Tired - Physically and figuratively

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
DoriC
Posts: 5214
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: Tired - Physically and figuratively

Post by DoriC » Wed Oct 27, 2010 8:29 pm

https://www.cpap.com/productpage/SleePA ... illow.html

This is the bed pillow my husband uses with his FF mask. I bought some extra stuffing to make it a little firmer for his preference and it works well. Good luck.

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

cflame1
Posts: 3311
Joined: Sat Mar 11, 2006 6:55 am
Location: expat Canadian in Kentucky

Re: Tired - Physically and figuratively

Post by cflame1 » Wed Oct 27, 2010 8:48 pm

twentysix,
Try pm'ing BillBolton... or DSM... a couple of our Aussie friends on here that might be able to help you with determining what and where to find what you need.

User avatar
danimal71
Posts: 140
Joined: Mon Oct 04, 2010 8:22 pm
Location: Illinois

Re: Tired - Physically and figuratively

Post by danimal71 » Thu Oct 28, 2010 10:01 am

DoriC - Thanks again for getting me to double check my machine again and seeing I had the wrong one listed.

My nose was somewhat clear last night so I tried the Swift LT again. I think I might have the velcro to tight going in the upward direction as my nose was getting pretty irritated and it felt like a lot of pressure on my nose. I was sooo tired last night. I swam 50 laps (25yard laps) then came home and fell asleep on my recliner. This is 3 nights in a row I have swam. I woke up at midnight. So I think I had the LT on for 1 hr and then switched to the Activa nasal mask and slightly remember taking it off at 4amish. I don't quite remember why I took it off. Looked at the data this morning and it stated no Large Leaks and an AHI of 5.8.

Should I be concerned with looking at the overall AHI or just the OS?

User avatar
DoriC
Posts: 5214
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: Tired - Physically and figuratively

Post by DoriC » Thu Oct 28, 2010 11:43 am

Well, I think you have to look at your sleep hygiene, you can't fall asleep until midnight in your recliner(without your cpap ) and then expect a good night's sleep after that. An AHI <5 is considered therapeutic but you'll feel better if it is lower than that. You may not be having large leaks but you need software to look at your leak graphs. When my husband's AHI is higher it usually correlates to an erratic leak line.

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

User avatar
danimal71
Posts: 140
Joined: Mon Oct 04, 2010 8:22 pm
Location: Illinois

Re: Tired - Physically and figuratively

Post by danimal71 » Thu Oct 28, 2010 12:13 pm

I have had the software for a while now. The thing that gets me still is looking at the leak graph and knowing what an "acceptable" leak rate it. I understand what everyone keeps saying about "you shouldn't have leaks" but I also understand there there is an acceptable level of pressure that gets released through the venting. I believe the leak rate for the Mirage Liberty is 41. If that's true and my average leak rate is 46 for the night but no "Large Leaks" are noted by the machine does that mean that the pressure lose was in the acceptable range? Was that average leak made up of the acceptable 41 and then 5 more additionally from a small leak in the seal of the mask somewhere or through my mouth? This is the one question that I have yet had to be answered. When you have a mask from one company and a machine from another what is an acceptable loss of pressure.

DoriC- I looked at the graph this morning and I didn't have any areas that were drastically out of the norm (black line) that looked like a spike but it was more of a saw tooth line. I believe that my average leak was a 46 last night. I don't really know what to think of that as I used 2 different nasal masks and I'm sure the acceptable levels are different.


Am I really the only one having this issue\dilema? Is there something or part that I am overthinking?

User avatar
danimal71
Posts: 140
Joined: Mon Oct 04, 2010 8:22 pm
Location: Illinois

Re: Tired - Physically and figuratively

Post by danimal71 » Thu Oct 28, 2010 4:54 pm

Ok I just got home and my information from the Sleep Dr came in the mail. I am really irritated right now. First not all of the information is there. Second is said that I slept for 300 minutes YEA RIGHT! 300 minutes is 5 hours. I was hooked up from about 10:30 until about 5am and I know I only slept about 1 1/2hrs max! How do I know this someone might ask.....let me tell you. I couldn't fall asleep and kept looking at my f-ing watch all night. I was still awake at 1:15 am....that leaves roughly 3hrs and 45 minutes that I could have slept had I passed out right then and there. That's 225minutes MAX that I could have slept and I didn't. There was no prescription for my equipment in my envelope. That really got my blood boiling. I decided to call my regular Dr's office to see if they had written the prescription. At first they claimed they didn't, then I expressed my frustration\irritation with the Sleep Dr and DME, then after she looked again the woman on the phone stated that someone else in the office had set everything up for me. She transferred me to the woman's voicemail so I could have her call me back.

Knowing what I angrily typed above would anyone request another sleep study? I feel like the original study is not only inaccurate but falsified. I just want to explode right now!!!!!!

When i calm down later I will post the numbers the Dr said he got from the test!

User avatar
danimal71
Posts: 140
Joined: Mon Oct 04, 2010 8:22 pm
Location: Illinois

Re: Tired - Physically and figuratively

Post by danimal71 » Thu Oct 28, 2010 5:25 pm

Ok went and took some deep breaths and spent a few minutes with the kids. I found the times from the second test and they seem more accurate. The times for the initial test were definitely wrong. (edit: the times for the first test which are below are correct. I trusted the tech that did that test. I did not however trust the tech who did the second one. She not only didn't seem to know a lot about what she was doing but also was basically pulling out my hair when she was taking the wires off.)

Results:

Sleep Stage SummarySleep Stage Summary
The patient slept 164min out of 415 minutes of time in bed. Sleep efficiency was 40%. Sleep onset was 31 minutes (no it wasn't). Arousal index of 21 per hour. Rem latency was 372 minutes. stage I was 14%. Stage II was 35%. Slow wave sleep was 46%. REM sleep was 5%. For 160 minutes out of 164 the patient slept in the supine position.

Respiratory Event Summary and CPAP Titration
Moderate snoring noted. there were 6 apneas and 24 hypopneas for a total of 30 respiratory events. Apnea\hypopnea index of 11 per hour. The lowest desaturation of 79% was seen during a 39 second obstructive apnea. The longest event was 41 seconds of obstructive hypopnea where oximetry was 82%. For 64% of the time, oximetry was above 90% while for 35% of the time between 80% to 90%. It rarely dropped below 80%.


added info :I have an appointment scheduled with my Primary general MD. Not one of the associates that works for him that gave me the script for the sleep tests.
Last edited by danimal71 on Fri Oct 29, 2010 8:08 am, edited 1 time in total.

Twentysix
Posts: 101
Joined: Mon Oct 18, 2010 11:18 pm
Location: Canberra

Re: Tired - Physically and figuratively

Post by Twentysix » Thu Oct 28, 2010 7:28 pm

cflame1 wrote:twentysix,
Try pm'ing BillBolton... or DSM... a couple of our Aussie friends on here that might be able to help you with determining what and where to find what you need.
Thanks Cflame 1!