I got a copy of my sleep stuy HELP!!!!

odawa · Post by **odawa** » Sun Nov 18, 2007 4:00 pm

I got a copy of my sleep study. I don't know how to post it. I have an appt with the sleep study dr in the beginning of December, as this treatment is not working well for me.
And I have no idea why. I use the machine 100%
I know I need to get a better machine, but truthfully I do not understand the report. I'm gonna sound like an idiot unless I get some help. Thanks to everyone. This is an awesome board.
Andrea

odawa · Post by **odawa** » Sun Nov 18, 2007 4:09 pm

I think I found how to post to this site.

Thank you again.

Sleepy Dog Lover · Post by **Sleepy Dog Lover** » Sun Nov 18, 2007 5:27 pm

If you post the 2nd page it may help. This page shows a summary of your sleep architechture, but doesn't show anything about your AHI numbers.

odawa · Post by **odawa** » Sun Nov 18, 2007 7:31 pm

the 2nd page just shows the icsd cod: A8
pc Dr. Consens
It doesnt have any information at all on it.

RosemaryB · Post by **RosemaryB** » Sun Nov 18, 2007 9:52 pm

odawa wrote:the 2nd page just shows the icsd cod: A8
pc Dr. Consens
It doesnt have any information at all on it.

Then it's not the whole sleep study.

Here's an example of my sleep study and what it might contain, though they all look a bit different. They all contain similar info, though. There are four pages and you can see all the graphs and charts.

viewtopic.php?t=19204&highlight=

You should call them and get the whole study.

Guest · Post by **Guest** » Mon Nov 19, 2007 11:35 am

I requested the rest of the study. Hopefully it'll have some info on it that will help

Guest · Post by **Guest** » Tue Nov 20, 2007 3:37 am

Yeah, there should be a section that showed your RDI per each pressure. That's how the docs decide which pressure looks best.

odawa · Post by **odawa** » Thu Nov 22, 2007 11:57 am

I'm bumping this so that I can post the info when it gets here.

odawa · Post by **odawa** » Sat Dec 01, 2007 3:34 pm

I almost gave up but the test results finally came. I had to request it twice. Please look at these results and translate to layman terms. My appt with the sleep study dr is Monday. I'm still tired all of the time and just feel miserable all of the time, I need a good argument to get a better machine or better treatment. This is really affecting my job and schooling. Thank you everyone.

http://i213.photobucket.com/albums/cc29 ... pstudy.jpg
http://i213.photobucket.com/albums/cc29 ... dy0002.jpg
http://i213.photobucket.com/albums/cc29 ... dy0003.jpg
http://i213.photobucket.com/albums/cc29 ... dy0004.jpg

cflame1 · Post by **cflame1** » Sat Dec 01, 2007 4:41 pm

Not that I completely know what I'm talking about, but you shouldn't need much to convince the doc for a better machine... just your continued tiredness should do it.

Other question would be are they treating the PLM's??

odawa · Post by **odawa** » Sat Dec 01, 2007 4:47 pm

I still do not understand the study.
I'm assuming since I don't move my legs much once I'm asleep they arent worried. But who knows?

cflame1 · Post by **cflame1** » Sat Dec 01, 2007 4:49 pm

You may have to bitch and complain to the doctor... and then bitch and complain to the DME.

odawa · Post by **odawa** » Sat Dec 01, 2007 5:02 pm

complaining to the dme has not helped, my prescription has cpap machine, they filled the prescription. I need to get the dr to make the change, and I do not understand the study results enough to get that too happen.

justplainbill · Post by **justplainbill** » Sat Dec 01, 2007 6:33 pm

I'm no real expert either. I would offer the following:

First, each of these are summaries. They are informative but they do leave some data out. The data from your first sleep study seem to suggest mild sleep apnea which becomes moderate during REM sleep and which is worse on your back than on your side (and with the REM difference seeming to be a bit greater than your positioning difference by at least a little bit). Your study shows no apnea events (events lasting 10 seconds or longer where there is no intake of air into the lungs) and what is shown are in terms of obstructive apnea is entirely hypopneas (events lasting 10 seconds or longer with significant reduction in te intake of air into the lungs). It shows few leg movements while asleep but quite a few leg movements while you were awake during the study. It shows frequent moderate snoring and frequent arousals. Your REM sleep appears to be fairly normal. But your stage III/IV sleep (also known as slow wave sleep, delta sleep and/or deep sleep) is absent. This might well be due to whatever is causing your arousals (which are abrupt transitions from a deeper level of sleep to a shallower level of sleep) and your wakeful periods after you fell asleep.
Your blood oxygen level decreases somewhat but it does not look like it decreases a whole lot.

Your first titration study shows slightly decreased REM (possibly due to the shorter duration of the study) and a moderate number of leg movements while asleep, and no stage III/IV sleep.

The second study shows better REM, no stage III/IV sleep, and no leg movements. Your blood oxygen level appears to be about 3% better both at baseline and in terms of your minimum oxygen level. You still had a substantial period of wakefulness after sleep. No information is provided regarding arousals.

Here's what I think I would want to ask the sleep doctor:
What appears to be causing the arousals in your initial study? Does it appear to be related to snoring or other non-apnea/hypopnea respiratory events? Do they appear to be related to spontaneous arousals (arousals that seem to be unconnected to any other events recorded during the sleep study)?

Is there anything up regarding the leg movements you displayed during awake periods in your initial study and the number of leg movements recorded during your first titration?

What information is available about arousals during your second titration study? What factors appear to be contributing to your arousals and your periods of wakefulness.

None of your studies showed any stage III/IV sleep. What could be contributing to this? Is it possible that you have an additional problem affecting your sleep either like upper airway resistance (which might require closer fine-tuning of your CPAP therapy) or like insomnia or alpha intrusion disorder or restless leg/periodic limb movement disorder (that may also need to be addressed separately)?

With respect to your machine, I might indicate through your questions and your approach that you are concerned about your sleep problems and that you are sceptical as to how effective CPAP will be in completely addressing your sleep problems (due to the continued absence of stage III/IV sleep) and that you want to follow your CPAP treatment closely (and that you want your sleep doctor and/or DME to also do this) so that (say) if you are not feeling a lot better in 3 months or 6 months that there will not be any question as to whether you are having problems with continued apneas or hypopneas or with mask leakage.

Personally, I think CPAP will help you although you might not perceive the benefits right away. I am concerned about the lack of stage III/IV sleep (despite a recent post from someone else whose sleep doctor apparently told him that after 25 years of age that stage III/IV sleep does not make much of a difference), especially because the material I have read seems to suggest that stage III/IV sleep is the period that is most physically restorative to the body.

A few things to consider in looking at this would include: what is your sleep like at home? Is it a lot like the experiences you had in the sleep lab (at least with the waking periods and how you feel on awaking and your overall alertness afterwards? Or was the sleep lab experience very off-putting and uncomfortable for you (which could contribute to the arousals and the wakefulness making them seem more prominent than they usually are at home)? Also, if you have any factors like arthritic problems (like rheumatoid arthritis, lupus, Sjorgen's syndrome), fibromyalgia, chronic fatigue syndrome, a chronic pain disorder; if you are on medication for anxiety or depression or insomnia; or if you are taking one or more other medications that could be interfering with your sleep-these are all factors that might help explain what is going on with your sleep pattern.

I hope this helps you at least alittle. If you have other questions, please feel free to post.

Good luck and best wishes,
Bill

odawa · Post by **odawa** » Sat Dec 01, 2007 6:44 pm

MORE INFO:
My 1st sleep study, I did not sleep much at all. I do not normally sleep on my back at all, and for the study I had too. The experience was new and very offsetting. I woke up feeling awful and like I hadnt slept at all. I even left my pillow at the lab.
the 2nd sleep study was incomplete, I got called to ER as my daughter was going to have emergency appencitis surgery.
the 3rd sleep study, I was allowed to sleep on my side and then move to the back. I'm not sure how much I slept on my back as I am a side and front sleeper. It was a more comfortable sleep.
I'll have to check on the III/IV sleep. Can you tell me some search words? I really appreciate the help, I do not want to go to this appointment and sound unknowledgeable, as I will not get the help I need.