New to CPAP

archangle wrote:

GumbyCT wrote:FINALLY, something we can agree on

Yes, but I phrased it so much more clearly and eloquently.

LMBO.... is bite me clearer? lmao

I find it mind boggling that the medical community thinks that 6 hours of sleep titration study (if we are lucky) in a foreign situation hooked up to a machine for the first time in our lives with all these wires and stuff, will give a accurate picture of the way the rest of our lives go. Then base further treatment on "how we feel" with nothing else to rely on except "Oh, so sorry, you aren't feeling so great..let's schedule another sleep study" or the famous "give it time".

We don't give a diabetic insulin instructions and expect a one time dosage RX to work perfectly each and every time and never have them follow up with any other blood sugar tests.

Not only are CPAP users treated like the ugly step child...we are treated like the STUPID ugly step child. Irks me to no end. If someone doesn't want to follow their data fine... but it should be available just as easily as some one's blood sugar results just in case things aren't working well. The cost difference to have a full data machine is miniscule compared to possible health problem costs for all those people whose CPAP machines are gathering dust in the closet because no one bothered to sit down and really try to educate and help those people beyond "give it time".

Climbing down from my soapbox now.

archangle wrote:

GumbyCT wrote:FINALLY, something we can agree on

Yes, but I phrased it so much more clearly and eloquently.

IF your definition of "eloquent" is to repeat what others have posted BEFORE you then yea. I am just surprised you don't call your echoing "clever" too. ~

Wow, tons of responses since yesterday! It's always interesting to see how people are received on different forums. Pretty warm welcome here!

Monday is the big swap day (hopefully). It is also my weekend so I'll have a couple days to try and adjust to sleeping with a hose strapped to my head. Is it uncommon to have the sleep doc start of with an auto setting? I can't recall exactly what it is but I know from my meeting with the DME that it is set to auto-adjust, not just set at a single number.

Also, AVI123 mentioned that higher pressures are dangerous for people with heart conditions. Why is that? As I stated, they ran a lot of tests and couldn't find anything wrong with my heart but I'm still having palpitations and chest tightness, so I took note of that statement.

Finally, wanted to say that Pugsy's analogy about diabetes and testing blood sugar sounds right on the money. Even if the end user doesn't want to (or can't) look at the data, how do the doctors make adjustments to the pressure with no data to reference?

So thanks again for the support. What a great community!