hi - trying to come back

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
momexp5
Posts: 125
Joined: Mon Jun 20, 2005 8:35 am

hi - trying to come back

Post by momexp5 » Thu Sep 15, 2005 9:37 pm

I have been OUTRAGEOUSLY busy, you guys - getting 5 kids back to school - treating allergies still, I'm on a caveman diet now (ostrich, buffalo, eggplant, squash, etc), though I'm horrible at it, very hard to stick to. My ENT who is treating the allergies and who did my septum surgery, is now talking oral surgery as in tongue reduction and I think UPPP. I think that's considered exciting and/or controversial or worse in these parts - I have a lot of searching to do. I don't know what to think of it. I have a neurologist who is the official sleep apnea treater, I'll be coordinating this with him of course, seeing what he thinks. I do like my ENT and I think he knows what he's doing. Still, scary. I'll at least try to let you all know how it shakes out.

Must sleep - ah, sleep.
41yow, 118lb, severe OSA, lots of allergies, had surgery for deviated septum.
click to see my introductory post.

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rock and roll
Posts: 1222
Joined: Mon Nov 01, 2004 7:30 pm
Location: Texas

Post by rock and roll » Fri Sep 16, 2005 7:41 am

Oh my!


Surely there are alternatives, I can't imagine having the tongue reduced!

momexp5
Posts: 125
Joined: Mon Jun 20, 2005 8:35 am

Post by momexp5 » Fri Sep 16, 2005 7:58 am

lol, me neither! I don't even know that I got what he was talking about, we didn't discuss details - it's not happening any time soon, whatever it is (I don't think)

I'm looking at this link right now - seems sort of applicable ::still reading myself::: http://www.aafp.org/afp/991115ap/2279.html

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rested gal
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Joined: Thu Sep 09, 2004 10:14 pm
Location: Tennessee

Post by rested gal » Fri Sep 16, 2005 6:17 pm

momexp,

There's an awful lot of reading in the link I'm going to provide, but those are awfully serious surgeries with "no turning back" that the ENT is suggesting for you. I don't care how good he is or how much faith you have in his judgment and skill, you might want to read a LOT about UPPP before you agree to that.

In the link below, scroll down to the bottom and read EVERYTHING you can in those "UPPP MMA" topics. The poster nicknamed Billinseattle has had just about every surgery in the book. He's an extremely intelligent man who researched them all thoroughly. I think he'd be the first to tell you to avoid UPPP.

After you get through all those topics and have a better idea why a person should probably NOT have UPPP surgery, then go back up to the top of the page and immerse yourself in the topics about Pillar Procedure and TAP II used together. Those might very well achieve the same effect the doctor is looking for, and are reversible if need be. Tongue reduction and UPPP are not reversible.

Good luck!!

LINKS to surgery, turbinates, Pillar, TAP experiences

momexp5
Posts: 125
Joined: Mon Jun 20, 2005 8:35 am

Post by momexp5 » Fri Sep 16, 2005 10:33 pm

http://www.chicagoent.com/Clinical_Staging.pdf

quite technical, specific - success rates of UPPP given various combinations of palate position and tonsil size and body mass index

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ozij
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Joined: Fri Mar 18, 2005 11:52 pm

Post by ozij » Fri Sep 16, 2005 11:55 pm

Thanks for posting it, momexp.
O.

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