Let's clear up some misinformation

Thank God with that Have a Great Day are you leaving.

ltts wrote:

BlackSpinner wrote:

ltts wrote: Of course I agree that the data is important. But any machine with an SD card slot is capable of collecting data. I'm also not saying that patient's shouldn't have autoset systems or systems that monitor your AHI (for as accurate as those machines are). What I am saying is you should not expect your DME provider to buy those extra features for you simply because your insurance company doesn't deem it a necessity. Why is that so difficult to understand?

Right! that proves you no absolutely NOTHING about cpap machines. You are not qualified to offer any information. Crawl back into your little hole and pull the manhole cover over it.

Uh huh, I have a degree as an RCP, and 27 years experience in the field, and I "no absolutely NOTHING about cpap machines" (it's know, by the way, not no). Yet the fact remains that a compliance data capable machine is a data capable machine (and your DMEs are not lying to you simply because they don't speak the special lingo you have developed here at cpaptalk).

If you want special features you should really try to learn what they are called. Have a great day!

And you are an idiot. Compliance data is useless for treatment purposes. I have 40 years experience in the software industry I know "data" inside out. Your total ignorance in the needs of patients and game playing with words shows just what kind of troll you are. You may have a degree in some related field but it is obvious worth less then toilet paper and it is OLD and out of date.

You are nothing but a pimp for the industry

BlackSpinner wrote:

ltts wrote: Of course I agree that the data is important. But any machine with an SD card slot is capable of collecting data. I'm also not saying that patient's shouldn't have autoset systems or systems that monitor your AHI (for as accurate as those machines are). What I am saying is you should not expect your DME provider to buy those extra features for you simply because your insurance company doesn't deem it a necessity. Why is that so difficult to understand?

Right! that proves you no absolutely NOTHING about cpap machines. You are not qualified to offer any information. Crawl back into your little hole and pull the manhole cover over it.

9 pages of "deluxe" crap. This forum and the education and support provided has saved most of us from being part of the 50% of failures in this country. If only they had been given "data capable machines" and taught how to use them! And how can you compare a man who needs a "deluxe" wheelchair to go hunting so he can kill beautiful creatures to those who are suffering from sleep apnea and are being failed by the DMEs at every turn with misinformation, inadequately trained staff, and outright lies? It sounds like you're doing a "swell" job advising them.

ltts wrote:

NateS wrote:Why don't you take a rest for a moment from telling us what we already know about the unscrupulous practices of private health insurance companies, and instead give us a reference to the medical studies you claim you know of which have concluded that it is not medically necessary for physicians to monitor xPAP patients' sd card data as part of their reasonable standards of care of apnea patients.

I would like to see and read these studies, in reputable professional medical journals, which you claim knowledge of.

And since companies like ResMed state that their ResScan software has been developed and is distributed for use by physicians and related health care professionals, how do you reconcile that with your assertion that the medical profession has concluded that they don't need this information as part of their reasonable standard of care of apnea patients?

I can't post links here, but I would suggest you go to google and search on "autoset cpap studies" …

Don't pass the buck for us to do your research- back up what you have said.

You know I just checked out the wiki for this forum, and it suddently hit me - I have touched the third rail here. You've all been minsinformed to the point that you are trained to actually believe something that has absolutely NO basis in fact. That a DME provider is obligated to provide you with an Autoset at no additional charge.

You know what's so odd, though? This forum is rife with folks from all over the place each claiming their DME is lying to them when they tell them the truth that insurance payers don't cover that feature or consider it medically necessary.

Now common sense would tell you that these individual DME providers don't know each other. They haven't formed some giant conspiracy against you. Yet they are all saying the same thing.

At what point does common sense kick in and you start to figure out that maybe the DME isn't actually lying -- maybe you have been misinformed by some yahoo on the internet?

Seriously, no one has ever posted anything from an insurance payer that defines the minumum feature set you are entitled to as including autoset, have they? I know that has never happened because such a document does not exist (because it's simply NOT TRUE). Don't you find it strange that no one is able to post any objective evidence of this thing you believe you are entitled to? Wouldn't you love to have something like that if it was available so you could shake it in the face of the next DME providers that "lies" to you? Wouldn't it be great if someone could post a link to that here, so you wouldn't have to argue with DME providers anymore?

But alas, that proof doesn't exist because what you have been told is simply not true.

Now I am sorry that I disrupted your deeply held beliefs. When I originally posted I naively thought most people would appreciate some actual facts. I did not realize that this misinformation was something posters here had invested a lot of time in believing and were very, very, attached to. I truly apologize for bursting bubbles you hold so dear.

NateS wrote:

Don't pass the buck for us to do your research- back up what you have said.

LOL - it's on this sites wiki. You don't have to look too far.

So you came here to educate us because you are just that generous? Thank you for the gift I guess. I don't often get gifts that taste so vile. If you are this pleasant in real life you are likely sitting at an old Commondore 64 in a windowless basement. Get out and get some fresh air and do some deep breathing.

ltts wrote:You know I just checked out the wiki for this forum, and it suddently hit me - I have touched the third rail here. You've all been minsinformed to the point that you are trained to actually believe something that has absolutely NO basis in fact. That a DME provider is obligated to provide you with an Autoset at no additional charge.

You know what's so odd, though? This forum is rife with folks from all over the place each claiming their DME is lying to them when they tell them the truth that insurance payers don't cover that feature or consider it medically necessary.

Now common sense would tell you that these individual DME providers don't know each other. They haven't formed some giant conspiracy against you. Yet they are all saying the same thing.

At what point does common sense kick in and you start to figure out that maybe the DME isn't actually lying -- maybe you have been misinformed by some yahoo on the internet?

Seriously, no one has ever posted anything from an insurance payer that defines the minumum feature set you are entitled to as including autoset, have they? I know that has never happened because such a document does not exist (because it's simply NOT TRUE). Don't you find it strange that no one is able to post any objective evidence of this thing you believe you are entitled to? Wouldn't you love to have something like that if it was available so you could shake it in the face of the next DME providers that "lies" to you? Wouldn't it be great if someone could post a link to that here, so you wouldn't have to argue with DME providers anymore?

But alas, that proof doesn't exist because what you have been told is simply not true.

Now I am sorry that I disrupted your deeply held beliefs. When I originally posted I naively thought most people would appreciate some actual facts. I did not realize that this misinformation was something posters here had invested a lot of time in believing and were very, very, attached to. I truly apologize for bursting bubbles you hold so dear.

You are joking right?
You are suggesting we are indoctrinated? What? Like this is some kind of cult??

Nobody objected to your "facts".. We objected because you call Deluxe what SIMPLY SHOULDN'T BE CONSIDERED SO - Not buy the insurance companies, not by the manufacturers, and certainly not by DME's, who we have the most contact with.

Most complaints about DME's here are legitimate, because it's us end-users who are getting the raw end of the deal here..

Most users on this forum encourage fellow users to track data, why? because this has been _THE_ KEY to success with CPAP treatment.

Each of us finds this is true rather damn quickly without needing to be brainwashed. Have you considered the possibility, it may damn well be correct??

You are truly an idiot..

Like I mentioned before; it must be heartbreaking to study for a career where you can help people;
only to discover you've been conned into being one of a group of people who are regarded as no better than PIMPS!.

Elle wrote:So you came here to educate us because you are just that generous? Thank you for the gift I guess. I don't often get gifts that taste so vile. If you are this pleasant in real life you are likely sitting at an old Commondore 64 in a windowless basement. Get out and get some fresh air and do some deep breathing.

Okay, let's use a little analogy. Let's say you're sick and you need to be admitted to the hospital. Your insurance only covers a semi-private room, but somone on the internet told you (while providing no proof whatsoever) that you were entitled to a private room, and the hospital can't charge you any extra for that. The nurse tells you that your insurance doesn't cover a private room, but you can pay extra and they can find you one. You loudly declare that the nurse is a LIAR! YOU ARE LYING TO ME!, you say to the nurse. Do you think that's going to get you a free private room?

So you don't get the private room because you were a jerk about it, AND you're not entitled to it. Now do you think they are going to look in on you and respond to your requests as fast as they can while you continue your stay in the hospital, or are they maybe going to avoid you except when they actually have to in order to provide the care you need?

Let's think of a different approach. You fully understand what your insurance covers, and you know you will have to pay extra to get a private room. Perhaps you don't want to get charged for the private room, but you'd really like one. You think you will recover much sooner and it will be much better for you health wise if you can get a private room. Might you say to the nurse, hey, is there any chance you have a room that is vacant right now that you wouldn't mind putting me in?

Which scenario do you think will give you a better chance of the free private room and service over and above what you are entitled to?

So yes, I am trying to provide good advice. And honestly, I think there isn't a DME in the world that would mind one bit if some of the posters that post here walked right on by and found someone else to take care of them. If you called any health care professional a liar they would more than pleased to have you take your business to some other unsuspecting caregiver. Believe me, they won't mind "losing" your business.

jedimark wrote: Like this is some kind of cult??

Oh come on! It is definitely a cult! That is what I like about it. That is why I have stayed here so long and find it irresistible not to peak in several times per week.

Please someone with a nice helicopter perspective of the forum tell me it is a cult.

ltts is obnoxious because she is not cultish. She is willing to accept less than the best in a very average way.

The regular forum members insist on the best in a passionate, dogged way. We will never see eye-to-eye with someone like ltts. Although I do think some things can be learned from her if you listen.

Now immma leavin da cult til probably Monday. But will definitely tune in again.

Usually someone giving me something feels pleasant and not like I have had a bucket of shite slammed in my face. Surely in your vast education you have read a thing or two about presentation?

All that typing and most of us have not taken in the content because your personality drowns it out.

Give yourself a break. Stop typing.

I don't understand the reference to "french" Canada and Australia? It seems the problems with DMEs must be universal and not only affecting the US?

avi123 wrote:I am surprised the ITTS is responding to posters from French Canada, Australia, etc. who are posting in this conversation as sort of guests but try to blow the flame further, unnecessarily. I find some of LTTS arguments creditable and suggest that our bloggers update their blogs to be less inflammable, more accurate, and also law suits protected. There need to be some legal language inserted in the blogs to protect the bloggers and also the owners of this Website .

How about if Rested Girl agreed to act as a referee. If I remember correctly she has posted recently how she would like to run a DME business if she was one.

Some of us foreigners have American interests...

Personally I'm rather darn interested, as most of SleepyHead users are American. I write this software because I'm sick of seeing people screwed.
And not many "first world" countries have a health system as messed up as the 'States..

The manufacturer and sales of so called "Non Deluxe" machines needs to be stopped. (I'm talking strictly of data capabilities here, not APAP.)
Which is the simple reason this issue got slammed.

Please stop with bringing up the lawsuit stuff already. It's fanning the flames far worse than foreign interlopers..

I do agree though, Misinformation needs to be corrected. It would have been WAY better to contact the blogger in question directly first.

It would be much easier hearing the truth coming from someone who is not so damn argumentative..