No Answers Yet For Problems With ASV

Paper_Nanny wrote:...purging my oropharynx sounds like something that would necessitate the sheets being changed afterwards. And who wants to be doing that in the middle of the night?!?...

A well-placed bath towel will ususally remedy that situation, however, you might need to go straight to a tarp.

NotMuffy wrote:CompSAS and central apnea <snip> events usually subside during REM. Based on the sleep studies your REM seems fairly predictable (at about 5.0 - 5.5 hours latency. While this last DL may have been too short to short REM, there are certainly enough other DLs to examine that, and it does not appear that that occurs in your case. Maybe Quattro will show that if you go > 6.0 hours.

I wasn't able to get > 6.0 hours last night. I woke up after just under 4 hours of sleep. I don't know if the pain from my not quite healed broken nose is what woke me, but my face was hurting something awful when I woke. I took the mask off and went back to sleep.

Here is the DL, for what it's worth. May not be worth anything. Could be nothing more than a waste of time.

NotMuffy wrote:Can you UL the DLs somewhere? I think closer scrutiny of the waveform data is next on the list.

No wave form data to scrutinize. I am still trying to find software to download data from the card in the PR System One BiPAP ASV. In the mean time, I am still using the BiPAP Auto SV Advanced.

But, there is hope...

jedimark wrote:SleepyHeads ASV loader is now complete. It's just waiting on me to do make it pretty and add the calcs & overview stuff back in.

viewtopic.php?f=1&t=65771&p=614814#p614814 on Mon Jul 11, 2011 12:11 am

I can direct you to where the DLs were ULed. Looking at them with no waveform data may may not be worth anything. Could be nothing more than a WoT.

NotMuffy wrote:The initial titration was very aggressive. With what amounted to a normal NPSG re: SBD, the decision was made to go straight to BiPAP. A trial of low-level CPAP would have been, as is now, a very viable option. Ask your guy that, I'd really like to hear the rationale for clubbing 41 obstructive events to death with an ASV.

His rationale was two fold and alluded to earlier in this thread.

On Fri Jul 08, 2011 at 7:50 pm, Paper Nanny said the Nurse wrote:I will take the restraint off if you PROMISE not to hit me.

My Guy MSD heard about that and he was scared.

and

On Sat Jun 18, 2011 4:02 pm, in this thread, This Self wrote:I am not easily amused; I should always be given the most complex machine possible.

My next appointment with My MSD Guy is on 18 March. I will be compiling a list of questions to take with me to that appointment.

NotMuffy wrote:Why is it that phpBB will sometimes allow a "/" to go through, and other times go berserk (think it's an html command)?

I think Marcia Brady's boyfriend Harvey Klinger provided the best explanation on 23 November 1970, when he said, "That is one of the eternal mysteries of the insect world."

As this thread has become the go-to for ASV users, I'm going to insert a shameless plug for another new user, ameriken. He has been using the same ASV unit as the rest of us but continues to suffer from residual symptoms, and while I've told him what little I know or think I know, he has expressed that he'd appreciate more input and advice. His thread is here: viewtopic/t65791/ASV-users-where-to-go-from-here.html

I didn't know this was the ASV go-to thread.

I've recently seen some other threads that have very similar issues and thought we could tie them all together in one place. If this is it, I have no problem with that as well. I personally feel ASV needs it's own place in the forum.

Nah, Paper_Nanny's issues are pretty unique I think. By go-to, I just meant that she's managed to get more traffic than the rest of us, mostly because she's been fortunate enough to get advice from Muffy.

ameriken wrote:I didn't know this was the ASV go-to thread.

I had no idea, either!

ameriken wrote:I've recently seen some other threads that have very similar issues and thought we could tie them all together in one place. If this is it, I have no problem with that as well. I personally feel ASV needs it's own place in the forum.

I'm not sure what you mean by tying them all together in once place or by ASV having its own place on the forum. As far as I can tell, this forum isn't set up with specific areas for posting about specific subjects. Some forums have things subdivided so there is a place to post about CPAP, someplace to post about BiPAP, somewhere to post about the Brady Bunch, etc.. It seems to me that everything here just goes in its own thread. But, I may be missing something here. After all, I did miss that this was the go-to thread!

I don't think it would be useful for other people to post about their specific situation in this thread. I don't like to share. No, really, I think it would make everything so muddied up that it would be difficult to follow what was going on with each individual's issues.

I often use the "search" to find posts that may be of interest to me. If the thread of interest is active, then I make a point of watching to see what is happening there, what advice is being given, etc.

I'm not sure what else could be done without muddying things up. Got suggestions?

Deborah

Actually, I was surprised there weren't any subforums here. When I did my own research, I just saw a few sporatic threads on ASV and figured perhaps one thread where we could all try and figure this darned machine out and get the most out of it.

Yeah, I know, maybe a bad idea.

BrianinTN wrote:Nah, Paper_Nanny's issues are pretty unique I think. By go-to, I just meant that she's managed to get more traffic than the rest of us, mostly because she's been fortunate enough to get advice from Muffy.

Well, I'm still a noob and don't wanna step on anyone's toes

ameriken wrote:Well, I'm still a noob and don't wanna step on anyone's toes

Ach, no problem! I wear my steel toed boots when I come here. I am less likely to feel the occassional stepped on toes with my boots on and, if I need to kick anyone, the impact has a little more ouch to it.

Maybe Brian's shameless plug for your thread viewtopic/t65791/ASV-users-where-to-go-from-here.html will get you some help.

BrianinTN wrote:Nah, Paper_Nanny's issues are pretty unique I think.

Aw, thanks, Brian. I feel so special now!! <still looking for the batting my eyelashes smiley>

BrianinTN wrote:she's been fortunate enough to get advice from Muffy.

No, no Brain. NotMuffy.

del

To avi123

If you want to repost your above post as a new thread - perhaps called 'Does Cpap help with CSR' - I'd be happy
to explore the issue there. Also it is important to qualify just what is meant by CSR (I take it to mean
Cheynes-Stokes Respiration) but not having a link to follow or any reference point, can't be certain.

Cheers

DSM

PS a link would have helped date the italicized comments.

del

Paper_Nanny wrote: Aw, thanks, Brian. I feel so special now!! <still looking for the batting my eyelashes smiley>

Aw honey. You'll always be the one and only Paper_Nanny to me.

Paper_Nanny wrote: No, no Brain.

I'm going to believe that your transposition of the "a" and "i" in my name was your subconscious affirming my infinite wisdom. Thank you for reminding me of what I already knew.

avi123 wrote:Nanny, since your above sleep report shows a 100% Patient Triggered Sleep, how about trying a few days in plain CPAP mode, same pressure for Inhalation and Exhalation? No Auto! If it does not feel easy to exhale then use a flex. I say this because I have read that:

I wouldn't. Part of the reason Paper_Nanny is continuing down this little road is to satisfy requests from her medical team. You'll also find some articles in the literature documenting patients whose centrals improve with bilevel therapy. Might a single low pressure work well for her? Yes. Is (Not)Muffy's head-scratching about why Paper_Nanny was sent down this road with a relatively low AHI and mostly REM-based events valid? Yup. (My replies earlier in this thread were very carefully worded; I attempted to explain why he might have decided to do this, without making any normative statement about whether or not his choices were proper.) Right now, given that she's slated for some fun testing ahead, it makes sense for her to leave things unchanged.

Brian you are back on my ignore list. I made a mistake taking you off.

avi123 wrote: Brian, would it be possible for you not to reply in Nanny's behalf (or anyone else behalf who I direct my post to)? If I want to ask you a question I'll direct it to you. In this case I am not interested in your replies or views. If you can't control yourself then please stay away from my posts..

No, this would not be possible.

NotMuffy wrote:

avi123 wrote: Question:

Why don't you ask if Nanny was tested for COPD? A simple Spirometry test and X-Ray could indicate?

Un!#%ingbelievable.

I probably should have just quoted this. Would have saved me keystrokes.

And my reply to the now-revised:

avi123 wrote:Brian you are back on my ignore list. I made a mistake taking you off.

I'm flattered.