Vitamin D level Poll

General Discussion on any topic relating to CPAP and/or Sleep Apnea.

Do you know your Vitamin D level?

No, I have never had my Vitamin D level Checked.
53
24%
Yes, I have had my vitamin D level Checked, and it was normal.
21
10%
Yes, I have had my vitamin D level Checked, and it was low.
50
23%
Yes, I had my vitamin D level checked. It was low, and I was given Vitamin D to take, and it improved my sleep apnea, sleep, or energy levels, etc
21
10%
Yes, I had my vitamin D level checked. I noticed no difference in my life, in sleep apnea, sleep or energy levels, etc
45
20%
Yes, I had my vitamin D level checked. It was low and just starting therapy. To early to tell of any benifits
31
14%
 
Total votes: 221

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jamiswolf
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Re: Vitamin D level Poll

Post by jamiswolf » Sun Dec 11, 2011 10:29 am

Goofproof wrote: Seeing as we age it tends to be low, I never had it checked there are two tests one of them is more likely to be correct. I was taking 4,000 units caps but now take 10,ooo unit cap daily. P.S. I'm still alive. Jim
Me too...only I'm taking 5,000 iu/day. I'll ask my Doc about testing next time I see him.

I've had so many variables regarding apnea, new machine, didgeridoo (which is going great) and now vit D3 so I can't really say which is helping. I just know I feel pretty good.
Jamis

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Emilia
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Re: Vitamin D level Poll

Post by Emilia » Sun Dec 11, 2011 10:30 am

@napstress You make some good points.... Are you in Canada or US? In the US, the Rx version of D is D2, and in Canada and Europe Rx D is D3. As I have mentioned in a number of threads, I use a liquid, micellized form of D3 that I buy online. It contains 1000 IU's per drop. This form gets absorbed much more readily.

Again, I suggest anyone with D concerns go to the vitamin D council site and read. I also follow that site on Facebook and get the many posts citing articles about new research, clinical trials, and peer reviewed journal entries on the latest D findings.

Your doctor was certainly right to say 'good' based on the commonly accepted norm of 30-100; however, it shows he is not up-to-date on the latest recommended optimal levels. My doctor who admits to being woefully misinformed on vitamins, did know about the optimal range of 50-80....much to my surprise I will have a new 25hydroxy test done in a few months to be sure I am keeping it in that optimal range. Your maintenance level is low, according to the vitamin d council. To maintain an optimal level they recommend at least 4,000 IU's daily. I need 6-8,000 IU's to maintain. I have a young friend who is a super outdoor athlete here in FLORIDA (the sunshine state) and he needs over 10,000 IU's daily to keep his levels optimal.

http://www.vitamindcouncil.org Navigating that site is a bit odd...you must keep an eye on the left hand navigation as you go to each level of topics. They also have many other pages not in the side or top navigation that are accessed via the hyperlinked topics on the various pages. It is like peeling an onion to view it all..... not the best design.
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

Guest

Re: Vitamin D level Poll

Post by Guest » Sun Dec 11, 2011 3:44 pm

I have low Vitamin D and take a supplement. I also have IBS (irritable bowel syndrome) and recently read that that is also related to Vit. D deficiency.

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WearyOne
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Re: Vitamin D level Poll

Post by WearyOne » Sun Dec 11, 2011 10:18 pm

I've had mine tested several times over the last three years. It started out at 11 and has slowly moved up over time to where it was in the low part of the normal range (37) at my last check two months ago. I took the D2 prescription a few times, but for the last year I've been taking 4,000 IU of OTC D3 daily and no D2 prescription.

In some circles the low part of the range has changed from 30 to 50, which I agree with, but since my doc's lab is showing 30 as the start of the range, mine is considered normal now. And even though I plan on getting it at least over 50, I'm happy that it's gone from 11 to 37, showing that the OTC version is doing the job.

I have seen a huge improvement in my energy level. My sleep apnea is better, but I've also lost about 45 pounds during the last year (Weight Watchers) so that could be why my snoring and apnea have improved.

Pam

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torontoCPAPguy
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Re: Vitamin D level Poll

Post by torontoCPAPguy » Mon Dec 12, 2011 1:42 am

I take 1,000 IU Vit D3 twice or three times a day, especially during the winter months when I am not in the sun as much. There are so many positive effects of Vit D levels being 'in range' and so few risks that it is insane not to have your Vit D in range.

In Canada there are strict guidelines for the testing for Vitamin D and it is not an easy test to obtain unless your GP plays along; it is an expensive test apparently. Any GP worth their salt will check at least annually for a broad array of electrolytes including D3 as a matter of course. The government up north of the 49th. seems insistant on ruling us into bad health and then paying to fix their folly.

I would also ensure that I had a whole slew of other blood tests to watch for effects of bodily issues, including:
serum magnesium (an inaccurate test but they wont pay for anything better)
serum potassium (a CRITICAL level. Should be in the 4 - 5 range)
..............
Oh, heck. Look them up. There are a slew of them that are critical to understanding your health issues and I insist on squeezing them in somehow. For instance, C-Reactive Protein levels indicate body inflammation/infection at the smallest levels, ferritin, creatine, and so on. A CBC (Complete Blood Count) will show hemoglobin and white blood cells indicating whether or not your body is producing sufficient Hg to carry the O2 around and if you are fighting any sort of infection (do you understand that many of us are fighting something at some time........this test will show how seriously your body is up in arms).

A myriad of tests to test for kidney health, prostate health, liver health and so on.

What is most interesting is that OSA untreated will create a ripe breeding ground for all of the aforemetioned and more. Poo Poo'd by your GP? Time to find a new GP quickly. They don't know what the heck they are talking about. When you have studied this affliction hard enough for your GP, your pulmonologist, your "sleep doc" ad so on to say, as they scratch their heads, that you know more that they do about the affliction, you are reaching the right point in your education.

I supplement with Magnesium, Potassium (you want to be loading up on 5 GRAMS of potassium daily), Tauringe, Co-Enzyme Q10 Ubiquinol, Vitamin C, D3, B6, B12, and a few others and it has kept my aFib at bay for a year now. I enter hospital this week I hope to start Tikosyn and try and get back into normal sinus rhythm. Where the heck did my diabetes, low thyroid, diminished lung capacity, sleep apnea, Atrial Fibrillation and so on come from? Five years ago I had none.

The answer, from research papers published by reputable sources such as Johns Hopkins would suggest that they are intertwined, as are the medications and supplements (electrolyte levels) and that OSA begets OSA and more. In other words, you need to take charge of your body rather than sheepishly permitting some GP whose intent is to get you out of his office as quickly as possible so that he/she an get on to the next patient determine things for you.

I have made this mistake three times: first, when diagnosed with OSA - I had to gather data and determine that I needed oxygen infusion into my airline during periods of REM sleep in order to keep my SpO2 above 90 all night in order to have any chance of getting a proper night of sleep and allowing my organs to be oxyginated while at rest; second time - when I did not insist on better action from my first cardiologist. This has come close to costing me my life and sanity due to the aFib the OSA brought on (most likely). He fiddled and farted around until my left atrium had grown to the size that removed me from the list of candidates for catheter ablation and he never even thought to put me on antiahrythmia medication in the meantime. If I could get one cardiologist to testify against another without giving myself a death sentence or moving across the country into the witness protection program I would do so and get him retired as he is not fit to practice medicine. I did not take the time to educate myself as quickly as possible and I am paying for it now. BIG TIME. Thirdly, when my endocronologist INSISTED that I go onto a medication for my diabetes that was, in essence, still 'experimental' and which I was not tolerating well I allowed myself to be bullied back onto the medication not realizing that these SOB's are remunerated in one way or another for pushing the new drug(s).... it almost killed me. I am now back on a tiny amount of Metformin and have changed my diet to accomodate my insulin insufficiency. And as you read you will realize that all of these are intertwined as we go along the road to six feet under; if the lightbulb does not come on in time.

So, bottom line? Vitamin D3 is VERY important to your general health.
Knowledge of your body at work is VERY important to your general health.
Understanding of how this all fits together is CRITICAL to your health and longivity.

And in closing, I can tell you that (a) the only way you are going to find out about all of this is by self education and reading reputable reports on same. No FAD books. And (b) untreated OSA is an absolutely sure way to put yourself in an early grave although it will never be attributed to OSA. Never. "He died peacefully in his sleep" means, in fact, that your blood pressure popped an aneurism, caused a stroke or whatever. It means that your undernourished heart suffered the affront along with your essential organs of being bullied into submission by lack of oxygen or nourishment. The simple lack of proper levels of Magnesium, Potassium, Taurine, Q10 will bring on Atrial Fibrillation and you are just a ticking time bomb unless your are ensuring proper nourishment including Vitamin C3 and unless you are ensuring proper oxygenation including the extremities and vital organs.

There. You have been told. Apologies if I seem too blunt, but it will probably lengthen your life by a decade or two.

Oh, and as far as masks are concerned? After much intensive research and a box full of used masks? I would toss nasal pillows (period). I would use nasal masks with great caution and in order to avoid taping, wearing underwear on your head and all manner of other gizmos? I would go to the most comfortable and best fitting FULL FACE MASK that I could find. In my case it is the Respironics Quattro and it permits me to sleep with my face smooshed into the pillow without having the seal constantly broken and awakening me. I am sure that there will be others and I am looking. And the other thing that I have discovered is that in order for maximum efficacy, the RUBBER on the Quattro and other FFM's needs to be replaced AT LEAST every six months. I use FOUR Quattros in a monthly cycle so that each is used one week, washed and stored after drying out thoroughly in a plastic baggie ziplock. Ditto my hoses.... I do not use a climate control hose and generally do not have an issue with 'rain out'. I have two climate control hoses in my bag for when I am sleeping out of doors or in a cold, damp room where condensation will build up. I wipe my masks DAILY upon awakening with a sanitary wipe sold on this site to clean and disinfect without odor and if I don't I have gunk in them and they stink. I use only distilled water in my humidifier when I use it and I empty it and permit it to air dry each day. WHEN I USE IT.

I am going into hospital for 4 or 5 days this coming week to start Tikosyn and possibly have an electrocardioversion for my aFIB and will take my own APAP and hose and masks. I have commercial disinfectant and each mask will be cleaned at home by my good wife DAILY as the mask, being moist, is the most likely place to pick up bacterium and I can assure you that I know as well or better than anyone on this board the effects of bacterium at the deepest recesses of your lungs (three weeks on full life support to attest). Keep it all clean and disinfected to your level of comfort and it will treat you right.

And back to Vitamin D..... it is essentail for overall health. Nay, it is CRITICAL. Anything you don't use is going to be urinated unless you get really silly but if you are loading under 5,000 IU of D3 a day, spread out, you are going to have a pretty tough time doing damage. More damage will be done by NOT loading essential vitamins and other electrolytes and proper nourishment.

You have been told. Now... your life is in YOUR hands, what are you going to do about it?

Murray

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Emilia
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Re: Vitamin D level Poll

Post by Emilia » Mon Dec 12, 2011 10:39 am

@toronto.... great post, and it is good to see you back posting. I hope your hospital stay is successful and you get the results you are seeking.
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

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retrodave15
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Re: Vitamin D level Poll

Post by retrodave15 » Mon Dec 12, 2011 11:03 am

Just got back from the doctors office, mine was at a 16. They have put me on high doses for 6 weeks and going to run a re-check then. Hopefully I will see a difference in a few weeks.

Dave

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Emilia
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Re: Vitamin D level Poll

Post by Emilia » Mon Dec 12, 2011 1:57 pm

@retrodave... when you say they put you on high doses, do you mean a Rx of D2? That is not the best route to go..... D3, which is not Rx in USA, is the best form to take.
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

Cindy Lou Who
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Re: Vitamin D level Poll

Post by Cindy Lou Who » Mon Dec 12, 2011 10:21 pm

Was tested and told I needed 2000 IUs daily. The first morning I took 2000 IU's of D3 I was BUZZED!!! Couldn't believe the energy. But that only lasted one day. Over all I have more energy now than before. But has it changed apneas? Don't see a change there, numbers are still the same.
Cindy

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torontoCPAPguy
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Re: Vitamin D level Poll

Post by torontoCPAPguy » Mon Dec 12, 2011 10:25 pm

retrodave15 wrote:Just got back from the doctors office, mine was at a 16. They have put me on high doses for 6 weeks and going to run a re-check then. Hopefully I will see a difference in a few weeks.

Dave
Dave: Don't know if the units of measure are the same between us but a level of 16 is about 3 - 4 times what my target D3 is and I might be concerned about this. I would heartily recommend to your perusal ANYTHING you can get your hands on in reference to D3 serum levels. My blood tests actually come back from the lab marked with the target range and above/below/DANGER! (DANGER! Will Robinson DANGER!). Please educate yourself to your own satisfaction that a level of 16 is okay.

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Fall colours. One of God's gifts. Life is fragile and short, savour every moment no matter what your problems may be. These stunning fall colours from my first outing after surviving a month on life support due to H1N1.

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Emilia
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Re: Vitamin D level Poll

Post by Emilia » Tue Dec 13, 2011 12:07 am

Vitamin D deficiency is a world-wide epidemic, with recent estimates indicating greater than 50% of the global population is at risk.

A high prevalence of vitamin D deficiency has been found across all age groups in all populations studied in countries around the globe.

Even those who are otherwise healthy are not immune to deficiency.

In addition, the scope of vitamin D deficiency is actually far greater than the numbers indicate. Published estimates and studies grossly underestimate the extent of the problem as a result of using an outdated 25(OH)D threshold (cut off point) of 30 ng/mL (70 nmol/L) for determining deficiency.

Recent evidence reveals beneficial effects of vitamin D at serum levels around 50 ng/mL (125 nmol/L) or higher - effects not seen at levels below 40 ng/mL (120 nmol/L), indicating a need for upward revision of the deficiency reference threshold.

Based on the data, it is reasonable to assume that, should the threshold for vitamin D deficiency be raised to a level of 50 ng/mL (125 nmol/L), the percentage of the population determined to be deficient would most-likely be closer to 90% or greater.
http://www.vitamindcouncil.org/about-vi ... eficiency/
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

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napstress
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Re: Vitamin D level Poll

Post by napstress » Tue Dec 13, 2011 1:38 pm

jamiswolf wrote:didgeridoo (which is going great)
Hey, Jamiswolf, I'd like to ask you about the didge, but don't want to steal this thread. Would you be willing to PM me about it? (How long you've been playing, how long it took you to get the hang of it, where you got your instrument, which instrument you got and how you like it, how you learned how to play it, etc.).

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SleepingUgly
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Re: Vitamin D level Poll

Post by SleepingUgly » Tue Dec 13, 2011 9:25 pm

napstress wrote:
jamiswolf wrote:didgeridoo (which is going great)
Hey, Jamiswolf, I'd like to ask you about the didge, but don't want to steal this thread. Would you be willing to PM me about it? (How long you've been playing, how long it took you to get the hang of it, where you got your instrument, which instrument you got and how you like it, how you learned how to play it, etc.).

Napstress
Don't deprive the masses of your information. Post a thread about it.
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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Emilia
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Re: Vitamin D level Poll

Post by Emilia » Wed Dec 14, 2011 1:22 pm

Another reason to keep the Vitamin D level at 50 or above! http://www.nutraingredients-usa.com/Res ... vard-study
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

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2flamingos
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Re: Vitamin D level Poll

Post by 2flamingos » Wed Dec 14, 2011 2:37 pm

I can't remember the actual number, but when initially tested mine was extremely low. Dr put me on 50,000 units a day for 6 weeks then retested. I was finally at the low end of the acceptable range. Now take 50,000 units once a week. Kinda feel better in general, but no glaring changes. My AHI is a little lower - but that could also be due to other med changes.

In the last few years each time I have asked the dr for a specific test he has done it, but said he bet my numbers were in the normal range. Each time I was right - they were either way lower than they should be or way higher. Maybe one day the medical professionals will learn that some of us know our bodies better than they do because we actually live in them.

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