Sleep Disorder???

I'm with the others on seeing for yourself that your nightly treatment is indeed effective. One would hope with as much as they've had their eyes on you they would have picked up on any treatment issues, but I would still want to see that in black and white with my own eyes.

Aside from your nightly data, do you have copies from all your sleep studies? Not just the summary page but several pages of info. If you compare them side by side, maybe you can find a clue - a consistent anomaly - that will help you know where to look next.

Have any of your studies made any mention of limb movements? Even after my OSA was successfully treated, my active legs kept my sleep stages disrupted and my daytime symptoms still indicated a sleep disorder. I also was on meds that made me lethargic. Are you on any meds? After you have ruled out everything possible, including any nutritional deficiencies, I would ask if there's any chance narcolepsy could be at play.

Good luck as you go forward and seek to figure out why you still feel so bad.

kteague wrote:I'm with the others on seeing for yourself that your nightly treatment is indeed effective. One would hope with as much as they've had their eyes on you they would have picked up on any treatment issues, but I would still want to see that in black and white with my own eyes.

Aside from your nightly data, do you have copies from all your sleep studies? Not just the summary page but several pages of info. If you compare them side by side, maybe you can find a clue - a consistent anomaly - that will help you know where to look next.

Have any of your studies made any mention of limb movements? Even after my OSA was successfully treated, my active legs kept my sleep stages disrupted and my daytime symptoms still indicated a sleep disorder. I also was on meds that made me lethargic. Are you on any meds? After you have ruled out everything possible, including any nutritional deficiencies, I would ask if there's any chance narcolepsy could be at play.

Good luck as you go forward and seek to figure out why you still feel so bad.

Is that you in the video? I showed it to my husband so he would understand what I had to go through to sleep with him. He thought it was funny.

Try a journal for a month to document events, allergies, excersize, diet, sleep hygiene, time to bed and up, and anything else you think could be causing your daytime sleepiness. Hopefully a pattern would present itself after a month. I am also posting a link about diet and sleep type recently seen on Dr.OZ and a sleep doctor study.

http://www.doctoroz.com/episode/whats-y ... your-sleep

I noticed that you are averaging a little less than seven hours a night - so my first question is are you sure you are getting enough sleep? Do you wake up naturally after seven hours or are you waking up with an alarm?

If you are waking up with an alarm, try going to bed fifteen minutes early each night and adding fifteen minutes until you wake up naturally with out your alarm at the time you need to get up. You may find that you actually NEED more sleep than what you are getting.

Narcolepsy causes serious brain fog despite treatment, but it has markers that are undeniable. (REM sleep comes before deep sleep and is almost immediate when you hit the pillow and fall asleep.) This is pretty apparent, so if you doctor didn't mention it, you probably don't have this issue.

Did you have a sleep study report that mentioned leg movement count? This may be waking you up at night.

Are you comfortable when you sleep? Do you deal with chronic pain issues? That effects sleep big time.

Ask your doc for a copy of your sleep study report and post it here - there are several people here that can help you understand it and rule things out at least in your own mind.