Had the surgery, still need CPCP

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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sleepygirl4278
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Had the surgery, still need CPCP

Post by sleepygirl4278 » Tue Mar 14, 2006 5:12 pm

I had nasal and throat surgery in May and still have to use CPAP and I can't get use to it still. The surgery left me with "lettace throat" opened nose to everything. I was diagnosed two years ago and think I need meds to help me sleep an deal with it. Any help out there for me?


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tomjax
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surgery success

Post by tomjax » Tue Mar 14, 2006 5:48 pm

Many report after surgery that their results were not all that great.
Not sure if this is due to surgeons eagerness to do what they do for a living, but the truth is that they have your money and you still have your problem.
They will have many practiced answers when you go back, but the problem remains. The fault is never theirs.
For fun. look at their definiton of success. It is usually a 50 pct reduction of symptoms. You may be a surgical success, but you still need PAP.

IMHO, the younger a doc, the more eager they are to operate.
Most docs depend on dumb and gullible patients like DMEa recommending a mask.

IMHO. surgery should be a very last option, not a first.
I could be wrong

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johnnygoodman
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Post by johnnygoodman » Tue Mar 14, 2006 10:14 pm

sleepygirl,

Unfortunately, you are not the first or even 100th person to come through here complaining of the same senario. CPAP is the gold standard of OSA treatment for a reason - if you work on it, it will work for you.

You say that you can not get used to CPAP treatment. Your back is against the wall now and you should consider giving CPAP another go. Which equipment are you using? Where are you having the trouble (the mask, the pressure, dryness, side sleeping, etc,etc)?

A lot of times if you post specifics then the people on the board those who have dealt with the same thing can post very helpful advice.

You are in the right place! Keep positive and you can make this work!

Johnny


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Post by Guest » Tue Mar 14, 2006 10:16 pm

I had the surgery back in 2001. My apnea returned due to throat muscles reverting so I started CPAP about 6 months ago. I'd say I use it about 65% of the time, usually when I take an Ambien CR. I have LOTS of trouble falling asleep with the machine without the drug (this sux).

I do not recommend the surgery for anyone as it was extremely painful and the recovery harsh. When I realized it didn't take care of my OSA, it became even more disappointing.

The best plan for me is to lose weight to get the cm2 number as low as possible and deal with CPAP. Considering lap band surgery to maybe get rid of CPAP altogether. Anyone had it? Curious to hear feedback...


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sleepylady
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Post by sleepylady » Wed Mar 15, 2006 9:26 am

Sleepygirl,

Do you know why you can't fall asleep with the machine on? Is it the noise? If so then ear plugs if you need absolute silence helps. OR white noise of some type. I had problems in the beginning, but when I started using a sound machine it helped greatly. Could it be the position you sleep in? I'm asking that because I'm a tummy sleeper and before my Aura, I couldn't sleep on my stomache and so it took a long time to fall asleep.

Melinda


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BP
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Post by BP » Wed Mar 15, 2006 11:26 pm

sleepygirl4278, yes, tell us what can't you deal with, specifically. I think we can help, but we need to know the specifics.

-BP