Can CPAP treatment reverse damage to brain cells?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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socknitster
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Post by socknitster » Sun Jul 15, 2007 7:29 pm

And who would stand by for 4-5 minutes watching a relative suffocate?
That is what I'd like to know!!!!!!!!

I can't imagine realizing someone wasn't breathing and NOT threatening hell on wheels until the person went to a doctor.

I know everyone can have an apnea event occasionally, even normal night-breathers. But to know someone does this on a regular basis? All I can say is there needs to be a major educational campaign about this. We can have one about erectile dysfunction but no one is campaigning osa! Crazy. Is sex more important than breathing? I'd rather fix breathing first, please!

jen

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roster
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Post by roster » Sun Jul 15, 2007 7:52 pm

Rabid1 wrote:
JimW wrote:.....

And who would stand by for 4-5 minutes watching a relative suffocate?
The heirs.

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cascade
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Post by cascade » Sun Jul 15, 2007 9:35 pm

Very sobering information. Makes me glad I didn't put off my sleep doc appointment any longer; makes me regret putting it off as long as I did, especially when doc did a double take at my numbers and said I'm in his Top 5 Most Severe -- a dubious honor to say the least!

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Babette
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Post by Babette » Mon Jul 16, 2007 10:53 am

rooster wrote:
Rabid1 wrote:
JimW wrote:.....

And who would stand by for 4-5 minutes watching a relative suffocate?
The heirs.
As funny as this is, and I did laugh, I also thought of my elderly relatives that I have wished for everyone's sake would just slip away peacefully in their sleep.

I'm thinking someone was thinking "this person is dying and it's time to let them go" and was just waiting for the end, rather than thinking "YAY! Grandpa's kicking it and I'll be rich!"

I became a caregiver to my 89 year old grandfather at 17 years old. Watching someone die is not fun. But you struggle through it because you care, and you think it's the right thing to do. But when they look at you with pleading eyes and tell you they don't want to go through it anymore, what do YOU want to happen? A nice bit of sleep apnea can be God's way of letting EVERYONE off the hook, including the patient.

Just my perspective. And now you know why I lived with apnea so long. I figured if God was killing me off, maybe it was my time to go. Now I'm not so sure it wasn't just my fault for getting so fat...
B.

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Post by DreamStalker » Mon Jul 16, 2007 11:31 am

JimW wrote:.....

And who would stand by for 4-5 minutes watching a relative suffocate?
I was not going to respond to this comment but after Bab’s post, I decided I would.

I stood by for hours and watched my dad suffocate on his last breath about 6 years ago. He had terminal throat cancer among other health issues (having survived a few heart attacks and a couple of strokes before he was 67). He went through the chemo and radiation treatment but the cancer came back with a vengeance after only a few months. So he decided to give up and did not want to put our family or himself through any more suffering than was absolutely necessary (he had watched his own dad die from lung cancer just a few years before his own diagnosis). After the docs told my dad there was nothing else they could do, he quit eating and within a week (on 9/11) went into a comma for a couple of days before dying. During those last couple of days we took turns holding his hand at his bedside and it just so happened that he took his last breath while on my watch.

It was very difficult to watch him die like that but it was his wish to die at home in his own bed rather than in a hospital with all kinds of strangers and tubes/machines/drugs prolonging the suffering. Although I’m now sure he had OSA, at the time I had never heard of the term. Perhaps watching my dad pass away like that was a foreshadowing clue of my own condition and I just was not aware enough to realize it then … maybe it is why I have taken to PAP treatment as I have?
President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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Babette
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Post by Babette » Mon Jul 16, 2007 11:34 am

Roberto, CYBER HUG.
B.

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Post by Snoredog » Mon Jul 16, 2007 12:17 pm

DreamStalker wrote:
JimW wrote:.....

And who would stand by for 4-5 minutes watching a relative suffocate?
I was not going to respond to this comment but after Bab’s post, I decided I would.

I stood by for hours and watched my dad suffocate on his last breath about 6 years ago. He had terminal throat cancer among other health issues (having survived a few heart attacks and a couple of strokes before he was 67). He went through the chemo and radiation treatment but the cancer came back with a vengeance after only a few months. So he decided to give up and did not want to put our family or himself through any more suffering than was absolutely necessary (he had watched his own dad die from lung cancer just a few years before his own diagnosis). After the docs told my dad there was nothing else they could do, he quit eating and within a week (on 9/11) went into a comma for a couple of days before dying. During those last couple of days we took turns holding his hand at his bedside and it just so happened that he took his last breath while on my watch.

It was very difficult to watch him die like that but it was his wish to die at home in his own bed rather than in a hospital with all kinds of strangers and tubes/machines/drugs prolonging the suffering. Although I’m now sure he had OSA, at the time I had never heard of the term. Perhaps watching my dad pass away like that was a foreshadowing clue of my own condition and I just was not aware enough to realize it then … maybe it is why I have taken to PAP treatment as I have?
Sorry you had to go through a prolonged passing. In a way, I think it is better if they go fast, my dad also died in my arms in the front yard of our home. Watching your dad turn blue and leave isn't pleasant experience, one minute we were talking, I was testing out a new rod & reel I just gotten with a rubber weight in the front yard as we were planning to go fishing the next day. He was sitting on the ground watching me cast it (he had gotten up from a nap just a few minutes before), I turned around and he was slouched over on the ground holding his chest. He was a big guy 6' 4" and 240lbs., I roll him over on his back and ask him what's wrong? he's gasping like for air moaning and holding his chest (dad didn't complain about anything), I look in his mouth thinking he can't breathe while hollering for Mom, looks like he swallowed his tongue, I tell her to call the paramedics (mom was a registered nurse during WWII) so I insert my finger to pull his tongue out and he starts biting it, darn near bit my index finger off, but I got his tongue out but he's still having problems, so he's grasping his chest, his color is changing, I start pushing on his chest in some form of CPR I had seen on TV (I had absolutely no idea what I was doing, back then, CPR was still experimental back then) but I keep working on him, then I hear the sirens coming from down the street (we were only 1.5 blocks away from the firehouse) as Mom gotten through to them, by then dad is starting to turn blue and finally his last breath escapes from his mouth as the EMT truck pulls up, he is completely still, paramedics who know him as a friend arrive and start working on him they continue for another what seemed like 30 more minutes even strapping that pneumatic piston-plunger CPR device to him. Finally the ambulance arrives, but by then we all knew the outcome, I know I did, he was gone. That was more than 35 years ago, I was only 15 at the time, the funeral was on my 16th birthday he was only 51 yrs old, my age now.

I know now that he also had OSA, years prior he used to smoke, mom would say he stopped breathing all the time during sleep, sometimes she would poke him to wake him up. He worked very hard all his life was in great shape for his size but he took naps all the time, I now know why.

My opinion based upon my own experience having 2 strokes prior to obtaining a OSA diagnosis and the year before that having a TIA at least once a week under the care of a Neuro is that hypoxia itself probably doesn't cause brain cell death, but that the hypoxic condition leads to what I call thick blood. Thick blood is like being severely dehydrated red blood cells become smaller and deformed so they don't carry as much oxygen to your vital organs, the lower levels of oxygen carried in the blood allows the cells that make up your arteries to die sooner where it leads to arterial inflammation which drives up cholesterol levels to fight the inflammation which increases platelet counts (mine were over >850,000) which puts you at greater risk of having a heart attack or stroke. Which one you have just depends on the luck of the draw on where that clot wants to land.

They say the 3rd stroke usually kills ya, having had 2 already it would not be the worst way to go that I can think of, but I still want to hang around for a while and don't want to be some crippled burden on my family, so my approach is simple, I quit smoking at first stroke (more that 7 years now), I use CPAP to prevent the hypoxia, which lowers the inflammation, I take a aspirin every day (even with a past history of ulcers) which acts as a anti-platelet agent like Plavix and keeps my blood thin and hopefully helps fight the arterial inflammation. So far, it seems to be working, I haven't had a single TIA or that 3rd stroke in years.

When I go, I hope it is during my sleep and they find me before I stink up the place.

someday science will catch up to what I'm saying...

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Post by Babette » Mon Jul 16, 2007 12:25 pm

Snoredog, ANOTHER BIG CYBER HUG TO YOU!!!!

My granpa's funeral was my first funeral ever. It was so surreal sitting there. I had to keep asking my dad what was going on. I didn't understand why the cars all pulled over to the side of the road... I'd never seen a dead body before, and my aunt sent me to the funeral home alone to check out grandpa first. Thank god for the funeral director, a very kind man, who kept me from touching him, so I don't have that as my last memory of him...

My grandma had a TIA and was never the same again. She used to make this weird keening noise. I couldn't decide if she was crying or singing. She was never lucid again. She finally expired after a month of so of that, but the nursing home sent her to the hospital. She had died a long time before the frickin' doc would disconnect her. 7 days in ICU. I kept apologizing to her ventilating corpse. AND SHE HAD A NO CODE ON FILE!!!!!!!!!!!!!!!!!!!!! But I was not considered HER NEXT OF KIN, so they waited for my mother to get home from vacation to disconnect her, so mom could say goodbye.... VAMPIRES!!!!!!!!!!!!!!!!!!!!!

Sorry...
Sorry...
Sorry...
B.

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Post by roster » Mon Jul 16, 2007 2:35 pm

Since you guys are writing about this kind of stuff, I will too.

Life often is not pretty. Dad contracted stomach cancer when I was 11 in 1960. Back then the docs did crude surgery twice and then cobalt radiation treatment. Then they sent him home to die. When the pain got too bad and he was really wasting away, they took him to the hospital to die and pumped him full of morphine. He was a strong man and held on for six torturous months. It was very difficult for the family.

I remember the next year the Heart Association came to the door fund raising. When mom came back down the hall she told me, "I only gave them a dollar. A heart attack is not a bad way to die".

Grandma had a stroke in her sixties. She lost the use of both legs and one arm. She never had another coherent thought. She lived 17 years in a wheelchair cursing nonsense like a sailor all day long.

I won't go into the aunts and uncles we have watched suffer and waste away from stomach and lung cancer. I would like to live many more years if I can be healthy, but when it is my time, I hope it is quick.

I just attended a dementia support group because I am taking care of my 85-year old mom. One of the professionals gave a presentation on Alzheimer's, showed slides of the brain as it deteriorates and taught us how to care for people with dementia. At the end of the session, I told the guy in private that when it comes to my time, I would rather die quickly than live a few more years as a dementia patient. I expected that he would reproach me for having a bad attitude. He didn't; he just said, "Me too".

I guess we will do what we can and the rest is in God's hands.

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Post by Babette » Mon Jul 16, 2007 2:48 pm

To Rooster, and all the other caregivers on this forum ULTRA BIG CYBER HUG!!!!!!!!!!!
B.

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sharon1965
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Post by sharon1965 » Mon Jul 16, 2007 3:00 pm

rabid1 said:
And who would stand by for 4-5 minutes watching a relative suffocate?
I KNOW, RIGHT?
a few months ago i was trying to appeal to my oldest brother about getting tested for OSA as i'm convinced he has it, along with my dad and another brother...i was describing my psg to him and i told him i stopped breathing 45 times/hr and sometimes for as long as a minute...

his new fiance, whom i was meeting for the first time, says, "that's nothing" --(i'm already irritated, thinking to myself, 'was i talking to you'?)--"my ex-husband used to stop breathing for up to two minutes"

..."oh," i say, " he was diagnosed with osa?"
....she says, "no, but i would watch him and time it"
..."hmm," i say, casting a sidelong glance at my brother, "and you didn't think maybe you should rouse him instead of clocking his time in apnea?"
...she says, "no, every time he would catch his breath, i'd say, 'well, better luck next time!'"

imagine my disgust, but all i could say was, "good luck to you, brother"
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Post by Babette » Mon Jul 16, 2007 3:20 pm

Hey Sharon, just don't eat the food if she hosts the family dinners, okay?

Hope she's pretty, maybe that might make up for her WINNING PERSONALITY... She sounds like a real PITA.

GOOD LUCK!
B.

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Post by socknitster » Mon Jul 16, 2007 5:29 pm

sharon1965 wrote:rabid1 said:
And who would stand by for 4-5 minutes watching a relative suffocate?
I KNOW, RIGHT?
a few months ago i was trying to appeal to my oldest brother about getting tested for OSA as i'm convinced he has it, along with my dad and another brother...i was describing my psg to him and i told him i stopped breathing 45 times/hr and sometimes for as long as a minute...

his new fiance, whom i was meeting for the first time, says, "that's nothing" --(i'm already irritated, thinking to myself, 'was i talking to you'?)--"my ex-husband used to stop breathing for up to two minutes"

..."oh," i say, " he was diagnosed with osa?"
....she says, "no, but i would watch him and time it"
..."hmm," i say, casting a sidelong glance at my brother, "and you didn't think maybe you should rouse him instead of clocking his time in apnea?"
...she says, "no, every time he would catch his breath, i'd say, 'well, better luck next time!'"

imagine my disgust, but all i could say was, "good luck to you, brother"
OMG, Sharon!

Did your brother think that was funny, or was he gagging and looking at her like he didn't know her? Some people are so completely blinded by love and then reality sets in once the honeymoon is over.

I am also in the same boat with trying to get my family tested. I too am meeting lots of resistance and flat out anger. When I told my mom (who has hi bp, diabetes and one heart scare) that being overweight, having hi bp and diabetes means you are 70% likely to have apnea, she basically IGNORED ME.

It makes me so mad that I don't want to spend time with them. I get so damn sick and tired of hearing them complain about how tired they are and how they didn't sleep well. Duh! I've HEARD my mom stop breathing when she falls asleep on the couch. It was a long time ago and I didn't know what it was then, but it has gone thru my mind like a recording since I found out I have apnea.

I read your stories of losing loved ones and am very proud of you all. You all wrote of it with such dignity and respect. It is a sad thing that we have to lose loved ones. But my faith helps me to understand that we will be with them again and never see them suffer again. That (even if it isn't true and I pray it is!) gives me such peace of mind when I think about friends and family suffering.

Thank you for sharing your stories. They were all hard to read. I feel blessed that I now know what has been wrong with me all these years so that I don't have to leave my young boy behind at such a tender age, like Snoredog experienced. Teenage years are when a boy needs his dad. So sorry you had to lose him like that. At least you were there and he wasn't alone.

Jen

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sharon1965
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Post by sharon1965 » Mon Jul 16, 2007 5:49 pm

OMG, Sharon!

Did your brother think that was funny, or was he gagging and looking at her like he didn't know her? Some people are so completely blinded by love and then reality sets in once the honeymoon is over.
the third option, ie. blinded by love

I am also in the same boat with trying to get my family tested. I too am meeting lots of resistance and flat out anger.
2 of my 4 brothers definitely sound to me like obvious OSA sufferers, and my father was always snoozing on the couch, irritable, unapproachable, difficult, volatile and not remotely involved with us on a day to day basis--tough thing for my brothers to handle even today, since, as you said to snoredog, boys need their dad; --plus he snored like a buzzsaw and stopped breathing according to my mother...still, he won't hear of it...in fact, they never even ask me how i'm doing since my diagnosis, which kind of hurts but tells me how invested they are in my health and well-being; then again, they would have to admit that labeling me lazy and unmotivated all my life was a serious error---eeek, am i bitter much?

anyhoo , i did manage to get through to one of my bro's...he came to visit on the weekend and started asking me for more info...he even tried on my old interface lol! ... and he promised me he'd call his gp today and get a referral...i'm dying to call and see what transpired, but i don't want to push too much...
If you always do what you've always done, you'll always get what you've always got...

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Post by socknitster » Mon Jul 16, 2007 6:02 pm

Not an easy thing to do, but very wise. Your brother is a very lucky man. I hope he gets the treatment he needs and that alone may convince other members of your family!

Hugs, Jen