Greetings fellow sufferers

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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archangle
Posts: 9293
Joined: Sun Mar 27, 2011 11:55 am

Re: Greetings fellow sufferers

Post by archangle » Tue Jul 19, 2011 10:44 pm

I'm not sure you have a legal right to dispute the credit card charge unless there's some way in which the machine is "defective" in the sense that it doesn't do what it's specified to. Just saying, "Oh, I really should have gotten more information before I bought that particular item," may not cut it.

$1200 for machine, humidifier, hose and mask is not really that high for a local DME. Lots of people have gotten taken for a LOT more.

Anyway, use it. You'll probably benefit greatly from the CPAP. Apart from the lack of data, it's a good machine.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.

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kallis
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Re: Greetings fellow sufferers

Post by kallis » Wed Jul 20, 2011 1:06 pm

Honestly speaking I have not seen any one greetings others on the Forum in this way.Really different from other but its good.Some time Life do needs surprises...

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Exterminator
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Location: Arkansas

Re: Greetings fellow sufferers

Post by Exterminator » Thu Jul 21, 2011 4:39 pm

Talked to the DME today and they said they would swap out my PR1plus for the PR1 auto with a-flex. They didn't have one on hand so they were going to order it and should arrive by the end of next week. They also swapped out my swift LT for a Swift FX. I was having leakage issues with the LT and the FX seems to fit me much better.

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Dojers
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Re: Greetings fellow sufferers

Post by Dojers » Thu Jul 21, 2011 5:01 pm

Nice!!!
I love sleep because it is both pleasant and safe to use. - Fran Lebowitz HA!! Yeah right - not when you're a hosehead!

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DoriC
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Re: Greetings fellow sufferers

Post by DoriC » Thu Jul 21, 2011 5:07 pm

Nice going! This DME may be a keeper! Keep us posted.

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napstress
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Re: Greetings fellow sufferers

Post by napstress » Thu Jul 21, 2011 5:39 pm

Use it in good health, Exterminator!
Epworth Sleepiness Scale: 14
Diagnostic study: overall AHI: 0.2 events/hour; overall RDI: 45 events/hour
Titration study: AHI: 6.1; RDI: 27; CPAP pressures: 5-8cm

Not-tired behind my eyes and with a clear, cool head!

Orchid
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Location: Midwest

Re: Greetings fellow sufferers

Post by Orchid » Thu Jul 21, 2011 5:40 pm

BlackSpinner wrote:
Exterminator wrote:
rested gal wrote:
You've already "met" with the DME, but this info by Janknitz might help you:

LINK to Janknitz's excellent - "WHAT YOU NEED TO KNOW BEFORE YOU MEET YOUR DME Part I"
http://maskarrayed.wordpress.com/what-y ... me-part-i/
Wish I had found this site before I got my machine, My lousy insurance won't cover any on a machine so I payed dearly out of pocket to get the one I have.
Oh my gosh, thank you for http://maskarrayed.wordpress.com/what-y ... me-part-i/ !!! I wish I had it 3 years ago! The lab manager of my sleep lab basically said the same thing about DME's during my most recent sleep study...I HAVE HAD terrible experiences with 3 DME's. Now I'm just plain frustrated, sad, unhappy and irritable because of it all. My lack of faith and trust in DME's have made me nontrusting and cynical over the past couple of months. Praying that I will change over time. (((SIGH)))

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archangle
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Re: Greetings fellow sufferers

Post by archangle » Thu Jul 21, 2011 8:55 pm

Exterminator wrote:Talked to the DME today and they said they would swap out my PR1plus for the PR1 auto with a-flex. They didn't have one on hand so they were going to order it and should arrive by the end of next week. They also swapped out my swift LT for a Swift FX. I was having leakage issues with the LT and the FX seems to fit me much better.
Geez, too many people are having success with DMEs lately. Something bad's probably going to happen. Maybe the apnea ninjas will be sent in to silence us.

Great news, Exterminator.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.

Useful Links.

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Exterminator
Posts: 38
Joined: Mon Jul 18, 2011 7:40 pm
Location: Arkansas

Re: Greetings fellow sufferers

Post by Exterminator » Fri Jul 22, 2011 8:50 am

Last night with my new Swift FX was the best night out of the 8 nights I have been using CPAP. AFAIK no leaks
Now if I can keep the occasional air from leaking from my mouth... Already Using a chin strap any ideas?

cflame1
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Location: expat Canadian in Kentucky

Re: Greetings fellow sufferers

Post by cflame1 » Fri Jul 22, 2011 9:30 am

tape

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Pugsy
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Location: Missouri, USA

Re: Greetings fellow sufferers

Post by Pugsy » Fri Jul 22, 2011 10:40 am

Tape or polygrip for a while and hope that your body learns to keep mouth shut. It does for some people. I am one of them.

Also watch the actual leak rate in software to see for sure just how bad a mouth leak really is. How big of a leak? Short lived? or Long lasting? If it isn't huge for a long time...it may not be hurting things too much. It may just get better with time and experience.

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I may have to RISE but I refuse to SHINE.

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Dojers
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Re: Greetings fellow sufferers

Post by Dojers » Fri Jul 22, 2011 1:15 pm

cflame1 wrote:tape
Just don't use duct tape although that works the best. No....I'm not speaking from experience.....much.....
I love sleep because it is both pleasant and safe to use. - Fran Lebowitz HA!! Yeah right - not when you're a hosehead!

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rested gal
Posts: 12881
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Location: Tennessee

Re: Greetings fellow sufferers

Post by rested gal » Fri Jul 22, 2011 9:17 pm

Exterminator, you're doing good, and it sounds like you've found a good DME who is trying to help you.

For the mouth leaks, here are a lot of ideas. (I use tape.)

LINKS to: Mouth leaks - Air Leaks - Tape - DIY Guard
viewtopic.php?t=8011
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435

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Exterminator
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Location: Arkansas

Re: Greetings fellow sufferers

Post by Exterminator » Sat Jul 23, 2011 1:50 pm

Just picked up a copy of my prescription. Under Diagnoses it says Obstructive Sleep Apnea and also Hypersomnia with Sleep Apnea.
My youngest said he heard me snore last night. Can't confirm this since My Wife is out of town. Also have a red and sore nostril after wearing the Swift FX. Maybe I have it too tight?
The prescription also says comfort setting of 2 and the DME has it set at 3.

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Pugsy
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Location: Missouri, USA

Re: Greetings fellow sufferers

Post by Pugsy » Sat Jul 23, 2011 2:13 pm

Exterminator wrote:Also have a red and sore nostril after wearing the Swift FX. Maybe I have it too tight?
The prescription also says comfort setting of 2 and the DME has it set at 3.
Likely have it too tight. Probably the top strap with the little groves. It should not be so snug as to turn the nose upward (piggy nose). Loosen the top strap one or two notches. It does not have to be tight to seal. I hand put my hand easily under the top strap and I routinely have minimal to zero leaks.

Lansinoh ointment can help with tenderness. Used by breast feeding moms to combat nipple soreness. Found in the baby section of Walmart and most pharmacies.

Comfort setting is entirely up to you. If you are comfortable then fine, if not then you can adjust it. Strictly individual personal preference.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.