JohnBFisher wrote:As usual, you have my empathy. I've been having a few bad nights due to horrible cramping and very low patient triggered breathing. The morning headache is back. Ugh! Hopefully, this is just temporary.
But when the cramps start to hit, I head out of our bedroom. I try not to awaken my wife, but my cries of pain invariably awaken her. It gets HORRIBLE. I really try not to be a burden. I try not to bother her. And I also get depressed and frustrated. So, I do understand.
John, I am SO sorry that you are dealing with that. I, too, understand. My pain is a more constant aching rather than a cramping. I would get up and leave so as not to disturb my husband, but my rollator makes enough noise that it wakes him up anyway -- and I cannot (should not even attempt) to walk without it. Plus, shutting off the ventilator & oxygen changes the noise in the room and that wakes him up as well. It's a no-win situation for me -- Stay in bed and try to stay still so as not to disturb him or get up and definitely disturb him. When asked, he prefers that I stay, probably so he can keep an eye/ear on me and make sure I'm still alive.
JohnBFisher wrote:So, let's tip the glass (of water) back for those special saints among us, who care for us and who we are privileged enough to have married. 8^)
Amen there, John. My husband IS a saint and I appreciate him more than you know. However, I sometimes feel so guilty that he got "saddled" with a disabled woman and wish like the dickens I had never met him (for his sake). He deserves better, with a wife that can actually DO things with him rather than sit/lay around all the time because of some stupid disease that takes away every simple pleasure in life.
torontoCPAPguy wrote:I have one question for you. Are you dreaming when you sleep? If not you are not hitting REM and have issues to deal with of course.
Yes, I am dreaming. I don't remember dreaming every night, but a lot of times I do.