Frustrated with entire system
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Tcamillemars
- Posts: 123
- Joined: Tue Oct 28, 2008 2:39 pm
- Location: Colorado
Frustrated with entire system
I had a physical from a PA, and complained I never sleep. She ordered an overnight oximetry study and the results from that warranted a sleep study. When I got the results from the sleep study, half of the facts were wrong (height, weight, neck circumference, etc) and it was evaluated by a PhD and signed off by an MD. The PA then ordered the CPAP set at 10 which was recommended. I asked her how I knew if everything was correct and she just said, if you feel better it's working. I do not have a data recording cpap, and the PA said we can do another sleep study in a year if I want one. The cpap does help but wouldn't you think there should be more follow up on something as important as this? I can't seem to get anybody else to listen to me. Advice please?
Re: Frustrated with entire system
It sounds like they got your forms mixed up with someone elses.
Maybe you could try to get it sorted out and get YOUR study results or trade your basic machine for a data capable one (if the time frame allows that and you can make a case for it).
If not, I wouldn't wait a year. If you begin to feel better that's probably fine. It will take some time. For some it takes weeks, for some months.
If you tell us what machine you have, people here can probably help you adjust the pressure unitl you begin to feel better.
If you can afford to, buy a data capable machine yourself with software and reader(cpap.com is a good place to buy online at a good price - email them for their real price). You can keep you basic cpap as a backup.
Then get some data to post here and lots of people can help you more quickly than experimenting with different pressures on a basic cpap.
Maybe you could try to get it sorted out and get YOUR study results or trade your basic machine for a data capable one (if the time frame allows that and you can make a case for it).
If not, I wouldn't wait a year. If you begin to feel better that's probably fine. It will take some time. For some it takes weeks, for some months.
If you tell us what machine you have, people here can probably help you adjust the pressure unitl you begin to feel better.
If you can afford to, buy a data capable machine yourself with software and reader(cpap.com is a good place to buy online at a good price - email them for their real price). You can keep you basic cpap as a backup.
Then get some data to post here and lots of people can help you more quickly than experimenting with different pressures on a basic cpap.
_________________
| Machine: DreamStation Auto CPAP Machine |
| Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
| Humidifier: DreamStation Heated Humidifier |
| Additional Comments: Backups- FX Nano masks. Backup machine- Airmini auto travel cpap |
Re: Frustrated with entire system
Sleep doctors are terrible about followup. I didn't even see the sleep doctor until almost 90 days after I got my CPAP - and then I believe it was because of an insurance requirement for the sleep lab to get paid for the sleep study. I was having problems: he made some changes and said they would notify me of the follow up date which would be about a month - it ended up to be 2 months later. I walked out of that appointment feeling like he really didn't want to take the time to treat me. He did not address any of my problems, said everything was fine, here have some sleeping pills, I'll see you in 3 months.
The 3 month follow up consisted of a phone call by a nurse (this really sticks in my craw). They called me at work, I had a client in front of me waiting for me to program a piece of equiptment for him. I asked the nurse to call me back in a half hour and his reply was "I don't have time to call you back" I finally got an appointment at what would be the 6 month time period.
I've heard many similar stories on this forum. Is it any wonder why so many people end up here looking to non professionals for advice?
I still don't advocate newbies making changes without consulting thir doctor (they might have a good one). If your not seeing some improvement in a month, something's not right - you'll have an easier time pin pointing the problem with a fully data capable machine. Remember when you make changes do it slow - one thing at a time, a little bit at a time, and leave it sit for at least a week before you try something else.
The 3 month follow up consisted of a phone call by a nurse (this really sticks in my craw). They called me at work, I had a client in front of me waiting for me to program a piece of equiptment for him. I asked the nurse to call me back in a half hour and his reply was "I don't have time to call you back" I finally got an appointment at what would be the 6 month time period.
I've heard many similar stories on this forum. Is it any wonder why so many people end up here looking to non professionals for advice?
I still don't advocate newbies making changes without consulting thir doctor (they might have a good one). If your not seeing some improvement in a month, something's not right - you'll have an easier time pin pointing the problem with a fully data capable machine. Remember when you make changes do it slow - one thing at a time, a little bit at a time, and leave it sit for at least a week before you try something else.
