ResScan UnderReporting or SmartLink OverReporting or ?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
jonquiljo
Posts: 484
Joined: Mon Aug 30, 2010 7:22 pm
Location: SF Bay area (Marin)

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jonquiljo » Thu Oct 14, 2010 1:44 pm

DHC wrote: Is there really ANY valid argument that a standard for AHI used by all vendors would NOT be valuable?
Perfectly said! Yes, you can search all over this board and the Internet to find the specs as people have extracted them from these manufacturers, but it shouldn't be the job of any user to comparison test the machines for them.
ozij wrote: Having experienced 4 different autos, I can tell you they work differenty. Of the 4 there were two I whose way of delivering air was intolerable to me. The two others give me informative trends about my breathing events, and I used each machine's trends to improve the therapy each machine gave me.
Well then, you have seen the problem up close and personal. Do you think it's fair that patients be led to believe that these machines are all the same? All you just do is strenthen the argument for some form of standardization.
ozij wrote: I am shocked at the way both you the, scientist (? did yoiu ever get that PhD you studied for?) and the original poster ignore the fact that the dependent variable (AHI) is one achieved by 2 different machines, at different pressure levels. The "simple and elegant comparison" you admire confounds 2 independent variables. A no no every budding scientist learns to avoid when he or she is in his or her educational diapers.
Yes, I did get the degree - used it for about 10 years and left it for better things. It was an omen that after all those years of hard work, the calligrapher spelled my name wrong on my diploma - so I threw it in the trash. Academic and scientific environments can get nauseating after a while and they certainly don't pay the bills very well.
I haven't been parading my credentials here - Calist can do that. I haven't used them in over 20 years, so they are irrelevant now. I was never a big fan of letters and accreditations.

And yes, what DHC did was simple and elegant - he used what he had at his disposal - you rarely get to do the definitive test, certainly with limited resources. He also got to the point where he could show that the machines were delivering different pressures. What's he/she going to do ... spend a lot of time and money to prove what is really the realm of the manufacturers to compare and/or disclose?

Everyone is starting to get their panties in a knot over this one - we see simple information that makes one wonder what we look at on our computer screens - period. Why don't people compare any information they do have to see how we can make this work better for all of us here?

I slept 7 hours last night and my spanking new System One APAP told me I had an AHI of 0.0! Now is that a trend, or am I being fed a pile of crap? It scored me with a VS of 7.6 (which I think means 7.6 snores detected per hour). That's about right - and my original test scored me at about 1 snore every 5 seconds, so the machine is helping with snoring somewhat. But when it comes to reporting AHI - either the machine is the "silver bullet" that Bill Moulton says does not exist or it is the biggest garbage data generator out there. Yes, I slept better than I used to - but how much better? I seriously doubt the machine prevented all events! It's got to be full of itself! Or, as the expression goes ... should I throw away the crutches?

I find the 0.0 so disappointing that I really am thinking about going out and getting a Resmed S9 Auto - which at least won't tell me that it has cured me completely.

Anyway - let's stop the banter and try to cooperate. Like I said before I wasn't impressed with science or academics - mainly because people fought over minutiae just like we are doing now. I think we can rise above that and really trade good information amongst us. Isn't that why we are all here?

jonquiljo
Posts: 484
Joined: Mon Aug 30, 2010 7:22 pm
Location: SF Bay area (Marin)

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jonquiljo » Thu Oct 14, 2010 1:52 pm

jnk wrote:
DHC wrote:Is there really ANY valid argument that a standard for AHI used by all vendors would NOT be valuable?
Yes, that would be valuable. But right now, in the history of sleep medicine, we are at a point where allowing companies and doctors to make money treating sleep is taking a high priority in order to get the subspecialty and the treatments solidly founded. That makes things complicated. But if companies couldn't get patents and make bucks doing what they do, it wouldn't get done, so things have to be a little sloppy right now. Hopefully, it will get cleaned up in a few decades. Meantime, we all do the best we can with how the sleep-related industries go about things.

The above is only my opinion, based mostly on guesswork, and I have no way of proving anything I said. But it was fun to write. Hopefully a line or two may be useful to you. If not, I apologize.
Thanks, jnk ... for bringing this discussion on the even keel it belongs.

If things are a bit sloppy right now - it is preventable. And there are at least published comparisons of iPhones and Droids to see what is more suitable to your needs. Why can't these medical equipment companies stop trying to throw "proprietary algorithms" at us and at least get on the same page with each other? It does patients a disservice.

jnk
Posts: 5784
Joined: Mon Jun 30, 2008 3:03 pm

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jnk » Thu Oct 14, 2010 2:10 pm

jonquiljo wrote: Thanks, jnk ... for bringing this discussion on the even keel it belongs.
Now THERE's something I've never been accused of before!

(I can almost hear carbonman laughing uncontrollably.)

You may find the following article mildly amusing . . .

http://www.sleepreviewmag.com/issues/ar ... -09_02.asp

. . . I know I do.

For the record, I can't say I agree with everything it says, but it is fun handing you some fuel, either way.

DHC
Posts: 142
Joined: Thu Aug 26, 2010 7:32 am

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by DHC » Thu Oct 14, 2010 4:55 pm

carbonman wrote:
Flame on!
No, no flames coming from my direction. Reference instead to the famous quote by George Bernard Shaw:
I learned long ago, never to wrestle with a pig. You get dirty, and besides, the pig likes it.
I'll just persist in asking my questions - pointing out other's hypocrisy (if needed - hopefully not) - and eventually, maybe, something valuable will float out of it.

FWIW

User avatar
carbonman
Posts: 2523
Joined: Wed Jun 25, 2008 7:57 am

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by carbonman » Thu Oct 14, 2010 5:56 pm

jonquiljo wrote: Thanks, jnk ... for bringing this discussion on the even keel it belongs.
jonq, even keel is boring and does nothing for popcorn commodities.
jonquiljo wrote: Why can't these medical equipment companies stop trying to throw "proprietary algorithms" at us and at least get on the same page with each other? It does patients a disservice.
Just another disservice they provide for us.
jnk wrote: (I can almost hear carbonman laughing uncontrollably.)
....did get a BIG.....OOOOHHH...Paalease.......
DHC wrote: No, no flames coming from my direction. Reference instead to the famous quote by George Bernard Shaw:
I learned long ago, never to wrestle with a pig. You get dirty, and besides, the pig likes it.
I'll just persist in asking my questions - pointing out other's hypocrisy (if needed - hopefully not) - and eventually, maybe, something valuable will float out of it.

FWIW
DHC, pigs are wrestled to the ground and then released so we can do it again.....
and in the process, we get to know each other.

Persist away. .....something will eventually float to the surface ....not always sure what.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.

User avatar
LoQ
Posts: 1475
Joined: Sun Apr 06, 2008 1:59 pm
Location: America

Motto

Post by LoQ » Thu Oct 14, 2010 6:01 pm

carbonman wrote:Just another disservice they provide for us.
The motto of the sleep industry as a whole (though not the good ones individually, of course) seems to be "we're not happy until you're not happy."

jonquiljo
Posts: 484
Joined: Mon Aug 30, 2010 7:22 pm
Location: SF Bay area (Marin)

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jonquiljo » Thu Oct 14, 2010 10:25 pm

carbonman wrote: jonq, even keel is boring and does nothing for popcorn commodities.

This is pretty even keel regardless of what you think. You didn't call me a m-f'ing a@@hole or anything like that. I've been called a whole lot worse anyway.

I actually like that article you linked to. Yes, it gets a bit full of itself, but it does have some valid points.

I still can't get over my Respironics Auto telling me my AHI was zero! They must think that we are really stupid to believe this crap. Yeah, I sleep better these days, but don't tell me that I am all fixed. It seems a little too convenient.

Then again, most of medicine feeds us crap until we finally die from one of their moronic mistakes. I know of so many people that have died from medical ignorance, stupidity, or indifference. But I won't get stated on that. My wife and I already went to one funeral this week and it really gets sad seeing how people get trashed by the system.

User avatar
ozij
Posts: 10461
Joined: Fri Mar 18, 2005 11:52 pm

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by ozij » Thu Oct 14, 2010 11:52 pm

DHC wrote: Is there really ANY valid argument that a standard for AHI used by all vendors would NOT be valuable?
What a strange question.
jonquiljo wrote:
ozij wrote: Having experienced 4 different autos, I can tell you they work differenty. Of the 4 there were two I whose way of delivering air was intolerable to me. The two others give me informative trends about my breathing events, and I used each machine's trends to improve the therapy each machine gave me.
Well then, you have seen the problem up close and personal. Do you think it's fair that patients be led to believe that these machines are all the same? All you just do is strenthen the argument for some form of standardization.
DHC wrote:I'll just persist in asking my questions - pointing out other's hypocrisy (if needed - hopefully not) - and eventually, maybe, something valuable will float out of it.
carbonman wrote:Just another disservice they provide for us.
LoQ wrote:The motto of the sleep industry as a whole (though not the good ones individually, of course) seems to be "we're not happy until you're not happy."
Thank you all for helping me uderstand what you've come here to discuss.


O.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery

Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023

jonquiljo
Posts: 484
Joined: Mon Aug 30, 2010 7:22 pm
Location: SF Bay area (Marin)

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jonquiljo » Fri Oct 15, 2010 12:48 am

ozij wrote: Thank you all for helping me uderstand what you've come here to discuss.


O.

Someday I've gotta learn that multiple quote thing. I am so last century!

jnk
Posts: 5784
Joined: Mon Jun 30, 2008 3:03 pm

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jnk » Fri Oct 15, 2010 6:44 am

Sometimes the "Ain't It Awful?" game is fun for patients to play. I've played it myself, with some success. The other games can be fun too. (http://www.speed-flanigan.com/article_g ... _play.html)

But it is the half of the glass that is full that tends to quench my thirst, when it comes to sleep docs, sleep machines, and the needs of fellow patients.*

But hey, that's just me.
carbonman wrote:Tilting at this windmill has been fair sport on the forum for along time.
Yep.

Image
carbonman wrote: . . . I will wager a SWAG that the difference in the S8 and S9 is pure marketing.
. . . My guess is Resmed changed their algorithum so [reported] AHI's would come down.......
. . . Don't worry, be happy!
For the record, I agree with that 1000%.

And I am not worried.

And I am happy.



See?!*

------------

* These are examples of my "SunnysideUp/Pollyanna" game.

User avatar
carbonman
Posts: 2523
Joined: Wed Jun 25, 2008 7:57 am

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by carbonman » Fri Oct 15, 2010 7:22 am

jonquiljo wrote: I actually like that article you linked to.
jonq, JNK was actually the linker.
He has also been known to be a lurker....
and concerning that "even keel" business,
has been/can be a known stinker.
.....but, generally he's a keeper and
we're glad to see him back.

ozij wrote: Thank you all for helping me uderstand what you've come here to discuss.
O.
Just another service we provide.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.

jnk
Posts: 5784
Joined: Mon Jun 30, 2008 3:03 pm

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jnk » Fri Oct 15, 2010 7:30 am


User avatar
carbonman
Posts: 2523
Joined: Wed Jun 25, 2008 7:57 am

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by carbonman » Fri Oct 15, 2010 7:44 am

jnk wrote:Alan Parsons said it best.

http://www.youtube.com/watch?v=TYPQMPO_oY0
I can not link to youtube from work.....

could you be so kind as to provide a written synopsis,
in the interim.

Your cooperation in this matter is greatly appreciated.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.

jnk
Posts: 5784
Joined: Mon Jun 30, 2008 3:03 pm

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by jnk » Fri Oct 15, 2010 8:01 am

carbonman wrote:
jnk wrote:Alan Parsons said it best.

http://www.youtube.com/watch?v=TYPQMPO_oY0
I can not link to youtube from work.....

could you be so kind as to provide a written synopsis,
in the interim.

Your cooperation in this matter is greatly appreciated.
Sorry about that.

It's a live version of Alan Parson Project's "Games People Play." (I was riffing on my "games" post about the recurring games that take place in the forum--and all forums, I assume.) Some of the lyrics, in case you don't recall . . .

"Games people play, you take it or you leave it
Things that they say, just don't make it right
If I'm tellin' you the truth right now, do you believe it
Games people play in the middle of the night"

And thanks for the rewelcoming, despite my stink. (Now if we could just get DreamStalker back . . . )

@DHC: Please, don't take it personal. We hijack everyone and everything whenever possible.

DHC
Posts: 142
Joined: Thu Aug 26, 2010 7:32 am

Re: ResScan UnderReporting or SmartLink OverReporting or ?

Post by DHC » Fri Oct 15, 2010 10:33 am

jnk wrote: @DHC: Please, don't take it personal. We hijack everyone and everything whenever possible.
No, I don't take it personally - unless that is intended. Speaking of which . . .

ozij wrote:
DHC wrote: Is there really ANY valid argument that a standard for AHI used by all vendors would NOT be valuable?
What a strange question.
"Strange" in concept or construct?

As you did not strike me as cognitively challenged, I suspect your comment is really just more games, but am happy to field ANY sincere question or comment you may have. I further WELCOME any sincere and helpful contribution you might offer to the topic.
ozij wrote:
DHC wrote:I'll just persist in asking my questions - pointing out other's hypocrisy (if needed - hopefully not) - and eventually, maybe, something valuable will float out of it.
Thank you all for helping me uderstand what you've come here to discuss.

O.
You are welcome. Though in the interest of insuring you have benefit of the broader context, and not merely the 'soundbite' you chose to cite - my purpose here, as stated previously (and you might have captured those 'soundbites' as well - *IF* you were genuine in your interest as to the reason(s) for participation), is that I know I have a lot to learn and thought this might be a helpful place to aid in that learning.

Candidly, it would be my preference to spend my energy getting answers to my questions and maybe sharing something of value in the process.
jnk wrote:It's a live version of Alan Parson Project's "Games People Play." (I was riffing on my "games" post about the recurring games that take place in the forum--and all forums, I assume.) Some of the lyrics, in case you don't recall . . .

"Games people play, you take it or you leave it
Things that they say, just don't make it right
If I'm tellin' you the truth right now, do you believe it
Games people play in the middle of the night"
>>the recurring games that take place in the forum--and all forums, I assume<<

I am not sure about "all forums", but it would seem there are some 'universals' to be expected. An active forum is much like any community of people and they follow the same patterns as most communities in terms of formation and tensions and even decline. M. Scott Peck, known for his outstanding work; "The Road Less Traveled" also wrote a book describing 'community' called "A Different Drum." Out of that book grew a significant following of people interested in 'community' and community building.

It is not surprising that a new member will receive some resistance. Much like carbonman wrote upthread, the responses to challenges - even (maybe especially) when the challenges are a bit OTT or unfounded, 'tells' the established members something about the new person.

In my case, I am not here to win any friends - though I am not closed to the idea. I am here with a pretty clear purpose. I've been diagnosed with a medical condition. I don't like it. The fact I don't like it could contribute to some of my posts coming across as surly. I don't mean them that way - but they might. In the process of adjusting to this condition and learning more about it, I have questions. It would be nice if I could receive answers to those questions without having to deal with a lot of the chaff that seems to be accompanying it - but I can tolerate that for a time. If/when the chaff becomes more than I care to deal with (was almost there the other day), I will simply not bother with this particular community any longer. I can find what I need elsewhere.

Having said that - for the moment, I am seeking my answers here. While that may chagrin some - too bad. I do not mean insult to anyone, and will do my best to be a productive member of this forum for as long as I choose to remain.

Offered FWIW