CPAP insomnia

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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49er
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Re: CPAP insomnia

Post by 49er » Wed Jun 27, 2012 12:23 am

shb wrote:I've been on 3mg Time release MElatonin each night for about a month now... It helps - but doesn't fix the problem. In that time my ZEO scores have improved on average - but I still get the ocassional score in the 50's . I'm still suffering. I thought about moving to 5mg Time release - so tried taking 2 x 3mg TR - before I ordered.... it resulting in a bad score zeo = 69.. then the next night (back on 1 x 3mg TR) I scored 108 (second highest ever) with a nice architecture and just 3 wakes in 9 hours of sleep... I wish could explain that ? So now I have decided to stick with 1 x 3mg melatonin (time release) before bed. And work on the hygiene factors..

I find paracetamol (a single tablet 500mg) helps get back to sleep...

Also, I have ordered a bottle of 5-HTP tablets - just because lots ppl seem to rave they are great for insomnia. They are likely to take another week or more to arrive. Anyone have any thoughts on 5-HTP ? Or using paracetamol too often ?
I have difficulty staying asleep on the machine and if the usual troubleshooting methods don't work (mask, etc.), I am tempted to try 5-htp. I have seen some weak evidence that it lowers AHI. I am still extremely skeptical but curious at the same time.

I am concerned that I would have difficulty due to being hypersensitive to sleep remedies I have tried in the past when I was trying to get off of psych meds. I never took anything that was contraindicated such as 5htp with an SSRI but I still had difficulties.

If I did try it, personally, I would try as low a dose as possible. Maybe 50mg? Might even split a capsule so I could take less.

Perhaps that is a strategy you want to take with it so you can see how you react. If you have difficulty (hopefully you won't), it will be easier to stop taking.

When you get back to sleep with paracetamol, how is your sleep quality?

Regarding melatonin, I have heard that it is most effective at a low dose (.3 to .5) and should be taken at sundown. Of course, your mileage will vary.

I have never tried taking it before bedtime. Once it got me back to sleep but when I tried to use it again in that manner, I had little success.

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Re: CPAP insomnia

Post by shb » Wed Jun 27, 2012 12:43 am

When you get back to sleep with paracetamol, how is your sleep quality?
Thats the weird thing ! The sleep quality and the sleep architecture (shown by zeo) is great It lasts about 4 hours.. (so if wake at 2.30am it fits nicely).

I've never heard of paracetamol for sleep before..

The melatonin help overall - and the overall zeo score is better from "more sleep" - but it doesn't t seem to help very much with the fragmentation. I only take a paracetamol tab if I wake up - I've thought about taking one every night pre-emptively - but it cant be good for you.

I figure that as my melatonin is time-release - that there is only 3mg in the tab in total -- so therefore the spot dosage would much lower than that, as it dribbles out over 8 hours. I understand it has a fairly low half-life (30-40mins) in the body...

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Re: CPAP insomnia

Post by 49er » Wed Jun 27, 2012 12:55 am

Thats the weird thing ! The sleep quality and the sleep architecture (shown by zeo) is great It lasts about 4 hours.. (so if wake at 2.30am it fits nicely).
That is fantastic. You have convinced this skeptic to give it a shot.
The melatonin help overall - and the overall zeo score is better from "more sleep" - but it doesn't t seem to help very much with the fragmentation. I only take a paracetamol tab if I wake up - I've thought about taking one every night pre-emptively - but it cant be good for you.
How often do you take the paracetamol? Sorry if you mentioned that previously and I overlooked it.

Interesting about the melatonin not helping with fragmentation.

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Re: CPAP insomnia

Post by lazer » Wed Jun 27, 2012 7:31 am

shb wrote:Also, I have ordered a bottle of 5-HTP tablets - just because lots ppl seem to rave they are great for insomnia. They are likely to take another week or more to arrive. Anyone have any thoughts on 5-HTP ? Or using paracetamol too often ?
I had been taking 5-HTP some months ago and it worked rather well. It has other benefits such as promoting "weight loss". I had ran out and found a Melatonin supplement mixed with some other natural substances that has worked a bit better for me. I purchased it at Walmart but I believe you can even find some better deals online. I won't keep naming it unless requested as I'm starting to feel like I'm just promoting something by adding the link. There are a few other discussions I posted the name/brand of this.

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Re: CPAP insomnia

Post by robysue » Wed Jun 27, 2012 2:57 pm

MaxDarkside wrote:
robysue wrote:sleep maintenance insomnia once the most critical stage of the War on Insomnia was over and the insomnia was largely on the run except for some persistent continued waking in the middle and later half of the night.
So you call persistent continued waking in the middle / later part of the nocturnal rest period "sleep maintenance insomnia", yes? I'm having that now and it's not quite but almost bothersome. It's just wake for a few moments, sleep for an hour, repeat, on an hour or two cycle.
Sleep maintenance insomnia is characterized by multiple wakes during the night that are accompanied by one or more of the following: a prolonged difficulty in getting back to sleep after many of the wakes; a vivid and conscious memory of most of the wakes; waking in the morning feeling unfreshed, tired, and like you got little or no sleep during the night; and daytime symptoms such excessive sleepiness, fatigue, and exhaustion that are not caused by other medical conditions.

The WAKES you are describing are NOT sleep maintenance insomnia. You are describing a normal phenomenon of sleep. Most human beings do NOT sleep the night through without any wakes at all. They wake up periodically---usually after a REM cycle or changing from Stage 3 to Stage 2. And they go right back to sleep and never remember waking up once morning comes. The wakes are BRIEF---a few minutes or so at most. And they are both few enough in number and short enough in length that they do NOT adversely affect the overall quality of the full night's sleep.

Your reaction to these wakes (feeling as though the wakes are "not quite but almost bothersome") and the fact that you typically remember them is typical of a person who is finally beginning to get their sleep maintenance insomnia under control. According to the PA who worked so long with me, these small number of "random" post-REM wakes are NOT a problem once they are few in number and no longer bother you.

Keep working on "Not letting these wakes bother you". You're at the stage where it's useful (although difficult) to quit worrying about them. So quit trying to track them and quit trying consciously to remember them all. Your goal at this point is not to eliminate the wakes; your goal is to eliminate your memory of the wakes. Best of luck in finishing this last task in battling the insomnia monster.

And just to clarify what I meant when I wrote:
robysue wrote:sleep maintenance insomnia once the most critical stage of the War on Insomnia was over and the insomnia was largely on the run except for some persistent continued waking in the middle and later half of the night.
The first, most critical stage of the War on Insomnia was to get my body to be willing to fall asleep within 5-10 minutes of climbing in bed and slapping the mask on AND to get my body to feel sleepy enough to go to bed by 1:30 AM every night. I needed that short latency to sleep because many of my sleep problems and my CPAP adjustment problems were related to and aggravated by the severe bedtime insomnia I had at the time. Lying in bed for even as little as 30 minutes or so with the mask on will trigger aerophagia and serious anger issues for me. Neither of which helps me get a good night's sleep even if my AHI = 0.0. (Side note: There's been some serious back sliding on the bedtimes recently; but at least when I do go to bed, I'm wanting to get in bed; and masking up no longer triggers the anxiety and anger and I am able to get to sleep quickly enough to help prevent the aerophagia.)

The time frame that I was writing about in this comment was after that first phase of the War had been won. I was consistently getting to bed between 1:20 and 2:00 and getting to sleep within 5-10 minutes of going to bed and I was consistently getting up right around 7:30 am with only a minimum amount of difficulty. But I was still having persistent wakes in the middle and later half of the night that were bothersome on many, but not all, of the nights; I was finding that getting back to sleep quickly after these wakes was still a hit or miss thing and there was always the fear that I would not get back to sleep; I still was regularly waking up in the morning feeling as though I was tossing and turning during the whole second half of the night a lot of the nights; and I still had pretty solid memories of each of the wakes in the second half of the night; and I was still dealing with excessive daytime sleepiness.

But things were on the mend and the insomnia was on the run: Because also at that time I could tell that I was just barely beginning to not remember every single wake with clarity; beginning to get back to sleep very quickly after most of the wakes; beginning to feel as though the wakes were no longer being a major disturbance to the overall subjective quality of my sleep; and beginning to wake up somewhat rested and refreshed on many days inspite of the sleep restricted schedule. Unfortunately I also had reached something of a plateau----things were no longer noticeably improving on a monthly basis---most likely because this was also in the middle of unsuccessful trials of two different migraine meds that aggravated my existing sleep problems The sleep doc's PA suggested that I try melatonin as a way of kick-starting the progress I'd been making over a about a three month period of serious CBT work rather than floundering around on the plateau of no additional progress.

And so I tried the melatonin. And as for the first couple of weeks, I really didn't notice much difference except that the memory of the wakes was growing a bit foggier and fainter. But I was also waking up with much more TMJ pain and actively chewing my way through a brand new TMJ guard that was less than a month old. And then---after being taken off the last of the migraine prophylactics and being fired by sleep doc#1 and being told by my dentist that he was no longer comfortable treating my TMJ issues because of just how quickly I destroyed the new night guard, the psychologist told me that melatonin can increase TMJ problems in some people and that maybe I should stop taking it. So I did. And the foggy memories of the wakes did not become less foggy. Instead, they continued to stay pretty foggy most of the time.

And now? During my second summer since starting the War on Insomnia on Dec. 31, 2010? Well, bedtime still remains a problem in the summer time. I'm a college professor and I don't teach in the summer. So my night owlish tendencies WANT to manifest themselves and I find it difficult with no-one to be held accountable to to maintain that rigorous wake up time/bedtime schedule that my body really wants, but that my brain does not want.

But the sleep maintenance insomnia issues? I can honestly say that while I continue to wake several times each night, I don't feel as though I've got sleep maintenance insomnia any more. More often than not, I only have vague memories of one or two wakes even when it's clear from the combination of Kaa data and Zeo data that I woke up at least 3-5 times (or more). I now routinely wake up, feel the tummy not quite comfortable, reach over and turn Kaa off and then back on to make sure my pressure is set back to 6/4 and snuggle back down and get back to sleep within two or three minutes judging from the wave form data and the Zeo data. And I don't remember doing any of this in the morning. I only know the wakes happened because of the session data in Kaa. And the part of the Zeo data that seems more believable. (The Zeo seems to mis score a lot of my REM as WAKE.)

And the wakes that I vaguely remember? Usually it's caused by one of the following: Waking from a remarkable dream that the brain wants to recall in the morning, so I'll wake up and focus on the dream in an attempt to get it into my memory; waking up very close to 7:30, even though I plan to sleep until 8:30 or 9:00 these days; waking up exceptionally HOT or COLD so that I have to do some major work in rearranging the covers just to get comfortable. None of those wakes and their faint memories really qualifies as sleep maintenance insomnia any more.

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Re: CPAP insomnia

Post by robysue » Wed Jun 27, 2012 3:20 pm

shb wrote:I've been on 3mg Time release MElatonin each night for about a month now... It helps - but doesn't fix the problem. In that time my ZEO scores have improved on average - but I still get the ocassional score in the 50's . I'm still suffering. I thought about moving to 5mg Time release - so tried taking 2 x 3mg TR - before I ordered.... it resulting in a bad score zeo = 69.. then the next night (back on 1 x 3mg TR) I scored 108 (second highest ever) with a nice architecture and just 3 wakes in 9 hours of sleep... I wish could explain that ?
shb,

Are you basing your assessment of the quality of your sleep on how you feel each morning before you look at the Zeo score or the Zeo score itself? If you are deciding the quality of your sleep based solely or mainly on the Zeo score, you are letting the tail wag the dog.

Keep in mind that the Zeo only gives an approximation of your sleep cycles. It has trouble distinguishing WAKE, REM, and LIGHT sleep. And even according to its manufacturers, if the Zeo is scoring a lot of WAKE at times you don't remember being awake, the best interpretation is that the WAKE is really misscored REM or LIGHT sleep. And of course, that misscored REM in particular works against the "reported" Zeo score since WAKE reduces the Zeo score and REM increases it even more than LIGHT sleep does. In other words, if the Zeo is misscoring a lot of REM, the reported Zeo score is going to be a lot lower than the "true" score.

And sheesh, why do you think that a Zeo score of 69 is bad? On the best of my nights, my Zeo score is in the upper 60s. Typically it's in the 50s or low 60s. If it misscores a lot of REM or drops the signal outright, it can easily be in the mid to low 40s.
So now I have decided to stick with 1 x 3mg melatonin (time release) before bed. And work on the hygiene factors..

I find paracetamol (a single tablet 500mg) helps get back to sleep...

Also, I have ordered a bottle of 5-HTP tablets - just because lots ppl seem to rave they are great for insomnia. They are likely to take another week or more to arrive. Anyone have any thoughts on 5-HTP ? Or using paracetamol too often ?
My humble advice?

Quite looking for a magic bullet pill to take to "fix" your insomnia and start working on the sleep hygiene factors. In the long run, it's the sleep hygiene that will make the difference. And working on the sleep hygiene is cheaper too.

And develop some reasonable expectations of what normal sleep looks like. You probably DON'T need nine or ten hours of sleep every single night. You probably do need seven to eight. The super high Zeo scores are only going to happen when you sleep for excessively long periods of time.

A truly good night's sleep is NOT defined by just how long you slept. It's defined by sleeping for an appropriately long enough period with enough REM and DEEP (Stage 3) sleep and a very few, very short wakes. Taking 15-20 minutes to get to sleep, having three five-minute long wakes in an eight hour sleep window, and getting 1.5-2 hours of REM and 1-2 hours of DEEP is considered exceptionally healthy, high quality sleep. But it's not going to give you a 100+ score on the Zeo data.

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Re: CPAP insomnia

Post by MaxDarkside » Wed Jun 27, 2012 7:56 pm

robysue wrote:Keep working on "Not letting these wakes bother you". You're at the stage where it's useful (although difficult) to quit worrying about them. So quit trying to track them and quit trying consciously to remember them all. Your goal at this point is not to eliminate the wakes; your goal is to eliminate your memory of the wakes. Best of luck in finishing this last task in battling the insomnia monster.
This is almost exactly backwards for me. I used to sleep though the night, other than for a time starting on xPAP which was a disturbance getting used to the mask, but pretty much cured in a couple weeks and that was not insomnia, just merely an adjustment. Even with that adjustment, I slept through the night. I've never had insomnia, not once, except maybe Christmas Eve as a kid So I'm not at the "last task" of battling an insomnia monster, but these wakes are new, some sort of beginning. I'm guessing we are talking about 2 different things. It may be that my "sleep cup" is getting full, I'm charged up and REM is busting me out of sleep. So now at around 3-3:30 AM, I wake, sleep an hour, wake, sleep an hour, etc... and after 4-5 of these cycles, if it's 6 AM (about 6 hrs sleep) I just get up and drag my butt some.

I'll check to see if these wakes correlate to REM. Good idea. Thanks.

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Re: CPAP insomnia

Post by JointPain » Wed Jun 27, 2012 9:04 pm

I've found that playing an audio book to be a really, really good way to get me to sleep and keep me there, at least subjectively. I find the dull monotonous voice droning along in the dark very good at inducing sleep. (I am not so sure about it being a good way to appreciate books.) I can just play the same book over and over again, because I hardly retain any memory of it.

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Re: CPAP insomnia

Post by robysue » Wed Jun 27, 2012 9:05 pm

MaxDarkside wrote:I used to sleep though the night, other than for a time starting on xPAP which was a disturbance getting used to the mask, but pretty much cured in a couple weeks and that was not insomnia, just merely an adjustment.
Chances are you woke up several times each night, but they were such short wakes that you didn't remember them in the morning.
E've never had insomnia, not once, except maybe Christmas Eve as a kid So I'm not at the "last task" of battling an insomnia monster, but these wakes are new, some sort of beginning. I'm guessing we are talking about 2 different things.
Sorry about that. I do have trouble keeping straight who has insomnia and who doesn't. If these wakes are NEW, then that is the beginning of a potentially bad pattern Any stress going on in your life? Even good stress can affect your sleep and bad stress can play short term havoc with your sleep.

If I were you, I'd tighten up a bit on some sleep hygiene. I'd start with making sure the caffeine is under control. (I can't remember if you already don't do caffeine or not.) I'd look at when supper is relative to bedtime and what I'm eating. I'd look at what I eat for any bedtime snacks. And I'd give up alcohol temporarily to see if that helps. And I'd make sure the clock is not the first thing I see when I wake up during the night.
It may be that my "sleep cup" is getting full, I'm charged up and REM is busting me out of sleep. So now at around 3-3:30 AM, I wake, sleep an hour, wake, sleep an hour, etc... and after 4-5 of these cycles, if it's 6 AM (about 6 hrs sleep) I just get up and drag my butt some.
The arithmetic doesn't add up here. If you sleep reasonably soundly until 3:00 or 3:30 and then you go through 4 or 5 cycles of wake; sleep an hour and wake again" it would be between 7:00 and 8:00 when you "just get up and drag your butt" out of bed.

Out of curiosity: When is bedtime? When is wake up time supposed to be? And how much total sleep do you think you are getting during the night?

I do think, however, that you probably are waking up post REM much of the time. And working on learning how to ignore these wakes and go back to sleep without focusing on them is still what you probably need to do. The more you worry about them and focus on them, the longer they will likely continue.

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Re: CPAP insomnia

Post by MaxDarkside » Wed Jun 27, 2012 9:37 pm

robysue wrote:Chances are you woke up several times each night, but they were such short wakes that you didn't remember them in the morning.
This is undoubtedly true, for sure before xPAP (I think it was 98 arousals/6 hrs in sleep study), maybe some after. Most of those were not sensed.
Sorry about that. I do have trouble keeping straight who has insomnia and who doesn't. If these wakes are NEW, then that is the beginning of a potentially bad pattern Any stress going on in your life? Even good stress can affect your sleep and bad stress can play short term havoc with your sleep.
No worries. Hard to keep track of all of us here. "A potentially bad pattern" is why I'm mentioning it and your "sleep maintenance insomnia" sounded sorta like this. There's some stress, but a healthy level... deadlines at work, but well in hand, wife isn't better, but we know she's not in a life threatening situation in the near term. Now that I have my apnea clusters under control, I'm "theoretically" sleeping even better, except for this.
If I were you, I'd tighten up a bit on some sleep hygiene. I'd start with making sure the caffeine is under control. (I can't remember if you already don't do caffeine or not.) I'd look at when supper is relative to bedtime and what I'm eating. I'd look at what I eat for any bedtime snacks. And I'd give up alcohol temporarily to see if that helps. And I'd make sure the clock is not the first thing I see when I wake up during the night.
It could be I need to continue to work on the sleep hygiene. Caffeine is under control, tho I could cut back a bit more and earlier in the day. I've been experimenting with alcohol's effects, but not much, about 1 oz, and now for the next month, none. We'll see what happens. I do see a clock, but will remove it, tho I rely on it telling me which of the sleep/wakes should be the last. I may need to resort to an alarm, maybe Zeo's "correct timing" so I'm not trying to figure out when to get up.
The arithmetic doesn't add up here. If you sleep reasonably soundly until 3:00 or 3:30 and then you go through 4 or 5 cycles of wake; sleep an hour and wake again" it would be between 7:00 and 8:00 when you "just get up and drag your butt" out of bed.
I realized that after I wrote it, it's because the cycling sometimes starts earlier. It normally has been around 3 AM, but the other night it started at 1:30 AM, about an hour and half to 2 hrs after going to sleep. Normally it's about at 3 AM (a notorious REM time we might note, a bewitching hour) and then 4 AM, 5 AM, 6 AM, 7 AM... "OK, enuf, I'm getting up already". Repeat each day, shifting times around +/- half an hour.
Out of curiosity: When is bedtime? When is wake up time supposed to be? And how much total sleep do you think you are getting during the night?
Sometimes it's lights out at 11:30, sometimes closer to 12. This is normal and is OK. My time-to-sleep is very short, just a few minutes (think: very mild narcolepsy). I wake when I'm ready to get up, I have crafted a flexible work schedule. Total sleep is 7 hours per night, lately very consistent and the "hourly" wakes are very brief, like a few seconds, but fully remembered. This is more than an murky arousal, I pop nearly fully awake, at least clearly aware, adjust and fall right back to sleep probably in seconds again. The Zeo rarely catches them.
I do think, however, that you probably are waking up post REM much of the time. And working on learning how to ignore these wakes and go back to sleep without focusing on them is still what you probably need to do. The more you worry about them and focus on them, the longer they will likely continue.
Like I said, I'll see if I can correlate them with REM. Maybe so. I'm traveling for a while, xPAP only, no geek gear, so later after I get back home I'll try to correlate it. It may be that I'm so well rested now with everything dang near 100% in control that I've become a lighter sleeper now. I'm not worried, it's just a little bothersome and I'm wondering what is going on.

Thanks.

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Re: CPAP insomnia

Post by MaxDarkside » Thu Jun 28, 2012 4:57 am

It didn't happen last night. I live in 2 places. I'm in "Location A" now, I was in "Location B". Location A has better climate control. It might be due to temperature, or alcohol, or change in diet (I ate a lot of restaurant meals yesterday) or not having enough stress (traveling, even tho I have 2-3 million miles in the airline seat still causes me some stress).

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Re: CPAP insomnia

Post by robysue » Thu Jun 28, 2012 8:29 am

MaxDarkside wrote:It didn't happen last night. I live in 2 places. I'm in "Location A" now, I was in "Location B". Location A has better climate control. It might be due to temperature, or alcohol, or change in diet (I ate a lot of restaurant meals yesterday) or not having enough stress (traveling, even tho I have 2-3 million miles in the airline seat still causes me some stress).
Good to hear that the wakes didn't happen. Maybe the incipient insomnia has run its course---the way a bad head cold will. Most run of the mill insomnias will go away on their own---particularly if they are being fed by a bit of extra stress once the stress is alleviated.

Stress and dietary influence sleep far more than most people realize. If it's stress related, as the stress returns to normal, so should the sleep.

If it's dietary (including caffeine), the sleep should get better with a bit of time with an appropriate change in diet.

The important thing is to chill out about the wakes unless they keep going on for a month or so OR unless they start clearly interfering with the overall quality of the sleep. A few wakes (which is what you are describing) that are very short (which is what you are describing) is not a problem. But vividly remembering the wakes is a potential problem. And getting frustrated with the wakes is a potential problem because you can worry yourself and "frustrate" yourself into feeding a little baby insomnia monster so that it grows up into a big, adult insomnia monster.

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