So Upset about the Cpap
-
- Posts: 90
- Joined: Mon May 21, 2012 10:07 am
Re: So Upset about the Cpap
I don't think there is anything to be ashamed of. I need to use the CPAP machine as well. It wasn't my choice to have narrower airways than normal and tissues/muscles getting too relaxed. This is not a character flaw or a result of it. Some people have calcium deficiencies, some vitamin deficiencies. Some people have migraines or other chronic pains. Some people wear glasses! I didn't do anything "bad" to deserve this. While it is nothing to be proud of, there is nothing to be ashamed of either. I think a great deal of people out there have sleep issues and are not even aware of it. Maybe glasses initially looked weird but now they are mainstream and nobody gives people who wear glasses a second thought. This should be the case for CPAP as well. Just think of it as another form of glasses.
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: I'm fairly certain this is the model. My machine label reads: REMStar Auto REF 550p |
Re: So Upset about the Cpap
[quote="Denial Dave"]I'll bet when folks are diagnosed with Diabetes, they spend time telling about blood sugar levels, how to monitor it, etc.,.
Good luck!
Actually Dave, I got the same amount of information - even less - with my prescription for diabetes test strips and meds. My Dr. told me absolutely NOTHING!! I got home with my meds and test equipment and as I was reading the instructions, I was registering for the ADA forums, where I learned EVERYTHING about diabetes, just like I joined this forum to learn about OSA.
The problem with diabetes, specially T2, it's a very individual thing - what spikes my BG has no effect on another person's, so we each have to run our own science experiments on ourselves.
I have to say, my self-interest and treatment in both T2 and OSA has my medical team totally on my side. They certainly monitor my labs and printed reports, but they rely on ME to tell them how I'm doing and our appointments are more discussions than anything else.
Cheers,
xena
Good luck!
Actually Dave, I got the same amount of information - even less - with my prescription for diabetes test strips and meds. My Dr. told me absolutely NOTHING!! I got home with my meds and test equipment and as I was reading the instructions, I was registering for the ADA forums, where I learned EVERYTHING about diabetes, just like I joined this forum to learn about OSA.
The problem with diabetes, specially T2, it's a very individual thing - what spikes my BG has no effect on another person's, so we each have to run our own science experiments on ourselves.
I have to say, my self-interest and treatment in both T2 and OSA has my medical team totally on my side. They certainly monitor my labs and printed reports, but they rely on ME to tell them how I'm doing and our appointments are more discussions than anything else.
Cheers,
xena
_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Dx 10/14/10. Also a T2 diabetic. High night/fasting numbers prompted a sleep study and here I am :-) |
Re: So Upset about the Cpap
Hi John.....I wanted to reply to you....But Nan said everything that I wanted to say. IMO you are a valued member of this forum.
I wish you a great day! Janice
I wish you a great day! Janice
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Machine: ASV Adapt 36037/Ruby Chin Strap/Chin-Ups/ Sleepyhead |
"He who understands you is greater kin to you than your own brother. For even your own kindred may neither understand you nor know your true worth."
Kahlil Gibran
Kahlil Gibran
Re: So Upset about the Cpap
There's actually a lot of support systems for diabetes--most doctors will refer you to a diabetes educator and/or dietician. Unfortunately, a good deal of the info they teach is crap--like how to eat six servings if carbs a day to guarantee you'll be on ever increasing doses of medication for life, replacing healthy fats with junk industrial oils to help you develop heart disease and other issues, and warn you away from whole foods like real eggs and organ meats so that you overeat to try to get your nutritional needs met from empty manufactured calories.
You dodged a bullet by not getting referred for this "helpful" advice, Xena!
You dodged a bullet by not getting referred for this "helpful" advice, Xena!
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: DreamWear Nasal CPAP Mask with Headgear |
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: So Upset about the Cpap
OH no, you don't!! Not as I'm going on ASV!JohnBFisher wrote:I think I need a break from the forum.
I even named the empathic approach after you, remember?
SleepingUgly wrote:Nosnore, do you want help?? There are good people who will be more than willing to help you in any way they can (it's just that those ways are already pretty clearly defined). You could choose the tactics of your sponsors:
(1) "The John Fisher approach" -- you will get knowledge, support, and empathy. (If you still are noncompliant, you need a tougher approach. Consider Group 2).
(2) "The 2x4 approach" -- If you liked bootcamp, you will like this approach. You whine, you do 25 push-ups. You complain, 30 push-ups. You complain in a whiny voice, 55 push-ups. (If you have not increased your compliance or lost any weight in this group, and you are still actually here, you belong in the John Fisher group).
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
- SleepingUgly
- Posts: 4690
- Joined: Sat Nov 28, 2009 9:32 pm
Re: So Upset about the Cpap
Oy, you are such a mensch. I don't think I could/would have been so menschy in your shoes. I'm lower on the mensch continuum. I think I'll call it the John Fisher Mensch Continuum.JohnBFisher wrote:You are correct. I should not have posted the way I did.
So, to kaiasgram in particular, and the forum in general ... Please accept my apologies. I can offer excuses, but they are just that. And poor behavior is not really excusable. So please accept my humble apology.
Because I seem to be in such a poor mood - and have been criticized recently for my comments - I probably will only comment on specific issues with ASV therapy. If my own personal feelings are negatively tinting my comments, then it's time for me to just deal with facts and specific therapy issues and not deal with feelings.
So, again, please accept my apology.
I'm sorry to hear about your poor mood. Anything we can do to help? It's about time WE helped YOU.
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: So Upset about the Cpap
Just bringing a chuckle to me helps. Having the joy of having life be "interesting" makes it a challenge to keep my mood even when I respond. Unfortunately, I don't always succeed. So, back up, apologize, and try, try, try again!SleepingUgly wrote:... I'm sorry to hear about your poor mood. Anything we can do to help? It's about time WE helped YOU. ...
And I'll be happy to help you (as will many other users, no doubt) as you start ASV therapy. You've gone through a lot to get to this point, so you should be well prepared to tackle ASV therapy.
Thanks, however, for the thoughts!
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
Re: So Upset about the Cpap
I want to thank John for reaching out to me, which he has done both publicly and privately. I've accepted his apology open-heartedly and I believe John knows that while I took exception to one part of his earlier post, I do not question his intention to help and I respect him as a valuable member of our community.
Nobody needs to be talking about "goating" and "bashing" here, we've worked it out between us and it's all good.
Thanks again, John. I second what another poster said, you are a man of integrity and class. Best wishes.
kaiasgram
Nobody needs to be talking about "goating" and "bashing" here, we've worked it out between us and it's all good.
Thanks again, John. I second what another poster said, you are a man of integrity and class. Best wishes.
kaiasgram
_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle |
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura |
Last edited by kaiasgram on Mon Oct 15, 2012 2:33 pm, edited 1 time in total.
-
- Posts: 136
- Joined: Thu Jul 26, 2012 12:43 pm
- Location: Ontario, Canada
Re: So Upset about the Cpap
John, I'm very sorry if I said anything that rubbed you the wrong way. I certainly didn't mean to. I love this place and hope that we can all be friends.
_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: SleepyHead v0.9.1, Pressure: 9 - 14 |
Re: So Upset about the Cpap
John... your signature says it all. You are indeed a mensch!
There are five people here whose posts I always read... whether they apply to me or not. Yours is one of them! Realizing that some days you may be in a mood, your posts nevertheless are always knowledgeable and uplifting.
BTW... it's 1:40 pm here and I'm still in my pj's. Yep, I'm in a mood alright and I'm not dancing.
There are five people here whose posts I always read... whether they apply to me or not. Yours is one of them! Realizing that some days you may be in a mood, your posts nevertheless are always knowledgeable and uplifting.
BTW... it's 1:40 pm here and I'm still in my pj's. Yep, I'm in a mood alright and I'm not dancing.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: P: 6/10 |
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~
Re: So Upset about the Cpap
John,
Thank you for the apology and for being such a mensch.
49er
Thank you for the apology and for being such a mensch.
49er
_________________
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Use SleepyHead |
Re: So Upset about the Cpap
John, stay with us, we need you here! I don't know how many people you've helped with your knowledge. knew as soon as I read your response that you were having some personal stress and I also knew you wouldn't let it stand for long. I'm just a mind reader, I guess! You're one classy guy!
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
- chunkyfrog
- Posts: 34545
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nowhere special--this year in particular.
Re: So Upset about the Cpap
In my diabetes "education" I noticed most of the dietetic horse-puckey was in brochures
that were compliments of a DRUG company.
The room in which the class was held had two vending machines--every last item was JUNK FOOD!
I took everything they said with a grain of salt (and threw the salt away, too.)
John, you are awesome; and sometimes anyone can get a bit frustrated.
that were compliments of a DRUG company.
The room in which the class was held had two vending machines--every last item was JUNK FOOD!
I took everything they said with a grain of salt (and threw the salt away, too.)
John, you are awesome; and sometimes anyone can get a bit frustrated.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: So Upset about the Cpap
'Tis true. The secret, though, is that if I am upset I should remember to NOT click on "Submit" until I've slept on it. I ignored my own advice on that. Ah, well. Some days are more "interesting" than others. Sadly I sometimes go out of my way make them that way!chunkyfrog wrote:... John, you are awesome; and sometimes anyone can get a bit frustrated. ...
[...jbf dusts himself off, looks around sheepishly ... wondering if anyone saw him fall ... and really hopes no one noted it ... and wanders off stage ...]Mary Pickford wrote:You may have a fresh start any moment you choose, for this thing that we call 'failure' is not the falling down, but the staying down.
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
Re: So Upset about the Cpap
Oh gee, thanks! Now I'm going to have to put that in my signature too!JohnBFisher wrote:Mary Pickford wrote:You may have a fresh start any moment you choose, for this thing that we call 'failure' is not the falling down, but the staying down.
Did you fall? Never saw a thing.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: P: 6/10 |
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~