My bad news...

Sleeping Ugly, I am so sorry to hear that. Thank Gog your son have you, who else would be able to help him as much as you can? I wish you all all good :*

Sorry you have all that going on right now ! But, on bright side, your able to help your 8 year old with Cpap. Many moms Im sure are unable to. Hugs,,,,,Dan in Minn

SleepingUgly wrote:Well, as you can guess from my other thread, we got bad news at the sleep studies: Our 8-year-old needs CPAP. This is the worst of the news.

I'm confused. Why is this bad news? Your "bad" news is GREAT news for your son. The alternative is that he suffers without Tx for decades, like some of us did. I am so happy for him!

I understand what you're saying, Guest, but SU's post didn't confuse me at all.

If anyone has to be unlucky enough to have OSA, then yeah...it's "great" for it to be found out as early in life as possible.

The bad news is that her son has it at all.

GREAT news from his sleep study would have been that he didn't have any sleep disordered breathing.

SU,

I'm sorry that your son has OSA, but, at least you found out early and have the resources to do something about it. I wish my grandson had a mother like you. My daughter, who has OSA but refuses to wear her CPAP because it is too much trouble, won't get my grandson tested because she does not want to bother with CPAP stuff. She has no interest in learning about the disorder and I doubt that she will ever visit this forum even though I have encouraged her to do so.

I just spent a week in a small cabin with my grandchildren, and even though I couldn't hear him breathe over my ASV, he has displayed all the symptoms of OSA for years. He walks around like a zombie and falls asleep at every chance. For a few years he slept sitting up so he could breathe. I noticed this weekend that he sleeps on his stomach without a pillow. I think that is the best position for him and he found it naturally.

Now I have to wait until he is 18 before I can get him tested without her permission.

I know it doesn't feel like it now, but this is a good thing for you and your son. I know that you will find a way to make it easy for him and he is blessed to have you.

smiles2you wrote:Can I ask a couple of questions? (I might have just missed this, and if so, just refer me to a previous post.) Did your son previously have a T&A? How did his symptoms present after that? I ask because I am struggling with this in my family. My 5 year old had a T&A this past spring, but still has trouble sleeping.

My son was diagnosed with ADHD. Otherwise we never would have looked into SDB, as he did not have obvious SDB symptoms. We were told he had flow limitations and a T&A was recommended. It did nothing for the ADHD. I was told to look into maxillary expansion, but orthodontists were telling us he doesn't seem to need it (yet?), so I figured we'd better get another sleep study to make sure the SDB was gone. It wasn't. He doesn't snore, and in contrast to many kids with ADHD, doesn't really have sleep problems such as sleep onset and maintenance issues. In short, we thought there was a good chance he would have no SDB. No such luck however. The silver lining will be if it improves his ADHD symptoms. Supposedly his small mandible is likely the problem, so I'm not sure RME has a viable role, but that is something we need to look into further (clearly an RME would not make the mandible wider, so the question is whether something can be done orthodontically for the mandible).

In short, if he hadn't been diagnosed with ADHD and we hadn't looked for a cause for it, we never would have gone down this SDB path. Have you had a sleep study on your child?

rested gal wrote:GREAT news from his sleep study would have been that he didn't have any sleep disordered breathing.

How is misdiagnosis GREAT news? He has a problem. Failing to find the cause is not going to make the problem go away.

Guest wrote:

rested gal wrote:GREAT news from his sleep study would have been that he didn't have any sleep disordered breathing.

How is misdiagnosis GREAT news? He has a problem. Failing to find the cause is not going to make the problem go away.

Great news is a TRUE NEGATIVE finding. Clearly if someone were motivated to avoid a FALSE NEGATIVE finding they could easily do so by never stepping foot in a sleep lab. Of course if he requires CPAP we'd rather know about it than not know about it, but we wish he didn't require CPAP at all.

SleepingUgly wrote:

Guest wrote:

rested gal wrote:GREAT news from his sleep study would have been that he didn't have any sleep disordered breathing.

How is misdiagnosis GREAT news? He has a problem. Failing to find the cause is not going to make the problem go away.

Great news is a TRUE NEGATIVE finding. Clearly if someone were motivated to avoid a TRUE POSITIVE finding they could easily do so by never stepping foot in a sleep lab. Of course if he requires CPAP we'd rather know about it than not know about it, but we wish he didn't require CPAP at all.

Spoken like a Mom! You never want difficult things for your kids. But you would rather know and help them through it, if they face some hardship. Good for you.

JohnBFisher wrote:

SleepingUgly wrote:

Guest wrote:

rested gal wrote:GREAT news from his sleep study would have been that he didn't have any sleep disordered breathing.

How is misdiagnosis GREAT news? He has a problem. Failing to find the cause is not going to make the problem go away.

Great news is a TRUE NEGATIVE finding. Clearly if someone were motivated to avoid a TRUE POSITIVE finding they could easily do so by never stepping foot in a sleep lab. Of course if he requires CPAP we'd rather know about it than not know about it, but we wish he didn't require CPAP at all.

Spoken like a Mom! You never want difficult things for your kids. But you would rather know and help them through it, if they face some hardship. Good for you.

Ooops, I meant "If someone were motivated to find a FALSE NEGATIVE finding..." Ugh.

SleepingUgly wrote:Great news is a TRUE NEGATIVE finding.

OK, I'll play the game. How could there have been a true negative finding? He would not have had this problem if _______________________. (Fill in the blank.)

You want to deliberately miss the point, which is that nothing a doctor, surgery, or the sleep lab could do can change the cards you son was ALREADY dealt. The past is fixed; only the future can be played differently. Your son is lucky that his future is now brighter, thanks to your diligence. This is great news, not bad news. Stop finding the negative in everything.

I am so sorry about your situation.. That's so much to have to deal with all at once.

Depending on the situation the 8 yr old might see things improve, especially when puberty hits. Here's hoping.

The good news it that by having therapy now, your child will be better able to grow and function at school. Though I did okay, I wish I had been on xPAP therapy (though it was not available then) when I was in my teens. I would have done a lot better due to having more energy. Plus, I might have avoided the weight gain, diabetes and kidney disease.

You might wan to talk with your doctor about your problems with the higher pressure. It might be time to switch to BiPAP therapy. Do ask your doctor about it, since you had problems with higher pressure in the past.

I like Goofproof's idea of sharing the CPAP. This would be the first case of hot bunking a CPAP unit!

Seriously, I am sorry to see this. You always try to help others. I sure hope you are able to adjust and adapt to your new situation(s) as best as possible. And shout if we can help.

Guest wrote:

SleepingUgly wrote:Great news is a TRUE NEGATIVE finding.

OK, I'll play the game. How could there have been a true negative finding? He would not have had this problem if _______________________. (Fill in the blank.)

You want to deliberately miss the point, which is that nothing a doctor, surgery, or the sleep lab could do can change the cards you son was ALREADY dealt. The past is fixed; only the future can be played differently. Your son is lucky that his future is now brighter, thanks to your diligence. This is great news, not bad news. Stop finding the negative in everything.

Put a cork in it, Guest. Anyone with half a brain and knowledge of the language understood exactly what SleepingUgly meant. I can't imagine your comments were comforting or useful. Only an ass would use this as an occasion to discuss a logical conundrum.

Sorry about the bad news, SleepingUgly, and best wishes for good results.

PST wrote:Put a cork in it, Guest.

I understood exactly what she meant. She is taking a negative view of the good news. The bad news was there long before the sleep test uncovered it. Knowing something doesn't make it bad. Whether or not the problem had been found, he would still have it, right? How is it bad news, then, to uncover the problem and know that there is an effective treatment for it? Not finding out...well, that WOULD have been bad news, indeed.

Guest wrote:

PST wrote:Put a cork in it, Guest.

I understood exactly what she meant. She is taking a negative view of the good news. The bad news was there long before the sleep test uncovered it. Knowing something doesn't make it bad. Whether or not the problem had been found, he would still have it, right? How is it bad news, then, to uncover the problem and know that there is an effective treatment for it? Not finding out...well, that WOULD have been bad news, indeed.

Wow, guest--what a way to miss the point!

Hopefully you're not truly as rude as you're coming across. This thread is not supposed to be an exercise in semantics.