This can't be for real

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
-SWS
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Re: This can't be for real

Post by -SWS » Thu Sep 04, 2008 9:34 am

ozij wrote:I always take off my mask and turn off the machine when taking a potty break.
Wonder how many tornadoes and monsoons this has caused over the years...

Riv

Re: This can't be for real

Post by Riv » Thu Sep 04, 2008 9:51 am

O,

You're being serious here (thank you for it) and so am I.

A few others are being funny. Being funny is fine but its best to be funny with those who have that irrelevant style (I don't), who have posted here awhile and have engaged in humor on prior occasions, who are part of one's clique (if there are any cliques here) and who aren't newcomers asking what they feel are serious questions.

In my view, nothing about sleep apnea is funny. Maybe I ought to lighten up, maybe it would be better for me to lighten up, maybe in time I will lighten up but as of now, nothing about sleep apnea is funny to me.

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Wulfman
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Re: This can't be for real

Post by Wulfman » Thu Sep 04, 2008 10:04 am

ozij wrote:The intsructions for my machine are very clear:
In the manual for the 420e Puritan Bennett wrote:Starting treatment:
1. Start the device by pressing the on/off button. <snip>
2. Put the patient interface (nasal mask) in place according the intsructions for use <snip>
Warning:
A patient interface with hose should not be worn unless the cpap device is turned on and functioning properly

Stopping Treatment:
1. If you are using oxygen, stop the flow now.
2. Remove the interface (nasal mask)
3. <snip>
4. Turn the device off by pressing the on /off button.
I've been doing this for 3 1/2 years. Its impact on my leak data is less than negligible - the machine doesn't start counting anything for 15 minutes after the mask is on, and my "take off mask turn off machine" is a very streamlined movement. Probably doesn't take more that 2-3 seconds.

I always take off my mask and turn off the machine when taking a potty break.

O.
If I started my machine BEFORE I put my mask on, I'd have a horrible time getting the UMFF to seal (it would blow out the seal/flaps) and that's what the auto-on feature does when I finally get it arranged on my face.
I've also seen the leak spikes on my chart when I've tried to sneak my finger into my mask to scratch an itch.....now I turn it off and remove the mask to do that.

I just prefer to keep my data from being corrupted as much as possible.

Den (trying to keep as many hurricanes, tornadoes and monsoons from occurring as possible)
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

Riv

Re: This can't be for real

Post by Riv » Thu Sep 04, 2008 10:19 am

Wulfman,

Good point! I wish I had realized it before.

If I started my machine BEFORE I put my mask on, I'd have a horrible time getting the UMFF to seal (it would blow out the seal/flaps) and that's what the auto-on feature does when I finally get it arranged on my face.
I've also seen the leak spikes on my chart when I've tried to sneak my finger into my mask to scratch an itch.....now I turn it off and remove the mask to do that.

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roster
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Re: This can't be for real

Post by roster » Thu Sep 04, 2008 10:34 am

Riv wrote:.......
In my view, nothing about sleep apnea is funny. ...
That is true, but truth is strange.

There are days that I am very aware of the truth you state. These are bad days.

Then there are days that I laugh. This helps to create a different and more pleasant reality for me. A different kind of truth.

I doubt this forum would be so popular if there were not lots of humor and nonsense.

Glad to welcome you here Riv.
Rooster
I have a vision that we will figure out an easy way to ensure that children develop wide, deep, healthy and attractive jaws and then obstructive sleep apnea becomes an obscure bit of history.https://www.youtube.com/watch?v=0ycw4uaX ... re=related

Riv

Re: This can't be for real

Post by Riv » Thu Sep 04, 2008 10:45 am

Rooster,

All very true but people as a rule should be irrelevant with those who are irrelevant and serious with those who are serious.

As a serious person, I would not attempt to enter say a thread which was going in a humorous way as I am not here to kid around about sleep apnea. Ok, I respect those who do joke about apnea, maybe I admire them in a way for being able to joke but I wouldn't enter a humorous thread because I wouldn't want to give the (very wrong) impression that it would be ok for one of my questions to be answered in an unserious manner.

These questions I pose have meaning to me, I come here for help and if I can help others then I'll be glad to.

Thank you for the welcome.

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tangents
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Re: This can't be for real

Post by tangents » Thu Sep 04, 2008 11:04 am

Riv,

I'm very confused reading this thread. I don't see where anyone has been flippant. So I just don't get your defensive attitude.

Welcome to the forum, there's lots of caring and kind folks here that will help with all of your questions. Like others have said, it helps us if you register your equipment.

Cathy

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wlo2008
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Re: This can't be for real

Post by wlo2008 » Thu Sep 04, 2008 11:11 am

Riv wrote:Rooster,

All very true but people as a rule should be irrelevant with those who are irrelevant and serious with those who are serious.

As a serious person, I would not attempt to enter say a thread which was going in a humorous way as I am not here to kid around about sleep apnea. Ok, I respect those who do joke about apnea, maybe I admire them in a way for being able to joke but I wouldn't enter a humorous thread because I wouldn't want to give the (very wrong) impression that it would be ok for one of my questions to be answered in an unserious manner.

These questions I pose have meaning to me, I come here for help and if I can help others then I'll be glad to.

Thank you for the welcome.

Well in my opinion it is hard to tell a personality by a post. All questions are serious, but then others add a little humor as well. Just like in everyday life when we deal with everyday people. I hate walking on egg shells. If there is no humor you will just make your self sicker, Stressing out causes a person to be sick, laughter and humor is very healthy for a person. And as far as I know there is no cliques here. We all have humor.

But Yes it can mess up your data, I know that first hand when downloading my data. I get the large leaks everywhere. Problem is the last couple of nights I have taken my mask off with out knowing it with my cold. SO those leaks were everywhere.
Wendy

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wlo2008
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Re: This can't be for real

Post by wlo2008 » Thu Sep 04, 2008 11:13 am

tangents wrote:Riv,

I'm very confused reading this thread. I don't see where anyone has been flippant. So I just don't get your defensive attitude.

Welcome to the forum, there's lots of caring and kind folks here that will help with all of your questions. Like others have said, it helps us if you register your equipment.

Cathy
I just assumed that RIV was ok with humor sense he started out with humor.
Wendy

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Re: This can't be for real

Post by Wulfman » Thu Sep 04, 2008 11:15 am

"Life" is what you make of it. I hate to be dead serious all of the time.......I've spent too much of my life being subjected to that sort of environment and have been told at times to "lighten up".......and life is too short to be making myself miserable, so I chose to try to mix SOME humor with "whatever"....."whenever" (it's appropriate). We can't change what's already happened and to dwell on misery is.......well, miserable.
When I found out that I had sleep apnea and all I had to do was strap on the mask every night, I was very relieved. It has been an ongoing process of restoration of my previous health. Kinda hard to feel "serious" about that.

None of us are getting out of this alive......

Den
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

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wlo2008
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Re: This can't be for real

Post by wlo2008 » Thu Sep 04, 2008 11:24 am

Wulfman wrote:"Life" is what you make of it. I hate to be dead serious all of the time.......I've spent too much of my life being subjected to that sort of environment and have been told at times to "lighten up".......and life is too short to be making myself miserable, so I chose to try to mix SOME humor with "whatever"....."whenever" (it's appropriate). We can't change what's already happened and to dwell on misery is.......well, miserable.
When I found out that I had sleep apnea and all I had to do was strap on the mask every night, I was very relieved. It has been an ongoing process of restoration of my previous health. Kinda hard to feel "serious" about that.

None of us are getting out of this alive......

Den
It is so true that it is a relif, and I have to laugh at my self when I put the mask on and look like I am going scuba diving or something. There are so many other issues in life that can be depressing or worse. While Sleep apnea is not good being untreated, there are still others in worse condition then we are. That is how I always think of it. I can always be in worse condition. Keeping a positive additude is half the battle. And if you can't laugh at your self or with others, then I think I would lose the battle and give up. And I refuse to give up on anything.
Wendy

-SWS
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Re: This can't be for real

Post by -SWS » Thu Sep 04, 2008 1:04 pm

riv wrote:In my view, nothing about sleep apnea is funny. Maybe I ought to lighten up, maybe it would be better for me to lighten up, maybe in time I will lighten up but as of now, nothing about sleep apnea is funny to me.
Riv, if you can manage to find a way to lighten up, humor just may help at a physiologic level. Humor is a stress reducer and there are plenty of medical studies showing the adverse effects of stress on our health. With that premise we might then deduce that humor may, indeed, be very beneficial to the pathophysiology of healing.

However, with that said, I have to acknowledge that sleep deprivation seems to make some people irritable, while it imbues others, such as myself, with the opposite effect of levity (e.g. "That person was so tired they were slap happy"). However, the realization of sleep apnea also undoubtedly entails varying degrees of emotional crisis for many of us. And I will acknowledge how very difficult it is to achieve a mindset of "levity" in the midst of any perceived or real crisis. On that basis I extend my apologies if you found my earlier attempt at humor offensive.

It's admittedly very difficult to accept the diversities and nuances of the general public when we are tired and burdened. At the same time when we enter any public arena or venue, it is unreasonable to expect that we might prescribe our own preferences regarding expected behavior that the general public around us should adopt. Rather, I would suggest that when we engage the public, that we should expect and allow a diverse public to be exactly that. And when we are not quite up for tolerating a public with diverse values and methods of expression, such as humor, that we might either reconsider or simply avoid the public if we're not in a mood to tolerate those moods and expressions of others (I realize that's much easier said than done).

I see a lot of request for both help and opinions in your threads----help and opinions from others that you occasionally miss or ignore, and occasionally counter with ample contention. I have no desire to change that behavior. Rather I accept it because you are a member of one incredibly diverse public who has come here seeking help. While your unique method of thought and expression is not my own preferred method, I gladly accept it because it reflects who and where you happen to be right now in our collective spiritual plane of reality known as the human condition.

More importantly I hope that as you learn to heal, with the help of your favorite posters here, that your present set of obstacles will start to magically disappear---as if by a sheer and magical will driven by your own hope and optimism bolstered by your new friends here. Good luck and good health, Riv.

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wlo2008
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Re: This can't be for real

Post by wlo2008 » Thu Sep 04, 2008 1:23 pm

-SWS wrote:
riv wrote:In my view, nothing about sleep apnea is funny. Maybe I ought to lighten up, maybe it would be better for me to lighten up, maybe in time I will lighten up but as of now, nothing about sleep apnea is funny to me.
Riv if you can manage to find a way to lighten up, humor just may help at a physiologic level. Humor is a stress reducer and there are plenty of medical studies showing the adverse effects of stress on our health. With that premise we might then deduce that humor may, indeed, be very beneficial to the pathophysiology of healing.

However, with that said, I have to acknowledge that sleep deprivation seems to make some people irritable, while it imbues others, such as myself, with the opposite effect of levity (e.g. "That person was so tired they were slap happy"). However, the realization of sleep apnea also undoubtedly entails varying degrees of emotional crisis for many of us. And I will acknowledge how very difficult it is to achieve a mindset of "levity" in the midst of any perceived or real crisis. On that basis I extend my apologies if you found my attempt at humor offensive.

It's admittedly very difficult to accept the diversities and nuances of the general public when we are tired and burdened. At the same time when we enter any public arena or venue, it is unreasonable to expect that we might prescribe our own preferences regarding expected behavior that the general public around us should adopt. Rather, I would suggest that when we engage the public, that we should expect and allow a diverse public to be exactly that. And when we are not quite up for tolerating a public with diverse values and methods of expression, such as humor, that we might either reconsider or simply avoid the public if we're not in a mood to tolerate the lighter moods of others (I realize that's much easier said than done).

I see a lot of request for both help and opinions in your threads----help and opinions from others that you occasionally miss or ignore, and occasionally counter with ample contention. I have no desire to change that behavior. Rather I accept it because you are a member of one incredibly diverse public who has come here seeking help. While your unique method of thought and expression is not my preferred, I gladly accept it because it reflects who and where you happen to be right now in our spiritual plane of collective reality.

More importantly I hope that as you learn to heal, with the help of your favorite posters here, that your present set of obstacles will start to magically float away as if by sheer will driven by your own hope and optimism. Good luck and good health, Riv.

Well said .....You mentioned about being irritable, I tell you what when I have a bad night. I can snap so easily, it is not even funny

then I say to my self....Just because I am in pain, does not mean I can be a pain. But I can still talk about my pain. LOL
Wendy

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Re: This can't be for real

Post by jmaziarz » Thu Sep 04, 2008 1:59 pm

Riv wrote:Are these people kidding me?
I'm still having a hard time following the initial line of thought of this thread. Who are you talking about? What previous post are you referring to?

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wlo2008
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Re: This can't be for real

Post by wlo2008 » Thu Sep 04, 2008 2:09 pm

It was on the dream thread. RIV had mentioned that he takes off his mask first and then turns off the machine. Someone one mentioned that it is not good to do this sense it can mess up your leak data if you are keeping track, and as well as I think it was mentioned when taken off it makes the motor work harder or something to that effect. But at this point I am lost
Wendy