First night on CPAP did not go so well :Update- a breakthru!

With the new SD card...what does it show for data for the nights prior to the 22nd?
Hours of use only again?
If so....I am wondering if they have changed the internal storage option thing on the newer models and we weren't made aware of it. I know for a fact that I was able to retrieve prior graphs when I did just what I told you to try with my PR S1 APAP...because I specifically experimented to see how many days lapses before stuff was overwritten and it was about 3 weeks...certainly not 1 day.

Pugsy wrote:With the new SD card...what does it show for data for the nights prior to the 22nd?
Hours of use only again?
If so....I am wondering if they have changed the internal storage option thing on the newer models and we weren't made aware of it. I know for a fact that I was able to retrieve prior graphs when I did just what I told you to try with my PR S1 APAP...because I specifically experimented to see how many days lapses before stuff was overwritten and it was about 3 weeks...certainly not 1 day.

All other data since the 7th of May when I started is still there but I'm wondering to properly test, should I make a "Test" profile in SleepyHead?

lazer wrote:

Pugsy wrote:With the new SD card...what does it show for data for the nights prior to the 22nd?
Hours of use only again?
If so....I am wondering if they have changed the internal storage option thing on the newer models and we weren't made aware of it. I know for a fact that I was able to retrieve prior graphs when I did just what I told you to try with my PR S1 APAP...because I specifically experimented to see how many days lapses before stuff was overwritten and it was about 3 weeks...certainly not 1 day.

All other data since the 7th of May when I started is still there but I'm wondering to properly test, should I make a "Test" profile in SleepyHead?

Well I did what I just thought about above and something really strange happened. Fresh import to a "Test" user in SleepyHead produced:

No Data/Brick for the 7th - 11th.

Complete Data & Graphs for the 12th - 23rd(current) including that missing 22nd.

Nothing makes sense now.

lazer wrote: Complete Data & Graphs for the 12th - 23rd(current) including that missing 22nd.

Nothing makes sense now

Welcome to the crazy world of cpap therapy. Aliens...they mess with us all the time and we don't know it.

Test the new SD card in your Encore...try it first with existing user profile and if no joy..try it with a new user profile.

Your DME is only going to care about hours of use most likely....but he is using Encore for sure and if you see it in your Encore then he will have the other data and I am back to my original...it doesn't matter which SD card is used. SleepyHead is great software but it is Beta and it is not perfectly stable (no software ever really is but beta versions are just going to have more bugs).

Pugsy wrote:

lazer wrote: Complete Data & Graphs for the 12th - 23rd(current) including that missing 22nd.

Nothing makes sense now

Welcome to the crazy world of cpap therapy. Aliens...they mess with us all the time and we don't know it.

Test the new SD card in your Encore...try it first with existing user profile and if no joy..try it with a new user profile.

Your DME is only going to care about hours of use most likely....but he is using Encore for sure and if you see it in your Encore then he will have the other data and I am back to my original...it doesn't matter which SD card is used. SleepyHead is great software but it is Beta and it is not perfectly stable (no software ever really is but beta versions are just going to have more bugs).

Spot on! Aliens in SleepyHead Tried in Encore and all is well.

On a side note, I searched out the "Test" profile created in /Documents/SleepyHead , found the files needed for the missing day in my profile, copied them over and got the data back consistent to present.

Bugs can be annoying but I still much prefer SleepyHead as opposed to EncoreBasic.

lazer wrote:Bugs can be annoying but I still much prefer SleepyHead as opposed to EncoreBasic.

Yep, same here. Right now I am using the ResMed machine and I will open ResScan and import every 5 or 6 days to make sure it is stored in there but for report evaluation I just prefer SleepyHead. Even with the bugs.

You are feeling guilty about being in the "forbidden area" using software and knowing the inner workings of your machine and knee jerk reaction is that you have messed something up and there really isn't anything you can mess up just by looking.
Try not to be such a worry wart.

Pugsy wrote:...You are feeling guilty about being in the "forbidden area" using software and knowing the inner workings of your machine and knee jerk reaction is that you have messed something up and there really isn't anything you can mess up just by looking.
Try not to be such a worry wart.

I will admit. I do tend to worry a lot, especially lately about all kinds of things. I think I need my meds adjusted, seriously...

lazer wrote: I do tend to worry a lot, especially lately about all kinds of things. I think I need my meds adjusted, seriously..

That's okay. I am the opposite and sometimes I should worry.

Hey...do you know birds? I mean wild birds like babies? I found one that must have fallen out of his nest and I am nursing it.
Still getting his feathers and can't tell what kind he is. Not a song bird for sure as he/she appears to be more brown/black with long legs. Still fuzzy pin feathers mostly and bare skin other places.
When he/she is hungry....might be a crow I suppose because really vocal. Hand feeding about every hour right now.
Driving the dogs nuts... they actually pay more attention to the bird than the cats do.

Pugsy wrote:

lazer wrote: I do tend to worry a lot, especially lately about all kinds of things. I think I need my meds adjusted, seriously..

That's okay. I am the opposite and sometimes I should worry.

Hey...do you know birds? I mean wild birds like babies? I found one that must have fallen out of his nest and I am nursing it.
Still getting his feathers and can't tell what kind he is. Not a song bird for sure as he/she appears to be more brown/black with long legs. Still fuzzy pin feathers mostly and bare skin other places.
When he/she is hungry....might be a crow I suppose because really vocal. Hand feeding about every hour right now.
Driving the dogs nuts... they actually pay more attention to the bird than the cats do.

Not too sure on wild birds to be honest with you. I know for baby domestic birds - Parrots, ect... you need to use a syringe and feed a special formula. Just make sure if you are using a syringe, you just sorta place it in the lower beak and tilt it slightly, don't cram it down their throat because you can damage the crop. I actually got my African Gray a week early from being totally weened and the breeder taught me how to hand-feed which I had to do for approximately a full week. She was already eating seeds & pellets, veggies, ect... but not enough.

Edit: Also if feeding any type of formula or soft food via the syringe, it's important for it to be warm but not warm/hot enough to burn your lips.

lazer wrote: you need to use a syringe and feed a special formula

Well....I am using my finger and canned cat food.
I didn't have access to anything else out here. Raised a robin years ago same way. I figure momma brings him protein in the form of bugs and stuff so I give him protein. Human baby food works too. I just didn't have any handy.

Speaking of babies...he is squawking again. Gotta go feed him/her and then get to town and I will get something a little less rich for the little guy. Though he/she seems to be doing quite well. Poop is nice normal bird poop. Eats, poops, eats some more and then takes a nap. Just like human baby. Tiny little thing except for those legs and when he stretches out they are 3 or 4 times a long as his body.

Ok, I really cranked the chinstrap tight last night - tired of the mouth leaks. I slept well as far as I know and through the entire night (briefly got up in the morning, went to the bathroom then crawled back in bed for a couple hours since it's the weekend...) Anyhow. It recorded my highest AHI yet.. Is there any correlation with my mouth not coming open to make sense of this?

lazer wrote:Ok, I really cranked the chinstrap tight last night - tired of the mouth leaks. I slept well as far as I know and through the entire night (briefly got up in the morning, went to the bathroom then crawled back in bed for a couple hours since it's the weekend...) Anyhow. It recorded my highest AHI yet.. Is there any correlation with my mouth not coming open to make sense of this?

What chin strap are you using? If it is not positioned correctly it may be pulling your jaw back, which might contribute to the flow limitations and "apneas" or "hypopneas." How did you feel when you finally got out of bed? I have found it is actually quite difficult to tell if I am mouth breathing, or if it is a positional leak thing - when I change positions, am I disturbing my nasal pillows, causing a leak? I use the Ruby Red chin strap - when I first got it I hated it because it was "too tight" (no adjustments possible once you choose your size). However, it stretched a bit, or I got used to it. Now it is "wonderful" because it is helping with getting my AHI way down.

Your max pressure was only 14, but your range is set for 6 to 20. To me, as an uneducated viewer, all that snoring suggests that your lower pressure may be too low, and the machine takes too long to respond to eliminate those events. I think you really need to talk with your sleep doc about narrowing the range, and then working on whether you have the right mask and have it adjusted right for you - the adjustments are very personal, and take quite a while to figure out, so you will need to be persistent.

SleepyToo2 wrote:What chin strap are you using? If it is not positioned correctly it may be pulling your jaw back, which might contribute to the flow limitations and "apneas" or "hypopneas." How did you feel when you finally got out of bed? I have found it is actually quite difficult to tell if I am mouth breathing, or if it is a positional leak thing - when I change positions, am I disturbing my nasal pillows, causing a leak? I use the Ruby Red chin strap - when I first got it I hated it because it was "too tight" (no adjustments possible once you choose your size). However, it stretched a bit, or I got used to it. Now it is "wonderful" because it is helping with getting my AHI way down.

Your max pressure was only 14, but your range is set for 6 to 20. To me, as an uneducated viewer, all that snoring suggests that your lower pressure may be too low, and the machine takes too long to respond to eliminate those events. I think you really need to talk with your sleep doc about narrowing the range, and then working on whether you have the right mask and have it adjusted right for you - the adjustments are very personal, and take quite a while to figure out, so you will need to be persistent.

The chinstrap is a Philips Respironics (Premium Chin Strap) - That's according to the manual that came with it. My DME gave it to me a few days ago. Felt ok getting out of bed - nothing spectacular or nothing really bad. I am also thinking my lower pressure needs raised again. The DME had started me at 4 which after about a week I had him bring it up to 6 because it was uncomfortable breathing when falling asleep. I actually don't have a sleep doc. I'm strictly working with my PCP, DME, and the knowledge I get on this forum. I do feel the initial pressure could be raised atleast another 2cm up, maybe even 3 to make it 9.

Thanks for the input!

PS: Last night was pretty much the same story. My AHI while a little lower was still at a bit higher avg pre-chinstrap... 2.58 Oh, and wouldn't you know the power went out around 6:40 am which promptly woke me up.. So I just got out of bed and started doing yard work... A squirrel got in a transformer just up the road I guess. Power was restored around 9 am.

I would suggest to my physician that the range for your pressures should be much closer together. Unless you are having difficulty breathing on the 9, I would ask if the maximum pressure could be lowered - try it 1 or 2 cm at a time and assess for at least a week. Some people have even suggested that your pressure range should be from 2 below to 2 above your titrated optimal pressure. Discuss that idea with your doc ...

Your "high" AHI would be considered great for some people. Almost a third of it is clear airway which we don't do anything about in these low of numbers.
I know you are waiting till you get things sorted out with insurance but I really think that once you can raise that minimum pressure a bit you are going to see a rather significant change in your reports.
Did the chin strap make any difference? Who knows. You would need many more nights using it to evaluate a trend if there is one.

Also, your pressure might stabilize more once you have a little more minimum.
Unless the pressure variations are disturbing your sleep there is no need to reduce the maximum because the machine only goes where it needs to go and if it doesn't reach the max it is a moot point. The responses are limited to the pressures it reaches...not the pressures to where it could go.