Oh, Im so glad the inhaled steroid is helping you! Those didnt do anything for me because I dont have asthma.LoQ wrote:Thanks for the reply, and I'm sorry you are having so much trouble with it. I have RAD and asthma, too, though I don't think I'm struggling in the ways that you describe. I have noticed that I feel more energetic since I started taking a steroid (inhaled).
I think one of the ways that my goals are not aligned with what doctors are trained for is that they are trained to save and extend lives. I don't really care about that as much as I do about the quality of life. So when I ask my pulmonologist "is 94% spo2 OK?" he says "yes" because he's thinking about whether I'm in danger of decompensating at that level. Clearly not, but it's pretty clear to me that I feel a lot better at 97% than at 94%.
I get what you are saying about the doctors wanting the best numbers, but that is fabulous that you feel a lot better at 97% than 94%.
I will get this figured out. I know I need a new mask, probably new hoses, and a little more patience!
thank you for sharing your experience..