CPAP for Tracheobronchomalacia

spage5 · Post by **spage5** » Mon Oct 24, 2016 8:49 pm

I recently have been diagnosed with tracheomalacia after having a bronchoscope and 2 years of coughing. I have an autoimmune (unspecified connective tissue disease) after having repeated lung infections (heavy mucous) after having my one and only flu shot!! I had a sleep study and no apena. Waiting for insurance approval. Looks like I may have to pay for CPAP machine out of pocket. It is taking forever. I also seem to have some type of fungal infection, but waiting for those results. Does anyone know of any specialists that really know about tracheomalacia. I live by Hopkins, but I do not think it is one of their specialties. I am told this does not improve, but I am praying the CPAP will strengthen the muscles.

49er · Post by **49er** » Tue Oct 25, 2016 4:07 am

spage5 wrote:I recently have been diagnosed with tracheomalacia after having a bronchoscope and 2 years of coughing. I have an autoimmune (unspecified connective tissue disease) after having repeated lung infections (heavy mucous) after having my one and only flu shot!! I had a sleep study and no apena. Waiting for insurance approval. Looks like I may have to pay for CPAP machine out of pocket. It is taking forever. I also seem to have some type of fungal infection, but waiting for those results. Does anyone know of any specialists that really know about tracheomalacia. I live by Hopkins, but I do not think it is one of their specialties. I am told this does not improve, but I am praying the CPAP will strengthen the muscles.

If Hopkins can't help you, maybe they can refer you to someone who can?

Best of luck with everything.

49er

Dianne02138 · Post by **Dianne02138** » Tue Nov 01, 2016 7:12 pm

The Boston Hospitals have some expertise, including Beth Israel, Brigham and Women, and Mass General.

ColinF · Post by **ColinF** » Mon Oct 08, 2018 8:04 pm

Hi everyone,
I have also been diagnosed with tracheobronchomalacia. I was referred to a lung specialist as I have had chest infections for the last 4 months & still not cleared up. The lung specialist advised CPAP?

Julie · Post by **Julie** » Mon Oct 08, 2018 8:25 pm

Did you mean that to be a question? Are you going onto C/Apap?

zoocrewphoto · Post by **zoocrewphoto** » Tue Oct 09, 2018 1:01 am

varaonaid wrote: ↑
Fri Apr 23, 2010 4:15 pm
Oh, about the Quattro mask. They seem to want me in a FF mask because of the cough which makes sense. I actually don't mind the feel of a FF mask I just wish I had one that fit me. The RT that brought me the mask didn't take any time to fit me and we never put it on with the CPAP on - just kinda held it up to my face and showed me how to tighten the headgear. During the sleep study, I tried a hybrid FF mask, a Fisher-Pykell (sp?) under chin FF mask with a firm gray foam, the Respironics gel FF mask and I think one other that I can't remember. I hated all of them.

They're recommending I try the FullLife by Respironics especially because of the improved line of sight for during the day. Eventually, my DME thought I might do well with a day mask and night mask so that if I can't find just one mask with a good line of sight AND fit throughout the night, it gives more options.

Just a suggestion. if you are coughing with the mask on, and you feel that you are unable to get enough air - try raising the pressure. I normally use a range of 11-17 for my sleep apnea. If I have a bad cough, 11 isn't enough if I have a coughig spasm. I will rip the mask off to get more air. If I raise the minimum to 13, I can get through the coughing spasm without removing my mask. Since you have a coughing issue, you may feel like it isn't enough air if you get going on a coughing spasm. Just raise it a little at a time until you find what works best for you.

CPAP for Tracheobronchomalacia

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Re: CPAP for Tracheobronchomalacia

Re: CPAP for Tracheobronchomalacia