I need help!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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SleepNazzi
Posts: 25
Joined: Mon Aug 10, 2009 11:59 am

Re: I need help!

Post by SleepNazzi » Tue Aug 11, 2009 8:29 am

alnhwrd wrote:If you had the surgery after your sleep study, it is possible that your pressure needs have changed, probably increased, significantly. If it were me and money were not an issue, I would have a new sleep study done. This will give a brand new prescription which is required to buy machines and masks, and is good for life once you get a copy for yourself.
This is indeed the case. I'm currently trying to get a referral through my PCP.
alnhwrd wrote:I would also get a newer, quieter machine, since it sounds like that is an issue for you. The S8 Autoset II and M Series Auto with A-flex are both excellent machines that give good treatment. Hose covers help, as does hose management to bring the hose down from the top of your bed to your head. This allows you to move freely back and forth without getting hung up. I use a series of Command hooks on the wall to bring the hose to the top of my headboard and from their down. This works great for me. There are lots of masks out there, probably more than five years ago. If you find a friendly health care equipment provider they might let you try some different types of masks to see which suit you best. There is also a site called cpapauction.com which will let you by slightly used or surplus masks from people for less than retail prices.
Thank you so much for the information. I will put it to good use while researching my options.
alnhwrd wrote: You could also try to use your old machine, just to give yourself a jump on getting used to CPAP again. Even if 8 cm won't eliminate your apneas, it could reduce them. Just trying to use it, even on weekends, might be helpful, since it could take some time to get your new equipment. You could put your machine on the floor, or in a nightstand drawer, or in a modified stryofoam cooler to reduce the noise, or try some white noise, which is what I do. The only caveat is that if you start to struggle, continue with your plan to get the new sleep study and equipment, which if properly set up should help you more.
Already doing it my friend. That is what ultimately brought me to these forums. My machine and equipment are from the stone age looking at some of the newer options on the market. However, I am already using the torture device in CPAP clothing and in doing so, I feel more alert and rested. Now to find a quiet machine, a comfortable mask or two and some hose paraphernalia to make my life a bit more comfortable and my sleep a lot more restful.

BTW, looking through all my paperwork, I came across my sleep study and re-read it. It reads like a Boris Karloff movie except the ending more grim. I've been exercising more regularly and feel that I'm getting back into shape (well other than pear shape). I'm hoping my new sleep study will be a marked improvement over the original.

Keep the suggestions/comments coming...

NO SLEEP FOR YOU!
Machine: Fisher & Paykel HC221
Mask: Fisher & Paykel Felxi
Presure: 8cm/20min ramp

User avatar
SleepNazzi
Posts: 25
Joined: Mon Aug 10, 2009 11:59 am

Re: I need help!

Post by SleepNazzi » Tue Aug 11, 2009 8:39 am

Hoze-Zay wrote:YOu might want make a few AA meetings..I sense we have something in common.
Can't do it! I love my beer! Speaking of which, has anyone tried filling up your reservoir with a nice lager? LMAO... Just kidding of course...
Machine: Fisher & Paykel HC221
Mask: Fisher & Paykel Felxi
Presure: 8cm/20min ramp

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Muse-Inc
Posts: 4382
Joined: Fri Jun 12, 2009 8:44 pm
Location: Atlanta, GA

Re: I need help!

Post by Muse-Inc » Tue Aug 11, 2009 12:47 pm

SleepNazzi wrote:...My machine and equipment are from the stone age...already using the torture device in CPAP clothing

SleepNazzi wrote:...in doing so, I feel more alert and rested.
Way ta go...easy not likely given it's been 5 yrs and pressure might be way off...but better than nothing!
Helps the brain so ya can make more effective decisions...like coming here and joining in...welcome aboard!
SleepNazzi wrote:...Now to find a quiet machine, a comfortable mask or two and some hose paraphernalia to make my life a bit more comfortable and my sleep a lot more restful.
Ya got it...that's it in a nutshell! Keywords here: patience and persistence. ResMeds are the quietest, lightest, and provide the most data on their LEDs...but ya can't legally buy the software in the US, some here have ordered from Australia. Each mfg uses different algorithms in delivering air and dealing with flow restrictions/events which means each person will respond differently to each device with one resulting in the best AHIs overnight. Everyone seems to have their own favorite.

4 main types of masks: nasal pillows, nasal (cover nose with a forehead gizzmo), hybrids (cover mouth & had nasal pillows for people who like pillows but mouth leak), full face (FFM that cover mouth, nose, and eyes). Then, there's the unusual masks such as the Nasal Aire that looks a lot like how they deliver O2 with nasal prongs (Babette loves hers and trials 'em if ya wanna try one out) and the NoMask. If ya like pillows, ya outta have a mask for times with major congestion (hybrid style or FFM).
SleepNazzi wrote:...sleep study and re-read it. It reads like a Boris Karloff movie except the ending more grim...
Can ya say scared straight brother hosehead I got the message loud and clear that I was running towards the Grim Reaper not away when I read mine...no wonder I couldn't think straight and made so many 'stupid' errs at work.
SleepNazzi wrote:...hoping my new sleep study will be a marked improvement over the original.
[/quote]
Because you had all that surgery, no way to predict <fingers crossed it'll be good>. Whatever it reveals, I know ya can do this!
ResMed S9 range 9.8-17, RespCare Hybrid FFM
Never, never, never, never say never.