepingUgly wrote:Sorry, been doing the Memorial Day thing.mollete wrote:Still workin' on it?mollete wrote:Give him the anagram and see how he makes out.
Go ahead and use the clue.
Jim Morrison.
- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
I mentioned it to him and he gave me a dirty snotty look like I wasn't supposed to know about POPE I or POPE IImollete wrote:I guess he must have heard about POPE II.SleepyonMagnoliaSt wrote:'She should have her tonsils removed at Riley because they have a PICU!'
After talking with the pediatrician and they getting the information from the ENT they don't want to push surgery either. DD has hypotonia also which is floppy muscles and not good muscle tone. They said with this that there's a chance THAT is actually why her airway is collapsing.
Supposed to talk to the pulmo tomorrow about CPAP and such
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |
Re: Got my daughter's study results
Did he know?SleepyonMagnoliaSt wrote:I mentioned it to him and he gave me a dirty snotty look like I wasn't supposed to know about POPE I or POPE IImollete wrote:I guess he must have heard about POPE II.SleepyonMagnoliaSt wrote:'She should have her tonsils removed at Riley because they have a PICU!'
Can you grab a hold of the long report? I really think you need to take a close at the O2 saturation and ETCO2 levels. She may be a more appropriate candidate for BiPAP instead of CPAP, and they should have a real low threshold of going to that modality.SleepyonMagnoliaSt wrote:After talking with the pediatrician and they getting the information from the ENT they don't want to push surgery either. DD has hypotonia also which is floppy muscles and not good muscle tone. They said with this that there's a chance THAT is actually why her airway is collapsing.
Supposed to talk to the pulmo tomorrow about CPAP and such
Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
Also2, a hefty dose of desensitization may be quite helpful in getting through titration (if that's the way you decide to go).
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: Got my daughter's study results
Are you insulting me? Is it an "insult" if the person doesn't even understand it?mollete wrote:An autographed copy of Dr. Jekyll and Mrs. Hyde.
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: Got my daughter's study results
I have a recommendation in this department: the Resmed Micro.mollete wrote:Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
I'm told kids tend to do better than adults with CPAP (and mine did do well with wires + CPAP). She's been on CPAP before, right? Was she too young to remember?Also2, a hefty dose of desensitization may be quite helpful in getting through titration (if that's the way you decide to go).
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
Re: Got my daughter's study results
So between the two Big Companies you got maybe 5 choices:SleepingUgly wrote:I have a recommendation in this department: the Resmed Micro.mollete wrote:Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
http://www.resmed.com/us/products/pixi/ ... c=patients
http://www.healthcare.philips.com/us_en ... /index.wpd
How big is the DD?
- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
Yes! He did seem to know what he was talking about, he was just an ass lolmollete wrote:Did he know?SleepyonMagnoliaSt wrote:I mentioned it to him and he gave me a dirty snotty look like I wasn't supposed to know about POPE I or POPE IImollete wrote:I guess he must have heard about POPE II.SleepyonMagnoliaSt wrote:'She should have her tonsils removed at Riley because they have a PICU!'
Can you grab a hold of the long report? I really think you need to take a close at the O2 saturation and ETCO2 levels. She may be a more appropriate candidate for BiPAP instead of CPAP, and they should have a real low threshold of going to that modality.SleepyonMagnoliaSt wrote:After talking with the pediatrician and they getting the information from the ENT they don't want to push surgery either. DD has hypotonia also which is floppy muscles and not good muscle tone. They said with this that there's a chance THAT is actually why her airway is collapsing.
Supposed to talk to the pulmo tomorrow about CPAP and such
Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
Also2, a hefty dose of desensitization may be quite helpful in getting through titration (if that's the way you decide to go).
I will definitely get a copy of her long report! Right now we're doing lots of call arounds. The ENT didn't fax the pediatricians office the stuff yesterday so I'm on the phone trying to get them to do it lol
So far I have been researching and I like the look of the Resmed Micro
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |
- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
Thank you! The micro is the one I've been looking at.SleepingUgly wrote:I have a recommendation in this department: the Resmed Micro.mollete wrote:Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
I'm told kids tend to do better than adults with CPAP (and mine did do well with wires + CPAP). She's been on CPAP before, right? Was she too young to remember?Also2, a hefty dose of desensitization may be quite helpful in getting through titration (if that's the way you decide to go).
DD wasn't on cpap before but she was on a high flow open nasal cannula. The air she got with that was heated and humidified. I don't think she'll remember it though because she was a lot smaller at that time.
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |
- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
She's a very small girl. She's 7 1/2 and about the size of most normal 5 year olds. She's got a little nose toomollete wrote:So between the two Big Companies you got maybe 5 choices:SleepingUgly wrote:I have a recommendation in this department: the Resmed Micro.mollete wrote:Also, start researching about interfaces (masks) REAL early. The kid selection is very poor.
http://www.resmed.com/us/products/pixi/ ... c=patients
http://www.healthcare.philips.com/us_en ... /index.wpd
How big is the DD?
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |
- chunkyfrog
- Posts: 34545
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Re: Got my daughter's study results
This would be a good time for a tiny size Wisp.
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- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
Amen! There is on called resmed pixie which seems to be great with smaller kids toochunkyfrog wrote:This would be a good time for a tiny size Wisp.
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: Got my daughter's study results
The pixie is tiny. It's appropriate for a toddler. We tried it.
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Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
- SleepyonMagnoliaSt
- Posts: 358
- Joined: Sat May 04, 2013 8:56 pm
- Location: Indiana
Re: Got my daughter's study results
Can I ask how big your son was when you tried it? Even just guesses? That will give me more of an idea for my daughterSleepingUgly wrote:The pixie is tiny. It's appropriate for a toddler. We tried it.
_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack |
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4 |