Implications of turning machine off & continuing to sleep?

avi123 wrote:Tip10, I didn't know that there engineers in STL. I thought that there are there only financial advisers and unionists.

I was gonna say :
Oh crap -- is it that obvious!
But then I remember I put it in my profile....

Yep WE be EVERYWHERE --- you gotta watch out for us!!

Irrelevant

avi123 wrote:RG posted: Since we hold our breath while swallowing, that's why the machine doesn't turn on again. It won't, even if it took several swallows before you're finished drinking and start breathing again. So how do babies suck and breathe at the time?

Gee, I really hate to write this... But I will anyway...

Sucking and swallowing are not the same thing.

If the S9 shuts down due to large leak and autostart, but then you get your seal back and start breathing in and out through the machine, does autostart make it come back on?

If you've got a major leak, the machine shuts down and the leak doesn't go away, won't you be breathing in and out through the leak?

I don't have an S9, but on my PRS1, it doesn't take much breathing to make the auto on function work?

rested gal wrote:Gee, I really hate to write this... But I will anyway...

Sucking and swallowing are not the same thing.

Which one will the machine stay off for?!

archangle wrote:If the S9 shuts down due to large leak and autostart, but then you get your seal back and start breathing in and out through the machine, does autostart make it come back on?

Yes.

If you've got a major leak, the machine shuts down and the leak doesn't go away, won't you be breathing in and out through the leak?

I would think so.

rested gal wrote:

avi123 wrote:RG posted: Since we hold our breath while swallowing, that's why the machine doesn't turn on again. It won't, even if it took several swallows before you're finished drinking and start breathing again. So how do babies suck and breathe at the time?

Gee, I really hate to write this... But I will anyway...

Sucking and swallowing are not the same thing.

RG, you are SOOOO right about that one.

Due to my neurological issue, I've had the chance to learn all about all sorts of odd things, such as swallowing. I literally choke on my own saliva. It's due to poor coordination of my muscles. Yup. I'm officially a Klutz! You know it's bad when daily I find myself choking after I swallow my own spit! Arrgh!

The sucking reflex pulls liquid into the mouth. The swallowing reflex helps you take the food from the mouth and move it down the throat - normally diverting the liquid away from the airway - normally. Two quite different things.

Sounds like you have to weigh autostart vs. non-autostart. What are the scenarios where autostart gives him CPAP when he wouldn't have it otherwise? What are the scenarios where autostop leaves him without CPAP when he would have it otherwise?

It sounds like if the mask leaks enough to cause an autostop, he probably wouldn't have enough of a seal to really be getting CPAP anyway. If it seals back up enough to interfere with his "normal" breathing, it will probably autostart.

Weigh that vs. the chance of him having the mask on and either not turning the machine on or turning it off.

I'm not sure there's a clear choice.

Why do they tie autostart and autostop together? Don't they realize that autostop is potentially dangerous, whereas autostart adds safety? I could understand autostop requiring autostart, but there's no reason to make autostart require autostop.

SU - I have not been online for a while but I have been thinking of you and I just caught up on this thread. It sounds like you are getting some great advice & I don't have anything to add at this point other than to also say that your son is really lucky to have a mom like you on his side. I hope that things settle down for all of you. I know what a huge concern it is to make sure that he's doing ok.

SleepingUgly wrote:Unlike his CPAP-failure-of-a mother, we have him at his prescribed pressure.

SU, I hate to see you describe yourself that way. Your so-called "failure" is not any of your doing, not many people have tried harder than you. If current apnea treatments & protocols have failed to give you the results that you are looking for, that's not your fault. Just don't give up on looking for answers.

He is reallly a great kid.

... with a really great mother!

SleepingUgly wrote:

rested gal wrote:Gee, I really hate to write this... But I will anyway...

Sucking and swallowing are not the same thing.

Which one will the machine stay off for?!

You can breathe while you suck. Machine wouldn't stay "off" if you breathe while you suck.
Side note: that's why babies can breathe while sucking.

You can't breathe while you swallow. Machine would stay "off" when you swallow (that is, if it was already "off" before you swallowed.)

You can voluntarily hold your breath while you suck. Machine would stay "off" if you hold your breath while you suck.

You can voluntarily hold your breath while you take several sips of a drink. Machine would stay "off" if you hold your breath while you take a few sips.


So.. while sipping a drink, deliberately hold your breath while sipping/sucking/whatever.
You'd have no trouble continuing to hold your breath while you swallow -- 'cause we don't breathe anyway while we are in the act of swallowing.

1. Would it be worthwhile considering a different machine that didn't tie the auto on and auto off features together?

2. Are you absolutely sure they are inextricably linked in the S9? It might be worth contacting the manufacturer to see if there is a work around to that. I agree with archangle that it seems like really poor design if there isn't.

Thanks for your kind words, Bright Choice.

Rested Gal, thanks for the clear delineation between sucking and swallowing.

MidnightOil, we want to stay with this machine, for all the reasons people like it, and because it's the one I have and makes downloads, cleanup, sharing accessories, etc. easier.

xenablue wrote:It would be interesting to see the data from an oximeter during this 'experiment'.

It would be more interesting to track ETCO2 during this 'experiment', which, given the symptom of headache, is the more likely culprit.

deltadave wrote:

xenablue wrote:It would be interesting to see the data from an oximeter during this 'experiment'.

It would be more interesting to track ETCO2 during this 'experiment', which, given the symptom of headache, is the more likely culprit.

ozij wrote:Ask an electrician if s/he can can create an a alarm system that will go off when your son turns the machine off - one that goes off in your room, and can be turned off by yourself in the morning.

This will work:

http://www.ebay.co.uk/itm/Respironics-3 ... 45fd0becbb

Since it's being shipped from US, postage is much cheaper that what's listed (run the calculator). Drop the guy a note and tell him you'll give him 5 bucks.