pseudotumor cerebri

diamox is given sometimes as a preventative medication for mountain climbers. I have some similar symptoms to mountain sickness, flu like symptoms, exhaustion, nausea

According to WebMD, the main on-label uses of Diamox (acetazolamide) are to treat glaucoma and to prevent acute high altitude sickness. Acute high altitude sickness is caused by one thing: Going to high elevations when you live at lower elevations. Rapid assent to very high elevatons is more likely to bring it on.

Off label uses for this Diamox include short term treatment of edema (fluid retention) due to some forms of congestive heart failure, short term treatment of edema caused by other medications, and the treatment of some seizure disorders such as epilepsy when combined with other drugs. On the reliable sites I've checked about this drug's uses and side effects, I've run across nothing that even remotely indicates it might be useful as an off-label treatment for central apnea.

Diamox comes with a strong warning that those with lung problems might not be able to take this drug and as I recall, Sickwithapnea, you say you also have severe asthma. And severe asthma is a serious lung problem. Put these together and it makes no sense to me for you to keep insisting that you want to try this drug: Diamox treats conditions that you do not have and it carries a serious warning against being used by people with lung problems and you do have lung problems. Given those facts, I cannot see how or why any honest physician would prescribe Diamox to you.

its speculative but I have PLMD which is a seizure type disorder and centrals which a medical handbook should be treated with diamox and progesterone. I've had success with klonopin, I don't know if it damages memory, slows thinking and shrinks the brain/hippocampus, maybe it does

sickwithapnea17 wrote:its speculative but I have PLMD which is a seizure type disorder

Sickwithapna,

You have repeatedly posted that you have asthma. And in this thread you write:

I am using 5 litres of oxygen

Supplemental oxygen is prescribed when there is some kind of a lung problem such as COPD. And Diamox (acetazolamide) carries a strong warning that those with lung problems might not be able to take this drug. And the kind of seizure disorders that diamox is occasionally used off label for for serious epilepsy type disorders, not PLMD.

And finally you write:

sickwithapnea17 wrote:.... centrals which a medical handbook should be treated with diamox and progesterone.

This is CRAP and you know it. Provide us with the NAME of the medical handbook so that this ridiculous claim can be checked out.

Better yet, provide us with the full FULL citation of the medical handbook and tell us exactly where this claim is made so that we can check out this claim OR quit making up ridiculous, unsubtantiated hypotheses about drug treatments for central apnea.

I've had success with klonopin, I don't know if it damages memory, slows thinking and shrinks the brain/hippocampus, maybe it does

I and others have repeatedly told you that the long list of side effects of klonopin include: weak or shallow breathing; difficulty with breathing; shortness of breath; problems with thinking or memory; trouble with concentrating; being forgetful; trouble with sleeping; sleepiness or unusual drowsiness; and unusual tiredness or weakness.

Given your on-going symptoms in spite of using the ASV machine to treat your apnea, it may well be worth talking to the doc who prescribed the Klonopin about whether some (or all) of your on-going problems with your memory, with your breathing, and with your sleep might be Klonopin side effects and whether there may be an alternative medication that might be safer for you to use in light of your asthma, your sleep apnea, and your memory problems.

well you might be right about klonopin, but I didn't notice any major effects. I think I had worse memory, fog from sleep apnea before I started klonopin. and theophylline is toxic in medium doses

I don't think the auto settings work for me, they push my breathing too hard, I woke up once with chest pains. I don't feel rested in the morning