Kirk,
What a nice post. I'm sure that Ken will appreciate that when he reads it. I hear where you're coming from and can understand how you thought he may be "one of those." Nice of you to say what you did.
A@22,
You will love your Swift. it is one of the greatest masks out there. Much less confining than a nasal or ff mask and so simple to use and adjust. Make sure you adjust the back strap first, though, the first time and then the top so that the side straps are enough away from the top of your ears. That will be how you know you've done it right. Trust me on this. I have given that advice to people using it who had been having problems with it and were getting pinched by the straps and had to make them too tight to get the Swift not to leak. It doesn't have to be tight, but the straps need to be adjusted a certain way. PM me if you need to when it arrives and if you need help.
See, you did discover the therapy is working in your own way. I thnk it's good that you were noticing the leaks that you wouldn't normally have if you were too tired to wake up from them.
Lunesta is something I take occasionally. It works very fast, within 15 mins., and is gentle. However, unlike what they say, I DO feel it the next morning. But it does help you sleep better. A lot of people take Ambien, but (sorry to all who use it) it scares me as far as addiction. I can take or leave the Lunesta, so I know it's not addicting at all.
Let me know how you do with the Swift. Good luck.
Goodbye CPAP Two
-
Sleepless on LI
- Posts: 3997
- Joined: Mon May 30, 2005 6:46 pm
- Location: Long Island, New York
kenv,
If you are legitimate, you must understand and forgive our skepticism.
Its somewhat hard to believe that such a revolutionary breakthrough would come through so quietly as a testimonial from an individual, versus being shouted from the roof tops as we as apnea sufferers would expect. Of course, knowing the state of apnea treatment and the resistance of people pushing the therapy to anything new....its not an entirely impossible scenario.
Now as far as the device not being officially proven in clinical studies and approved by the FDA for apnea treatment, that doesn't mean it absolutely doesn't work, it just means it hasn't been conclusively shown through the long process of medical device approval. But again, we don't have much to go on and there are MANY snake oil remedies that are trying to take advantage of the "handicapped".
And lets face it, the design is a pretty radical departure without much to compare it to. Getting my tongue literally sucked out of my mouth all night is just plain impossible to imagine. You mentioned some time required to adapt to the device. Could you describe what you have gone through and what it feels like? I wonder about being able to swallow saliva with a tongue held like that? I wonder about the tongue tip drying out during the night. I keep picturing a tongue hicky or something from the suction. Could you please toss us some more details of your experience. It would be interesting AND would lend more credibility.
Notice we ARE still paying attention, so that means we ARE still open to listening, but you need to pull yourself out of the background scatter of general spam with some details!
If you are legitimate, you must understand and forgive our skepticism.
Its somewhat hard to believe that such a revolutionary breakthrough would come through so quietly as a testimonial from an individual, versus being shouted from the roof tops as we as apnea sufferers would expect. Of course, knowing the state of apnea treatment and the resistance of people pushing the therapy to anything new....its not an entirely impossible scenario.
Now as far as the device not being officially proven in clinical studies and approved by the FDA for apnea treatment, that doesn't mean it absolutely doesn't work, it just means it hasn't been conclusively shown through the long process of medical device approval. But again, we don't have much to go on and there are MANY snake oil remedies that are trying to take advantage of the "handicapped".
And lets face it, the design is a pretty radical departure without much to compare it to. Getting my tongue literally sucked out of my mouth all night is just plain impossible to imagine. You mentioned some time required to adapt to the device. Could you describe what you have gone through and what it feels like? I wonder about being able to swallow saliva with a tongue held like that? I wonder about the tongue tip drying out during the night. I keep picturing a tongue hicky or something from the suction. Could you please toss us some more details of your experience. It would be interesting AND would lend more credibility.
Notice we ARE still paying attention, so that means we ARE still open to listening, but you need to pull yourself out of the background scatter of general spam with some details!
Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
Hey, whatever happend to KenV?
We finally started to treat him as a legitimate claim, and he seems to have vanished on us, just when we asked some more in depth questions to really legitimize the claims.
KenV, If you are still lurking....
I would be interested in knowing what your ORIGINAL sleep study showed for results, since you seem reticent to do a followup(somewhat understandable at the price of sleep studies). But some devices only work for people with certain degrees of apnea, so it would be nice to bracket your results.
At least, what were your original "untreated" oxygen desat numbers and AHI numbers?
Gaining credibility is not assured by dropping in a comment on a forum, but we can be won over. Consider Pillars, which work for some people, versus the CPAP-pro device, which appears to be quite a scam, and most people have come to recoginise both as such.
Although I am still wondering how we get this $150 New Zealand device in The States, since it is NOT FDA approved and DOES require a prescription and most docs will not even consider prescribing a non-approved anything.
We finally started to treat him as a legitimate claim, and he seems to have vanished on us, just when we asked some more in depth questions to really legitimize the claims.
KenV, If you are still lurking....
I would be interested in knowing what your ORIGINAL sleep study showed for results, since you seem reticent to do a followup(somewhat understandable at the price of sleep studies). But some devices only work for people with certain degrees of apnea, so it would be nice to bracket your results.
At least, what were your original "untreated" oxygen desat numbers and AHI numbers?
Gaining credibility is not assured by dropping in a comment on a forum, but we can be won over. Consider Pillars, which work for some people, versus the CPAP-pro device, which appears to be quite a scam, and most people have come to recoginise both as such.
Although I am still wondering how we get this $150 New Zealand device in The States, since it is NOT FDA approved and DOES require a prescription and most docs will not even consider prescribing a non-approved anything.
Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
-
Sleepless on LI
- Posts: 3997
- Joined: Mon May 30, 2005 6:46 pm
- Location: Long Island, New York
Being it is invented by a Kiwi and from Christchurch (my birth city), I may well try one of these.
I read all the detail & despite having spent more than the equiv of $NZ150 on my failed Dr Sue NB, I am willing to give one of these a try but it may take a few weeks to track one down.
I like the concept hence this afirmative post.
Cheers
DSM
(PS Hi folks, am still around, just doing a few things that are keeping me occupied )
I read all the detail & despite having spent more than the equiv of $NZ150 on my failed Dr Sue NB, I am willing to give one of these a try but it may take a few weeks to track one down.
I like the concept hence this afirmative post.
Cheers
DSM
(PS Hi folks, am still around, just doing a few things that are keeping me occupied )
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
CPAP-pro device is a scam?
The one I'm using? I hadn't heard this. And I'm wondering if it can poassibly be the same device I'm using. A mouthpiece with nasal pillows attached? That's what mine is. Please elaborate. If it's a scam of some kind then my mentioning it in another post may have *ME* coming off looking like "one of those".
The one I'm using? I hadn't heard this. And I'm wondering if it can poassibly be the same device I'm using. A mouthpiece with nasal pillows attached? That's what mine is. Please elaborate. If it's a scam of some kind then my mentioning it in another post may have *ME* coming off looking like "one of those".
_________________
| Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: original pressure 8cm - auto 8-12 |
[quote="yardbird"]CPAP-pro device is a scam?
The one I'm using? I hadn't heard this. And I'm wondering if it can poassibly be the same device I'm using. A mouthpiece with nasal pillows attached? That's what mine is. Please elaborate. If it's a scam of some kind then my mentioning it in another post may have *ME* coming off looking like "one of those".
The one I'm using? I hadn't heard this. And I'm wondering if it can poassibly be the same device I'm using. A mouthpiece with nasal pillows attached? That's what mine is. Please elaborate. If it's a scam of some kind then my mentioning it in another post may have *ME* coming off looking like "one of those".
Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
Hey dsm & kenv,
I'm a kiwi too! Grew up in Wellington, went to Univ. of Canterbury in engineering back in the '60's. Maybe if there are enough of us around we can form a club.
Geez, after 35 years in the USA I'm about to become a US citizen on Jan 26.
Getting close to retirement - thinking of doing 6 months in kiwi land, 6 months in US for a perpetual summer!
She'll be 'right, mate... I'll join you in a Steinie
Derek
I'm a kiwi too! Grew up in Wellington, went to Univ. of Canterbury in engineering back in the '60's. Maybe if there are enough of us around we can form a club.
Geez, after 35 years in the USA I'm about to become a US citizen on Jan 26.
Getting close to retirement - thinking of doing 6 months in kiwi land, 6 months in US for a perpetual summer!
She'll be 'right, mate... I'll join you in a Steinie
Derek
snork1-
whew! You had me hoping I wasn't scammed. There ARE things I do not like about the cpap-pro. I started googling to look for posts about it being a scam and the most common thing I came up with was that it looked like a prototype. Ok, so it ain't much on looks. It did take quite a bit of fiddling to get it fitted so that the nasal pillows stay put.
What I DISLIKE is that A.) while the "snap it onto upper teeth" part works very well, there's nothing for your BOTTOM jaw. Your teeth basically are on the bottom part of a hard plastic "casing" for the mouthpiece. In reading about OSA I found that it was sometimes desireable to bring the bottom jaw forward. If anything the cpap-pro would tend to move it BACK instead. ...and B.) while all CPAPs require cleaning, the mouthpiece obviously requires some special attention. I brush my mouthpiece with toothpaste when I get up in the morning after I brush my teeth. And of course I then clean the nasal pillows, etc. So my belief at this point is that it requires more maintenance. ...and C.) if you are too rough with it during cleaning... you may get it a bit out of adjustment and cause some leaking.
What it DID for me though, was to get me out of the awful headgear they had sent me home with and which I found intolerable. I stopped using my CPAP because of that. And in summer when it was warm... forget it. I'm not wearing a hat to bed! I live in NY state in an area where it's more common to NOT have air conditioning than it is to HAVE it. In short, the cpap-pro got me back to actually USING my CPAP and seeing the benefits of continuing to do so.
However, the list of DISLIKES brought me to finding these message boards. And seeing masks like the Swift is telling me that this was a good "find" for me. Minimal headgear, nasal pillows (which so far I seem to prefer over the mask, but that MAY just be due to my bad initial experience with the mask...which was really the headgear), and NO HOSE going between my eyes! GREAT feature when you wear glasses!!
And to be clear... I'm not here to expound on the greatness of the cpap-pro. In fact I came here to find out what I could change for the better. And my mask looks like it's going to be the first thing to get replaced. I
*DO* have to say, though that were it not for the cpap-pro, I may have continued to not use my CPAP and so be one step closer to dying in my sleep. If all it did was show me that there's another way, then I am grateful. May not be the BEST way.... but that's why I came here. To verify that.
Also...the single hose of the Swift seems like it would be better for an APAP than the multi-hose getup on the cpap-pro. At least from what I've read about the APAP machines... and an APAP will hopefully be my next purchase after replacing my mask. With heated humidifier... I'm noticing my passover is not providing sufficient humidity, but more importantly at this time of year as the room temp is cooler I feel like I have cold air being blown up my nose.
snork1, THANK YOU... truly... for letting me know the general feeling about the cpap-pro. I honestly had no idea. Maybe time to move up my timetable for the mask replacement.
whew! You had me hoping I wasn't scammed. There ARE things I do not like about the cpap-pro. I started googling to look for posts about it being a scam and the most common thing I came up with was that it looked like a prototype. Ok, so it ain't much on looks. It did take quite a bit of fiddling to get it fitted so that the nasal pillows stay put.
What I DISLIKE is that A.) while the "snap it onto upper teeth" part works very well, there's nothing for your BOTTOM jaw. Your teeth basically are on the bottom part of a hard plastic "casing" for the mouthpiece. In reading about OSA I found that it was sometimes desireable to bring the bottom jaw forward. If anything the cpap-pro would tend to move it BACK instead. ...and B.) while all CPAPs require cleaning, the mouthpiece obviously requires some special attention. I brush my mouthpiece with toothpaste when I get up in the morning after I brush my teeth. And of course I then clean the nasal pillows, etc. So my belief at this point is that it requires more maintenance. ...and C.) if you are too rough with it during cleaning... you may get it a bit out of adjustment and cause some leaking.
What it DID for me though, was to get me out of the awful headgear they had sent me home with and which I found intolerable. I stopped using my CPAP because of that. And in summer when it was warm... forget it. I'm not wearing a hat to bed! I live in NY state in an area where it's more common to NOT have air conditioning than it is to HAVE it. In short, the cpap-pro got me back to actually USING my CPAP and seeing the benefits of continuing to do so.
However, the list of DISLIKES brought me to finding these message boards. And seeing masks like the Swift is telling me that this was a good "find" for me. Minimal headgear, nasal pillows (which so far I seem to prefer over the mask, but that MAY just be due to my bad initial experience with the mask...which was really the headgear), and NO HOSE going between my eyes! GREAT feature when you wear glasses!!
And to be clear... I'm not here to expound on the greatness of the cpap-pro. In fact I came here to find out what I could change for the better. And my mask looks like it's going to be the first thing to get replaced. I
*DO* have to say, though that were it not for the cpap-pro, I may have continued to not use my CPAP and so be one step closer to dying in my sleep. If all it did was show me that there's another way, then I am grateful. May not be the BEST way.... but that's why I came here. To verify that.
Also...the single hose of the Swift seems like it would be better for an APAP than the multi-hose getup on the cpap-pro. At least from what I've read about the APAP machines... and an APAP will hopefully be my next purchase after replacing my mask. With heated humidifier... I'm noticing my passover is not providing sufficient humidity, but more importantly at this time of year as the room temp is cooler I feel like I have cold air being blown up my nose.
snork1, THANK YOU... truly... for letting me know the general feeling about the cpap-pro. I honestly had no idea. Maybe time to move up my timetable for the mask replacement.
_________________
| Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: original pressure 8cm - auto 8-12 |
Thanks Kirk, I will accept your apology. I hadn't intended to visit this forum again - I don't like being punched on the nose - but I just received a PM from a member asking about the TSD. Like I told him, it works for me and I am so thankful for not having to use the ruddy machine which has caused me nothing but problems, severe rhinitis and bleeding tissues from having the use Alanase to counter the rhinits. All I can say is to try it - its only a simple thing and personally I thought it a bit expensive for what it is but its dirt cheap compared to a Cpap machine.
Regards Ken
Regards Ken
-
Sleepless on LI
- Posts: 3997
- Joined: Mon May 30, 2005 6:46 pm
- Location: Long Island, New York
-
CarolinaBlueMax
- Posts: 28
- Joined: Thu Oct 20, 2005 2:57 pm
-
Guest
SLPYHED wrote:Thanks Ken! I am glad that it works for you.
Lesson learned on my part. DONT JUMP TO CONCLUSIONS.
Keep us posted.
Chow.
Kirk
Wow! Where do I get some of the koolaide?
Now everyone is jumping to the conclusion that a device that has not been proven to address ANYTHING other than MAYBE snoring, is now curing Ken's OSA.
Did I mention I have a bridge to sell?
Until someone gets a sleep study done WITH this device AND it shows that it actually works, it is just another way for someone to make money off other people's misery.
Sorry to be skeptical, but there is NO proof that this thing works and entertaining it as a "cure" to sleep apnea will potentially put peoples lives at risk. Is someone's life less valuable than KenV's "feelings"?
Get it tested, then shout from the rooftops that its a cure. Until then it belongs here http://www.quackwatch.org/