Imposter

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
jnk
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Re: Imposter

Post by jnk » Thu Jun 02, 2011 8:12 am



I'm glad NightMonkey fired Mr. Trump.

Thank you for that, NightMonkey.

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SleepingUgly
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Re: Imposter

Post by SleepingUgly » Thu Jun 02, 2011 12:33 pm

napstress wrote:Yesterday, when I had asked my sleep dr whether or not I had apnea, given that the data on my diagnostic report showed an AHI of 0.2, she told me flatly, "You do not have apnea." She explained that she had made her diagnosis based on the RDI (of 45.4) and EEG and that I have a narrow nose that probably contributes to respiratory disturbances resulting in unrefreshing sleep and afternoon drowsiness.
One person's hypopnea is another person's RERA is another person's nonsignificant finding, yada yada. You have sleep disordered breathing. You could stay even if you didn't!
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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gasp
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Re: Imposter

Post by gasp » Thu Jun 02, 2011 1:33 pm

archangle wrote:
napstress wrote: I have a long, narrow nose...
Well, obviously.
Image
Oh my word archangle you have a great sense of humor - this made me laugh so hard!

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Bright Choice
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Re: Imposter

Post by Bright Choice » Thu Jun 02, 2011 7:25 pm

napstress wrote:Yesterday, when I had asked my sleep dr whether or not I had apnea, given that the data on my diagnostic report showed an AHI of 0.2, she told me flatly, "You do not have apnea." She explained that she had made her diagnosis based on the RDI (of 45.4) and EEG and that I have a narrow nose that probably contributes to respiratory disturbances resulting in unrefreshing sleep and afternoon drowsiness.

She believes I should continue with CPAP therapy to address my high RDI.

May I still participate on this forum?

I feel exhausted all the time, cannot keep my eyes open in the afternoon, have 24 teeth and a long, narrow nose, and have an average AHI of 5.2 withCPAP therapy. Do I still qualify for membership?

Greetings from a fellow "Imposter"!

I was diagnosed with mild osa, also had pretty severe "insomnia". My first doctor said "well, try cpap to see if it works. If it doesn't help, then our best bet is to do nothing at all". Hmmm...

Funny thing is, cpap immediately relieved my "insomnia". I couldn't figure it out, "if I didn't have a high AHI, why would cpap be working for me?" I loved my cpap immediately! I thought that I must just be a hypochondriac looking for something to "fix" me.

My first sleep study and titration was not a true reflection of what was actually going on. So, I really felt like a "lurker" here, feeling that I really didn't belong because I wasn't having the same experience as most people - ie a need to lower AHI.

I spent LOTS of time studying here... at first trying to understand the UARS component of my diagnosis - with a lot of help from people here. So, long story short. I ended up getting a "second opinion" and a new diagnosis of Complex Sleep Apnea. I am waiting to get the new S9 vpap adapt. So, now that I have a "real" diagnosis, do I finally belong here?

As others have said here, there is more to "sleep disordered breathing" than would seem at first glance. Keep studying, keep asking. There are wonderful people here who will help!
--------------------------------------------------------------------------------

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SleepingUgly
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Re: Imposter

Post by SleepingUgly » Thu Jun 02, 2011 7:41 pm

Bright Choice, in the end was it UARS or OSA (if one could parse that part out of the Complex Sleep Apnea diagnosis, which I don't know if that's possible)?
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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Bright Choice
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Re: Imposter

Post by Bright Choice » Thu Jun 02, 2011 8:06 pm

SleepingUgly wrote:Bright Choice, in the end was it UARS or OSA (if one could parse that part out of the Complex Sleep Apnea diagnosis, which I don't know if that's possible)?
Actually it was "moderate obstructive sleep apnea" and "central sleep apnea" (CompSA). UARS was mentioned in the anecdotal titration notes and I assume was "corrected" with the ASV titration.

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LinkC
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Re: Imposter

Post by LinkC » Thu Jun 02, 2011 8:14 pm

mars wrote:
you will not - gather, compile, or in any way collect information about users, including email addresses, without first obtaining such user's express consent;
I think they mean "expressed" consent. Or maybe we must consent very quickly?

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napstress
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Re: Imposter

Post by napstress » Fri Jun 03, 2011 5:58 am

Thanks, everybody. What a relief to have a sense of belonging! I'd love to sleep well through the night, but since I have to figure out how to do that, I can think of no finer a throng to do it with than you all. Thanks for the laugh, too, archangle!
Epworth Sleepiness Scale: 14
Diagnostic study: overall AHI: 0.2 events/hour; overall RDI: 45 events/hour
Titration study: AHI: 6.1; RDI: 27; CPAP pressures: 5-8cm

Not-tired behind my eyes and with a clear, cool head!

quietmorning
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Re: Imposter

Post by quietmorning » Fri Jun 03, 2011 6:56 am

My doc told me I do not have Apnea - but Hypopnea - and it's "moderate to severe" - 47 times an hour - just below the severe line of 50. It doesn't matter whether I'm on my back or either side, I still don't get enough air the minute I try to go to sleep, and I wake up over and over again. I snore, but very quietly and through my nose, no less. I never get into deep sleep for more than a second or two and I NEVER get into REM sleep without the help of my CPAP. My air way does not close very often - only five or six times a night - but when it closes, it closes tight and I have to be fully awake to clear it. All the rest of the time, my air way is just way closed down to almost shut, but not quite. I have a tiny nose, tiny ear canals (so much so that the doc's always hate to check me for an ear infection!) and a tiny bronch tube. I am prone to respiratory infections because I everything is too tiny to clear easily.

I requested a prescription for CPAP.com. . .and told the doc that it is already marked for Apnea, doc said there is no ICD-9 code specifically for Hypopnea, that it falls directly under Apnea.

**Shrugs**

So there you have it. I've learned so much from this community that I actually am sleeping very well with my CPAP having ironed out most (still have to work out what to do when I have a bad head and chest cold) of the kinks. Last night was wonderful. I'm so thankful for this group.

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poppi2
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Re: Imposter

Post by poppi2 » Fri Jun 03, 2011 12:54 pm

archangle wrote:
napstress wrote: I have a long, narrow nose...
Well, obviously.
Image
Dang! The avatar is an elephant's head! All this time, my quick glances always interpreted it as a dinosaur. Oh well, time for new glasses. Earl

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archangle
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Re: Imposter

Post by archangle » Fri Jun 03, 2011 1:36 pm

napstress wrote:Thanks for the laugh, too, archangle!
You also need to keep your mouth closed, straighten out the end of your nose, and not put so much water in the humidifier.

Image

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rested gal
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Re: Imposter

Post by rested gal » Fri Jun 03, 2011 1:39 pm

ROTFL!!!!
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
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viewtopic.php?t=17435

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Bright Choice
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Re: Imposter

Post by Bright Choice » Fri Jun 03, 2011 2:24 pm

rested gal wrote:ROTFL!!!!
Ditto

(I thought it was a dinosaur too)

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napstress
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Re: Imposter

Post by napstress » Fri Jun 03, 2011 2:32 pm

Bright Choice wrote:Ditto

(I thought it was a dinosaur too)
Hey, I might be getting old—but I'm not that old!

* * *

"I have a theory...eh, hem, hem...that a brrrrontosaurus... is thick at one end, thick in the middle, and thick at the other...eh, hem, hem... that is my theory and it is mine."
Epworth Sleepiness Scale: 14
Diagnostic study: overall AHI: 0.2 events/hour; overall RDI: 45 events/hour
Titration study: AHI: 6.1; RDI: 27; CPAP pressures: 5-8cm

Not-tired behind my eyes and with a clear, cool head!

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gasp
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Re: Imposter

Post by gasp » Mon Jun 06, 2011 6:02 pm



And I wonder how on earth headgear would ever fit that big bony head - lab rat time : )

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