Sure it does. There are plenty of polls on the forum.Slartybartfast wrote:... Too bad the forum software doesn't appear to support the creation of polls. ...
Xerort, while I agree that changing settings without involving your medical team is unwise, I would propose you compare sleep therapy to diabetes therapy.
Do diabetics test and check their numbers on an ongoing basis? Of course they do. Why?
Because for Type 1 Diabetics not doing so can be life threatening. Period. Oh, by the way, they change their therapy (their insulin amounts) all the time. But they do so based on that testing they do. However, and this is the BIG however, they do so using guidelines they develop with their doctors.
What about Type 2 Diabetics? If they are not insulin dependant, why should they test all the time? Of course for similar reasons. Certainly the chance of severe blood sugar swings is not as severe. However, continued high blood glucose levels is devastating to our bodies. It must be controlled. Though we do not change our insulin levels, those with Type 2 Diabetes DO change their habits to control the high blood glucose.
How does this compare to sleep therapy? First, let's be VERY clear that sleep deprivation is DEADLY. My doctor is VERY clear about this. Read most letters of medical necessity used for xPAP therapy. They are very clear that this is not an option. I've been in too many near misses due to being sleepy. I *know* this is true.
But just as with the Type 2 Diabetic, research confirms more and more that poor sleep leads to chronic health issues. These include uncontrolled high blood pressure. Increased tendency toward high blood glucose. Increased risk of heart attacks and strokes. Pretty serious, wouldn't you say?
So, we have both the life threatening aspect of sleep deprivation and long term impact to health. Why on earth would we NOT want to keep an eye on our xPAP therapy? Should we not keep an eye to be certain that we are sleeping well. Not just how we feel from night to night, but how the numbers show we are doing. Objective, clear measurement of our progress.
I am not saying to not keep an eye on this and tweak it without discussing it with our medical team. I am a clear advocate that folks should discuss changes with their doctor.
But don't pretend that our current system - a single sleep study, maybe followed by a visit with a sleep doctor, and then get an xPAP device - meets our ongoing needs. At best that amounts to three different contacts with my medical team. I have the other 362 days of the year to live. I need both the measurement and the guidelines to live those fully.
So, consider the comparison to diabetes. The parrallel is quite high.