I do have a portable swamp cooler that I can put ice cubes in but it has to be refilled every 4 hours and actually is a huge pain in the you know what and is why I got the small room air cond. Also, I have no room in my bedroom to put it much less an outlet to plug it into. I hate this house (and this area), but am stuck with it as I'm $20,000 in the hole due to the market - so can't sell. But at least I have an affordable house note (under $500). It does, however, leave much to be desired now that I have all this equipment to plug in. I hate hot, always have which I why I loved my time in the Sierras, but now I have to deal with hot. Actually if I could stop this hair loss thing I would be happier person dealing with hot (even as I walk around with this tissue plug in my nose due to the wind burn I got from upping my EPAP to 14.5) .
You know, I started this willing to do what i had to in order to feel better and get my life back. And it seems no matter what I do, I'm just switching one thing out for another. So, I get to live longer, but I get to live longer in pain and discomfort and a lesser quality of life in many ways. I guess I have to reach a point of acceptance difference from the acceptance I had in the beginning. My whole life seems to center on this sleep apnea stuff. I know compare to others I am fortunate but even knowing that, I am getting to the point that i hate it. I didn't in the beginning. I'm a person who does whatever needs to be done to make things better for me. And as I wrote in another response, no time to grieve the things I've lost or gone through. I just do what needs to be done and keep moving forward. And now I'm at a problem that no matter what I'm doing I really dont' get better, even if my numbers are better. I do know that just about all my other health issues are due to this sleep apnea and sleep deprivation. I guess before, I thought I was getting good nights sleep because I wasn't aware of wakefulness. Now though, I'm aware that I'm not sleeping well and yet I'm doing what has to be done. What other choices do I have? None.
Thanks again for your very understanding response.
robysue wrote:Although I never had to face the problem you've got with broken hair, everything else you've said here could easily have been written by me in May or June 2011 when I was 8-9 months into therapy. But things finally started to turn around for good in late June. There was still a lot of two steps forward, one step back progress during last summer and even into the fall. But once I could finally say I was feeling better with CPAP on some days every single week than I'd felt pre-CPAP, I finally was able to start the hard work of taking my life back from the OSA/PAP + Migraines + TMJ taking over my life.macewa wrote: I will do that I'm sure, but if really upsets me that to deal with this sleep apnea I have to do so many things that are not to my liking, i.e. having to wear something to try and keep my hair from breaking off, meaning I wear even more stuff to bed. Now having to move to my living room and who wants all this "you know what" in their living room and my living room is not that large.
This OA has totally taken over my life. I guess no matter what, I really will never get my life back. I so totally understand why people walk away from this. I wish I could say that things are better 7 months into this, but it's not. I just seem to get worse. One thing seems to get solved and another or two pop up.
So---if you can come up with some workable solutions for getting through the summer, I think you'll find that things will eventually start to get better.
I'd be reluctant to move out of the comfortable bed until the heat really does become unbearable. A silly sounding, but seriously offered idea: Maybe you could put ice cubes in the humidifier and use it on passover mode so the ice doesn't melt too fast?My charts are better, but now I'm losing my hair and look like crap, have pain during the night, still not much energy, and now having to move out of my comfortable bed to the uncomfortable sofa bed.
Again, I understand how much you hate the whole CPAP thing now. My own hatred re-emerged over Easter weekend for reasons that are not completely clear. It had been several months since I'd had that much dislike of the whole CPAP thing (along with my osteoporosis diagnosis). And sometimes you need to whine. And there's no need to apologize for it.I'm still on Ritalin so I don't fall asleep during the day and now take pain meds at night and I had surgery on my deviated septum in hopes it would help. No one I know in "real" life has these problems with their apnea. I know people are going to say I'm whining and it's better than being dead; but I hate it now and I didn't in the beginning. I was so optistimistic and eagar to do what was needed. You know, it's bad enough to have to wear all this freaking stuff, but all the other just adds insult to injury.
The thing is, you'll continue doing what you need to do simply because you have to. And we'll continue to be here to help you get through the tough stretches ahead as you figure out how to deal with everything + the heat and humidity.
