Can't sleep w/o meds.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
zoocrewphoto
Posts: 3732
Joined: Mon Apr 30, 2012 10:34 pm
Location: Seatac, WA

Re: Can't sleep w/o meds.

Post by zoocrewphoto » Tue Aug 28, 2012 12:04 am

Wrong. A 12.5mg Ambien CR will make me fall asleep quicker than usual, but it won't prevent multiple awakenings, even with CPAP. I've tried it.
I agree. Just because something works for one person, doesn't mean it works the same way for somebody else.

I used one of these for my sleep study. I was awake within an hour needing to use the restroom. I slept decently overall. I was asleep most of the night. But I never felt drugged in any way, and I felt completely normal when I woke up and didn't want to call out to get the tech to go use the bathroom. I laid there for at least 10 minutes, awake, thinking about it, before the tech came in and mentioned something about checking a wire. I suspect that, with her experience, she could tell I was awake and people are probably nervous to ask for help, so she broke the ice for me. Later, when she woke me up to hook up the machine, I was easy to awaken, and i remember her suggesting I use the bathroom, and thinking, wow, it only felt like a couple hours, and I am now to to the titration phase (according to the graphs, it was 2 hours and 15 minutes). I awoke on my own a little after 7am, fidgeting. I realized later that it was because I had been in bed for 8 hours. At the time, I was still trying to sleep, and irritated that I couldn't.

I have also been prescribed cough syrup with codeine on two occasions. One time several years ago when I had severe back pain. The nurse told me to expect a long nap. It took me 5 hours to fall asleep, and it never touched the pain. I did better with a regular tylenol and an ice pack. I thought that the pharmacy might have substituted the cough syrup as they first told me they didn't have any and then said they did. This last time was for my cough. Again, I was told it would make me sleepy (by the doctor), and again by the pharmacist. No luck. After two nights of not sleeping any better, but noticing that the cough improved at night, I started using the codeine at work. All day, every day, very 4 hours, for two weeks. Not sleepy at all. Still coughing a bit too. But better than nothing.

About 6 years ago, I was prescribed darvocet at the ER for back pain. No luck there either.

Recently, I was told to take Benadryl for my allergic rash on my arms. The pharmacist told me to take it night as it would make me sleepy. Nope.

Honestly, the only medication I know of that makes me sleep better is a muscle relaxer.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

User avatar
robysue
Posts: 7520
Joined: Sat Sep 18, 2010 2:30 pm
Location: Buffalo, NY
Contact:

Re: Can't sleep w/o meds.

Post by robysue » Tue Aug 28, 2012 1:12 am

AHI15 wrote: I estimate that I sleep 7-8 of the allotted 9-9.5hrs.
So your sleep efficiency ranges from a low of 7/9.5 = .737 (73.7%) to a high of 8/9 = .889 (88.9%). My guess is that you probably feel and function better on a day when you get 8 hours of sleep in a 9 hour TIB than you do when you get 7 hours of sleep in a 9.5 hour TIB. And if we guess that a typical night is probably close to 7.5 hours of sleep in a 9.25 hour TIB, that would mean your typical sleep efficiency is about .811 (81.1%)

My wild guess is that you might feel better in the long run if you tried limiting TIB to something like 8-8.5 hours.
I have ADHD and ADHD people have an average sleep latency of 45 minutes. This is a fact. This complicates sleep hygiene rules which say don't lie for more than 20 minutes. Well, what do we tell ADHD people then?
You adapt the rules: If average latency in the ADHD population is 45 minutes, you replace every "don't lie for more than 20 minutes" in the sleep hygiene rules with "don't lie for more than 40 minutes." And you stress the second part of that "20 minute rule" which is: "You don't lie in bed if you are becoming more awake and less sleepy when you are trying to get to sleep." In other words, given the circumstances, the working good sleep hygiene rule becomes something like this: Don't lie in bed for more than about 40 minutes if you can't get to sleep. Also don't lie in bed if you start to become more awake and less sleepy when you are fighting to get to sleep.
Also, since I wake up at least 2-4 times a night even with the CPAP, and even with a sleeping pill, I have to face the possibility of an ADHD-style sleep latency multiple times a night. So it is very hard to get high sleep efficiency. I might get 70-80% most of the time, with occasional bouts of 85-90%.
If you can sometimes get to 85-90%, then you can learn to get to 85-90% as your average sleep efficiency in the long run.

One part of getting there is, of course, not waking up as often. But another significant part of CBT-I is teaching your body to NOT respond to a small wake by turning it into a big wake. In the non-ADHD and non-insomniac population, average latency to sleep at the beginning of the night is around 20 minutes, but average time to get back to sleep after a middle-of-the-night wake is less than 5 minutes. So since the average ADHD latency to sleep at the beginning of the night is a bit more than twice as long as the average non-ADHD latency to sleep at the beginning of the night, it seems reasonable to assume that a ADHD person without insomnia is likely to get back to sleep in 5-10 minutes after a middle of the night wake. In other words, once you start the CBT-I, you will need some help on figuring out what kinds of things you are doing when you wake up that are turning the expected 5-10 minute wake period into a longer, more significant wake period and what kinds of things you can do to encourage your body to NOT become fully alert and wide awake every time you happen to wake up for no particular reason.
Although, due to not working much these days and thus having less technically complex stuff whirling in my head, I am tending to fall asleep maybe in 20-30 minutes. It is very difficult to be sure of this without EEG, as you certainly must know, we can have drastic mis-perceptions about our sleep time.
Yes, most insomniacs have drastic misperceptions about their sleep: As a group, insomniacs tend to significantly under estimate their total sleep time and over estimate the amount of time they are actually awake while in bed. People without insomnia tend to have pretty accurate estimates of their total sleep time and the amount of time they are awake in bed----even on a "bad" night where they are having some trouble getting or staying asleep for some reason.

There have been some studies (with EEGs) that show part of the problem is that insomniacs seem to have a tough time distinguishing between WAKE and Stage 1 and Stage 2 sleep. One study that I've read had the experimenters waking the subjects at random times during the night and asking them "Were you awake before I came in to wake you up?" Insomniacs woken in Stage 1 and Stage 2 sleep often (as in 40-50% of the time) said they were already awake---even though the EEG indicated they were in Stage 1 or Stage 2 sleep. Non insomniacs seldom said the were awake if the EEG indicated they were asleep.

There's also some evidence that insomniacs and non-insomniacs think (and talk) about their sleep in different ways: Insomniacs use negative descriptions of their sleep---they think about how little sleep they got and how much they tossed and turned during the night. Non-insomniacs use positive descriptions---they talk about how much sleep they got and they don't typically think about the time they were awake at all. Insomniacs also judge the quality of their sleep by comparing it to an idealized standard ("I want to get 8 hours of uninterrupted sleep every single night"), but non-insomnics typically judge the quality only on how they feel when they wake up. If they only got 6 hours and woke up once and then decided to go to the bathroom, but they feel fine in the morning, they don't worry about getting "only 6 hours" of sleep and they don't worry about why they woke up.

And so many CBT-I programs contain a patient education component to teach the insomniac how to set reasonable expectations on what a decent night's sleep looks like in terms of total sleep time and number of wakes. And how their misperceptions about their sleep may be contributing to their problem. And how it is likely that their sleep quality is better (and perhaps far better) than they think it is. And how to use this information to get better, more accurate estimates of the real quality of their sleep.
On Lunesta or another Z-drug sleep aid, I think I have been falling asleep faster, maybe in 15-30 minutes. I seem to drift into a light sleep a few times for just seconds, then wake up and I have to wait again. I keep trying to fall asleep on my back first since it's more uncomfortable and time consuming to fuss with the mask on my side. Though, before CPAP I could ever sleep on my right side no matter what I do.
This again is a behavior pattern that the CBT-I may help you deal with. You are likely falling all the way to Stage 2 sleep at times, and then drifting between Stage 1 and Stage 2 sleep, but your brain winds up perceiving some (perhaps all) of the Stage 1 sleep as WAKE. In other words, it is possible that the period you are remembering as "waiting to fall asleep again" is a mixture of Stage 1, Stage 2, and WAKE.

As far as sleep position: It is well worth the time and effort to figure out how to get as close as possible to your pre-CPAP preferred position for falling asleep. Eventually, getting into position becomes easier---once you solve the problem intellectually. For me: Pre-PAP, I would fall asleep on my side with my nose nestled into my hubby's underarm. There's really no way to do that with a hose. But after about a month or so, I figured out that with the hose I could sleep all night with my head under the covers (another pre-PAP favorite position that was "time limited" by the need to come up for air). And once I started sleeping with my head under the covers, I soon found a good spot on hubby's back and hip that I could snuggle into without bugging him and that gives me the old security I used to get from snuggling into his underarms.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: Can't sleep w/o meds.

Post by Sir NoddinOff » Tue Aug 28, 2012 4:22 pm

robysue wrote:There have been some studies (with EEGs) that show part of the problem is that insomniacs seem to have a tough time distinguishing between WAKE and Stage 1 and Stage 2 sleep. One study that I've read had the experimenters waking the subjects at random times during the night and asking them "Were you awake before I came in to wake you up?" Insomniacs woken in Stage 1 and Stage 2 sleep often (as in 40-50% of the time) said they were already awake---even though the EEG indicated they were in Stage 1 or Stage 2 sleep. Non insomniacs seldom said the were awake if the EEG indicated they were asleep.
I'm totally on board with this theory and, in my case, have empirical data to support it. I get occasional bouts of insomnia and write down in the morning in my sleep journal about how much time I think I slept and the times I was awake. However, when I fire up Sleepyhead and check out my flow and tidal volume lines, I can see that I way overestimated the time I was awake vs sleeping... and by that I mean, I ALWAYS OVERESTIMATE THE TIME I WAS AWAKE VS SLEEPING. Without fail. Usually by about 10 to 20 percent. Crazy

BTW, AHI15, regarding your earlier post:
AHI15 wrote:First of all, the Z-drugs which are the standard sleeping pills these days are not benzodiazepines, though they are similar in effect by being GABA receptor agonists. There is conflicting information about whether or not the Z drugs pose nearly the same physical dependence danger as benzodiazepines. I doubt that Z drugs are as risky, but I still am wary of the idea of taking them continuously for a month or more. That and the fact that I tend to develop tolerance to psychoactive meds very quickly.
I clearly included the phrase "and other Sleep Meds" in the my original statement. If you want to 'bet the farm' that Z-drugs and Benzos are significantly different and that Z-meds are more benign, then that's certainly your privilege... however I do seem to detect a tone of growing concern in your posts as this thread grows. I know you're under a lot of pressure and I sincerely i hope you figure it all out and come to a good conclusion and especially a final result. I've only heard one person on this site say it takes several months to clean your system of sleep meds, including benzos... all the other testimonies state one month max. That was my experience, plus I was functional during the last two thirds. Something to consider.

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

lazer
Posts: 1377
Joined: Fri Apr 20, 2012 1:56 pm
Location: Hermitage, PA
Contact:

Re: Can't sleep w/o meds.

Post by lazer » Thu Aug 30, 2012 10:04 am

Comment to AHI15,

I'm not going to quote it but a few pages back, there was mention of a diet that my prove helpful to you. I can tell you that once my PCP put me on a "Low-Carb" - Not strict Atkins but an Atkins model diet, that I have also felt benefit both physically in how I feel, obviously weight loss - was 168 I'm now 134 and am 5' 6" tall so my BMI is low normal finally. Regardless of my emotional issues that are ongoing (which I mainly attribute to a bouncy emotionally abusive relationship), I am definitely feeling much better looking back to how I was which did include some of your symptoms to a minor degree but still prevalent: Extreme Insomnia, daytime fatigue, unable to concentrate & function properly, ect...

If I were you, I would certainly look closer at your nutrition/diet and strongly consider going to a "low carb" (There are many out there) diet. As you know, I to am frustrated by meds and don't trust them to be a true fix. Yea, they certainly help with one condition for the most part but usually lead to worsening or undesirable side effects regarding other conditions. It's a rough roller coaster as you know bud, I've been there, done that, and am still there regarding the meds.

Good luck!

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead & Encore Basic Software & a Zeo
Image.....................................................ImagePress ESC if the animations BUG you!.....................................................Image

User avatar
Uncle_Bob
Posts: 2777
Joined: Tue Feb 24, 2009 12:10 pm
Location: Arizona

Re: Can't sleep w/o meds.

Post by Uncle_Bob » Thu Aug 30, 2012 10:10 am