Help me please, new user, new to message board

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: Help me please, new user, new to message board

Post by Pugsy » Mon Sep 21, 2009 8:08 am

ozij wrote:This is less surprising than you may think, Pugys,since the ResMed auto needs snores or flow limitations to drive the pressuer up once it goes above 10.
Gottcha, While I knew this in the back of my brain hadn't thought about the practical aspects of what happens because hadn't seen it in action. This is where it would be nice if TD had a machine like mine and the software so we could see the Flow limitations and snores or their absence.

Would the Respironics auto still do the same thing or is its algorithm different enough to go above 10 cm?

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TylersDad
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Re: Help me please, new user, new to message board

Post by TylersDad » Mon Sep 21, 2009 8:30 am

Guys,

Great information. Thank you.

Answers to your questions -

1) I do not have any data on my sleep study.

2) They came in during the middle of the night and changed me to a full mask so really only got three hours of data with the full face on.

***My numbers last night where basically the same. My pressure was 10 with 27.6 AHI.

***My next move. I just got in the card reader and the software. I am going to work on it later today when I get a break and try to upload for you guys to look at.

Thank YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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DoriC
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Re: Help me please, new user, new to message board

Post by DoriC » Mon Sep 21, 2009 8:38 am

TylersDad wrote:Pugsy,



3) Are their any tricks for stopping leaks around the bridge of the nose that blow into the corners of your eye? I would say ALL of my leaks are at this spot on each side of the mask.
Have you fiddled with that knob on your Quattro? Although my husband couldn't stop the leaks around his cheeks and chin with that mask, he was able to get a good seal around the eyes and nose with that knob adjustment. Of course then he got a very sore nose bridge and so we switched to UMFF. Are you sure your mask is the right size for you?

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Re: Help me please, new user, new to message board

Post by TylersDad » Mon Sep 21, 2009 8:47 am

Doric,

No, I am not sure I have the right size.

I cranked it down last night and my nose is red this morning and it leaked so bad I took it off around 4:30 this am. I feel like I need something on my face to help create a seal that my skin cant.

I will keep working at it until maybe I find a solution.

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ozij
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Re: Help me please, new user, new to message board

Post by ozij » Mon Sep 21, 2009 11:22 am

Pugsy wrote:
ozij wrote:This is less surprising than you may think, Pugys,since the ResMed auto needs snores or flow limitations to drive the pressuer up once it goes above 10.
Gottcha, While I knew this in the back of my brain hadn't thought about the practical aspects of what happens because hadn't seen it in action. This is where it would be nice if TD had a machine like mine and the software so we could see the Flow limitations and snores or their absence.

Would the Respironics auto still do the same thing or is its algorithm different enough to go above 10 cm?
The Resprionics algorithm is different, if It would raise the pressure, and stop when it figured out it goofed, that is when it got about 6 apneas not responding to pressure. Then it would drop.

TD, since you only slept 3 hours. it may well be that your titration pressure is too low, and need more pressure when you sleep longer, deeper and dream, at home.

ResScan will show snore and flow limitations only when and additional module is used, called ResLink. Otherwise it shows apneas, hypopneas leaks and pressure variations. I also shows the length of each apnea.

Try to get you PSG results - they belong to you.

Correction on the EPR - I mean EPR=3 of course.

O.

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TylersDad
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Re: Help me please, new user, new to message board

Post by TylersDad » Sat Sep 26, 2009 5:32 pm

I finally got my software and reader installed and working.

Can someone give me an idea of how to post the results on here for you guys to review and make changes? Please keep in mind I am not very good at computers so details would be very helpful.

Thanks.

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Pugsy
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Re: Help me please, new user, new to message board

Post by Pugsy » Sat Sep 26, 2009 5:54 pm

TylersDad wrote:Can someone give me an idea of how to post the results on here for you guys to review and make changes? Please keep in mind I am not very good at computers so details would be very helpful.

viewtopic/t45380/How-Do-You-Upload-Data ... Topic.html
see if this gets you to where you need to be

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Re: Help me please, new user, new to message board

Post by TylersDad » Sat Sep 26, 2009 8:25 pm

Here is my shot at it.

Please remember I am now on a loaner auto machine. Settings 8 - 20.

Just realized today the EPR is set on 3 even thought I told the DME to set it at 1. Will be changing tonight.

Please let me know your thoughts on what I can do to improve my situation.

Thanks.

Image

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Pugsy
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Re: Help me please, new user, new to message board

Post by Pugsy » Sun Sep 27, 2009 4:49 am

Let's see what happens with EPR reduced to 1.

Your machine doesn't appear to be responding very aggressively to the events. Your leak is great so we can't blame leak. It could very well be what Ozij says about the ResMed algorithm. Sure seems to be that way.

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TylersDad
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Re: Help me please, new user, new to message board

Post by TylersDad » Sun Sep 27, 2009 8:41 am

So here are my results from last night:

I changed the lower end of the pressure to 9 (from and the EPR to 1 (from 3)

Pressure 10.8

Leak .34

AHI 21.6

AI 5.7

HI 15.9

It really seems like nothing I do makes any improvement.

Am I just a lost cause?

Any suggestions?

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Pugsy
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Re: Help me please, new user, new to message board

Post by Pugsy » Sun Sep 27, 2009 9:05 am

Well at least the pressure went above 10 last night. Your leak was .34 so you were pushing that .40 line in the sand and well above the .20. So leak was far from optimal unless you see on the graph that the higher average was the result of maybe a large spike and the rest of the time it was pretty minimal. This is where the graphs help to see if the average is really an overall average or simply skewed data because of a couple of large leaks that weren't consistent through the night.

While one night certainly does not make a trend, last night really isn't all that different from the other nights.

How long do you have this loaner APAP? Who gave it to you? Was it DME in response to the poor results at titrated pressure on the CPAP?

You aren't a lost cause but obviously you are going to need more tweaking to figure out what you need for better results.

I was pretty fearless with my tweaking but that is me and I don't have a truckload of patience. Maybe Ozij or Den have some ideas but if it were me and I wasn't going to have this auto unit very long I wouldn't spend a lot of time at one setting. It's not like we are tweaking numbers from AHI of 7 and trying to get them to 4. An AHI of 20 plus is with therapy is more than some people have without therapy so....there is more work to be done.

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Re: Help me please, new user, new to message board

Post by TylersDad » Sun Sep 27, 2009 5:59 pm

Pugsy,

I probably have the loaner for as long as necessary, the DME is nice and seems to want to help so I dont think I am under any pressure to give it back.

The DME gave it to me to try to help with the poor results I was seeing with the Ellite machine. I dicussed with the Dr. (had to go see him for something else) and he said he thought it would be a good idea to try an auto machine because at the numbers I was showing on the Ellite, "my therapy was not sufficient".

I want to make sure I understand, when you say be agressive, is the only answer to "go up" in numbers (of course other than reducing leaks). Thing that confuses me is that I have seen it said that someone with severe OSA may have a pressure of 6cm where someone with slight OSA may have a pressure of 18cm.

I guess the logic would say if whatever is closing up on me, then I would need a higher pressure to open it up.

I was under the assumption that the auto machine would go up to 20 if that is what it took to stop the problems, but it seems like to me it will only go up one or two points and then drop back down real fast which allows another event to happen 2 or 3 minutes later?

Thanks for the help.

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Wulfman
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Re: Help me please, new user, new to message board

Post by Wulfman » Sun Sep 27, 2009 6:13 pm

TylersDad wrote:Pugsy,

I probably have the loaner for as long as necessary, the DME is nice and seems to want to help so I dont think I am under any pressure to give it back.

The DME gave it to me to try to help with the poor results I was seeing with the Ellite machine. I dicussed with the Dr. (had to go see him for something else) and he said he thought it would be a good idea to try an auto machine because at the numbers I was showing on the Ellite, "my therapy was not sufficient".

I want to make sure I understand, when you say be agressive, is the only answer to "go up" in numbers (of course other than reducing leaks). Thing that confuses me is that I have seen it said that someone with severe OSA may have a pressure of 6cm where someone with slight OSA may have a pressure of 18cm.

I guess the logic would say if whatever is closing up on me, then I would need a higher pressure to open it up.

I was under the assumption that the auto machine would go up to 20 if that is what it took to stop the problems, but it seems like to me it will only go up one or two points and then drop back down real fast which allows another event to happen 2 or 3 minutes later?

Thanks for the help.
Not a ResMed Auto. They will not pursue an apnea above the pressure of 10 cm. UNLESS it's preceded by flow limitations or snores. If the machine is already taking care of them at pressures below 10, then your only alternative is to move the minimum pressure up until it eliminates the other events.


Den
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Wulfman
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Re: Help me please, new user, new to message board

Post by Wulfman » Sun Sep 27, 2009 6:19 pm

TylersDad wrote:So here are my results from last night:

I changed the lower end of the pressure to 9 (from and the EPR to 1 (from 3)

Pressure 10.8

Leak .34

AHI 21.6

AI 5.7

HI 15.9

It really seems like nothing I do makes any improvement.

Am I just a lost cause?

Any suggestions?
And, for the most part, it looks like that's what it's doing with your machine........bumping its head on 10 cm.

I can't remember.....is "positional sleeping" (on your back) an issue with you?


Den
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
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babydoss
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Re: Help me please, new user, new to message board

Post by babydoss » Sun Sep 27, 2009 6:25 pm

My husband had the same problem when he started 2.5 yrs ago. I insisted that he get a 2nd sleep study because I sleep with him every night and could hear he was still having "episodes". My husband started out at a 15 pressure & had to go up to a 19. He has a VERY severe case of OSA/CSA/Cheyne Stokes. He feels a lot better, but he still has nights here and there that aren't so good.

Are you married? Is there someone who can listen out for you while you sleep?

Best of luck to you!
Lee