Whats the best tip you learned from CPAP talk?
- Breathe Jimbo
- Posts: 954
- Joined: Sun Sep 12, 2010 3:02 pm
- Location: Pasadena, CA
Re: Whats the best tip you learned from CPAP talk?
Get a fully data-capable machine!
_________________
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Since 9/9/10; 13 cm; ResScan 3.16; SleepyHead 0.9; PapCap |
Re: Whats the best tip you learned from CPAP talk?
Obtain software in order to monitor my own stats in order to discover my "sweet spot" the best pressure to keep my AHI & control leaks in check. A good mask to keep leaks down, all the fixes to obtain that goal. A proper pillow that wouldn't dislodge my mask while turning. The importance of proper humidity level. Hose management systems. Hose cover & humidity control to fight rainout. Not just using my AHI as an indicator of optimal therapy, but also take how rested I feel into consideration. Belonging to this message board over 6 years & feeling like some of you are my friends even though I have never met any of you in person. there are many more things i have learned , I will stop here.
- Sheriff Buford
- Posts: 4111
- Joined: Mon Aug 09, 2010 8:01 am
- Location: Kingwood, Texas
Re: Whats the best tip you learned from CPAP talk?
I can't decide... so I'll mention both:
- data-capable machine
- Hose Buddy
Sheriff
- data-capable machine
- Hose Buddy
Sheriff
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| Machine: AirSense 11 Autoset |
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Re: Whats the best tip you learned from CPAP talk?
To idamtnboy,
Lansinoh
http://www.amazon.com/Lansinoh-HPA-Lano ... 123&sr=8-3
Can't pick just one tip I've learned, I was left to figure it all out myself. This forum was a life saver for me!
Brenda
Lansinoh
http://www.amazon.com/Lansinoh-HPA-Lano ... 123&sr=8-3
Can't pick just one tip I've learned, I was left to figure it all out myself. This forum was a life saver for me!
Brenda
_________________
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Love my papillow, Aussie heated hose and PAD-A-CHEEKS! Also use Optilife, UMFF(with PADACHEEK gasket), and Headrest masks Pressure; 10.5 |
- rosiefrosie
- Posts: 680
- Joined: Tue Mar 07, 2006 7:05 pm
- Location: MN
Re: Whats the best tip you learned from CPAP talk?
Keep my mouth shut
All machines are not created equal and to get a data capable machine with the software.
rosie
All machines are not created equal and to get a data capable machine with the software.
rosie
_________________
| Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
| Humidifier: DreamStation Heated Humidifier |
| Additional Comments: 7.4 pressure setting |
Re: Whats the best tip you learned from CPAP talk?
Getting a 2nd machine...........thats data capable!!!!
I've said it before and I'll say it again.......................
if it wasn't for the wonderful friends on this forum, I would have never made it to where I am today....on the green side of the grass!!!! Thank you!
Cheers my friends.........I'm clinking my coffee cup to my puter
Cheers
Nan
I've said it before and I'll say it again.......................
if it wasn't for the wonderful friends on this forum, I would have never made it to where I am today....on the green side of the grass!!!! Thank you!
Cheers my friends.........I'm clinking my coffee cup to my puter
Cheers
Nan
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| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Started cpap in 2010.. still at it with great results.
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grumpygirl
- Posts: 296
- Joined: Sun Dec 09, 2007 1:36 pm
Re: Whats the best tip you learned from CPAP talk?
Taught me how to change my own pressure and how to read my data on my machine, TAPE MY MOUTH, humidity control, how to ask for what I wanted from my DME and get it(that was a major accomplishment when she realized I knew a lot more than her average patient-thanks to you guys!!) lanolin cream for the nostrils and how to be patient when searching for that "perfect nights' sleep"( I think I am still waiting for that one but not due to a lack of info. from all of you). GG
Re: Whats the best tip you learned from CPAP talk?
Second to all of that!grumpygirl wrote:Taught me how to change my own pressure and how to read my data on my machine, TAPE MY MOUTH, humidity control, how to ask for what I wanted from my DME and get it(that was a major accomplishment when she realized I knew a lot more than her average patient-thanks to you guys!!) lanolin cream for the nostrils and how to be patient when searching for that "perfect nights' sleep"( I think I am still waiting for that one but not due to a lack of info. from all of you). GG
_________________
| Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: ResMed Climate line tubing, Hose cozy, PurSleep Clear aroma therapy, Using latest version Sleepyhead sofware-thanks Jedimark! |
Re: Whats the best tip you learned from CPAP talk?
The best tip for me was from a former member who told me about cpaptalk. Once here, every tip was good, but especially helpful was learning to take charge of my therapy and keep making changes until I finally got it right. It took me over 8 months to get there. Former and current members generously gave support, encouragement and the benefit of their experiences. I will be eternally grateful.
Catnapper - Joanie
Catnapper - Joanie
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| Machine: DreamStation BiPAP® Auto Machine |
| Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
| Humidifier: DreamStation Heated Humidifier |
Re: Whats the best tip you learned from CPAP talk?
Check with the members here before you order a new machine that needs a "special" data card reader.
Hit's head like the V8 commercial and says "I could've had a S9".
Hit's head like the V8 commercial and says "I could've had a S9".
_________________
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: ResScan 4.3, Climate line Max hose, H5i has dishwasher safe tank, CMS50E Bluetooth |
S8 Autoset II backup/travel machine.
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ThirdOutOfFive
- Posts: 294
- Joined: Fri Jul 29, 2011 8:03 pm
- Location: St. Louis, MO
Re: Whats the best tip you learned from CPAP talk?
All the advice given when I first posted "How does this work?" after my first sleep study. I knew what questions to ask and what the answers should be. Kinda threw the DME for a loop at first -- she had expected a quiet, compliant old lady. Well, she did have the "old lady" part right, but not the rest.
Thank you, thank you, everyone!
Thank you, thank you, everyone!
Re: Whats the best tip you learned from CPAP talk?
WOW!! There are so many.................
#1 would have to be to get a data-capable machine.
#2 to not take my DME's word as gospel - on ANYTHING - before checking with my insurance company first.
Cheers,
xena
#1 would have to be to get a data-capable machine.
#2 to not take my DME's word as gospel - on ANYTHING - before checking with my insurance company first.
Cheers,
xena
_________________
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Dx 10/14/10. Also a T2 diabetic. High night/fasting numbers prompted a sleep study and here I am :-) |
Re: Whats the best tip you learned from CPAP talk?
Biggest tip: You have to manage your own therapy. Your doctor and DME can't do it nearly as well as you can with their help.
If all else fails, walgreens.com mail order. What you need is called "HPA lanolin".idamtnboy wrote:I haven't been able to find Lansinoh around here, not Walgreen's, not Walmart, not local pharmacy, not nowhere. Any suggestions where to look again, or some more?
_________________
| Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus |
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.
Useful Links.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.
Useful Links.
Re: Whats the best tip you learned from CPAP talk?
I learned that it is not about "them".....it's about me.
Listen and learn.
Get educated.
I make the final decision.
Become your own best therapist.
I am responsible for me.
Listen and learn.
Get educated.
I make the final decision.
Become your own best therapist.
I am responsible for me.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.
to see or feel those changes, you'll never know what you're capable of."
I said that.
- n0hardmask
- Posts: 354
- Joined: Tue Aug 16, 2011 1:13 pm
- Location: Texas, USA
Re: Whats the best tip you learned from CPAP talk?
Well, I think carbonman said it pretty well. For myself, I will paraphrase the original question to what is best benefit from using forum? That overwhelmingly is the fact that there's other, informed folks out there that have been in the same craft and know how to deal with the choppy weather we all navigate through. For us, the S8 having funky data cards has been a significant find; but there have been loads of useful tips, too many to list. Many thanks to Y'all.carbonman wrote:I learned that it is not about "them".....it's about me.
Listen and learn.
Get educated.
I make the final decision.
Become your own best therapist.
I am responsible for me.
_________________
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: S9 VPAP™ Adapt SV 14/8; bruxism nightguard, Zeo Bedside |
Don't know what I did to hide the Equipment?! new SleepWeaver Anew-NOT hard!, Quattro ffm, S9 VPAP ADAPT. Sobakawa bead pillow
Sleepyhead, Rescan4; ZEO Bedside -not used
Serenity
Newbies:Log in; then please input your equipment 2 your profile.
Sleepyhead, Rescan4; ZEO Bedside -not used
Serenity
Newbies:Log in; then please input your equipment 2 your profile.










